29 Jun Finding GRACE in a cancer diagnosis
From our partner, the Global Resource for Advancing Cancer Education (GRACE), which provides expert mediated information on current and emerging cancer management options in order to empower patients, caregivers and health professionals to become direct partners in cancer care. . .
There are already many websites and other resources that provide some information for patients from health care professionals, but we find that they often provide nonspecific information (i.e., “Chemotherapy is the main treatment for advanced lung cancer. Your doctor may talk with you about this approach.”). And while there are often discussions of specific treatments on patient and caregiver-moderated websites and other resources, the quality of the information is variable: sometimes great, and sometimes suspect. The potential for misinformation is a significant problem.
As new data emerge to guide novel practices, patients and health care providers alike need new sources for educational content that is freely available, delivered from the most highly regarded experts in a range of formats in language that is accessible to patients, free of commercial bias. This is what GRACE provides.
GRACE offers a large searchable online library of short-length, focused videos, articles and podcasts in a range of cancer types as well as an Online Forum moderated by GRACE which connects patients to experts and each other. Learn more at www.cancergrace.org.
GRACE is dedicated to reaching patients and caregivers in the most easily accessible, wide range of formats to achieve the greatest benefit to the community. In addition to our interactive Online Forum, video library, podcast series and articles offered on our website, we have engaged directly in person with the patient and caregiver community twice each year for several years through our live patient education events (typically held in-person but being hosted virtually again in 2021 due to COVID-19).
On July 17, 2021 from 10am-4:30pm EST, GRACE will host the 7th year of our Targeted Therapies in Lung Cancer Forum: A Live Patient Forum. This is a free online event for lung cancer patients, caregivers and survivors to interact with several world-class lung cancer oncologists, hear the latest information on treatments and participate in a live Q&A session with these amazing doctors during the event. The program also includes many disease-specific breakout sessions. This unique program will be broadcast as a livestream event on our website and viewers of the livestream will be able to submit questions in real time. There is no fee for the program but seats are limited and registration is recommended. Click on the Targeted Therapies Forum box at www.cancergrace.org to register.
This program will cover a wide range of targeted therapy topics and discussions including the following, each of which will immediately be followed by a live Q&A with the audience:
- Tissue Genotyping
- Liquid Biopsies
- Acquired Resistance
- EGFR Topics: Current standards and novel therapies, management of uncommon mutations including EXON 20
- ALK/ROS1 Topics: ALK therapies: which one comes first and how to sequence, ROS1 therapies: current standards and emerging options
- KRAS directed and rare mutations topics: KRAS directed therapies, rare: NTRK, RET and HER2 new therapies
- The role of IO therapy in driver positive patients
- Genotype directed therapies
- Targeted therapies in oligo-metastatic disease
- Online communities and how they support, educate and partner with research
We will also be hosting a Targeted Therapies Patient Education Forum in SPANISH on July 22, 2021 from 6:30pm – 8pm EST with oncologists from the Latinx community who will address the most pressing targeted therapies information for the Spanish speaking community. This program will also include a live audience opportunity as well as a Q&A session with the panelists following each of the following topics:
- What is next after front line therapy?
- Challenges in EGFR therapy/what we do after Osimertinib
- Sequential use of ALK and ROS1 inhibitors and how to use them
- Liquid biopsies for diagnosis and resistance
- RET and NTRK topics
- Is KRASg12c the next successful target in lung cancer
We look forward to engaging more patients and caregivers as we continue to expand our educational and interactive content and events. Please feel free to contact us at email@example.com with any questions.
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