The 4th Angel Mentoring Program, part of the Scott Hamilton C.A.R.E.S. Initiative (Cancer Alliance for Research, Education, and Survivorship) facilitates social support by matching patients and caregivers touched by cancer in a supportive, mentoring relationship with a survivor or co-survivor. Patient mentor volunteers are typically 6-months post treatment survivors who receive individualized one-on-one training, guidance, and support from program coordinators. Caregiver mentors receive similar training addressing caregiver roles. Patients/caregivers and their mentors communicate via email or telephone from the comfort of their own home. Request or become a mentor by calling 866-520-3197 or visit our website: www.4thangel.org
Alliance for Fertility Preservation
The Alliance for Fertility Preservation is a 501c3 charitable organization. The Alliance is made up of a team of professionals who have chosen to join together to advance the field of fertility preservation. Our members are recognized leaders with expertise in all aspects of fertility preservation including, oncology, reproductive endocrinology, urology, psychology, oncology nursing, and reproductive law.
Our exclusive focus is fertility preservation for cancer patients. Based on our collective clinical experience, we understand how overwhelming a diagnosis of cancer can be. So many aspects of an individual’s life are altered the moment they hear those words, “You have cancer.” And while many organizations address various facets of cancer and cancer treatment, we have chosen to help alleviate one of the most distressing, life-altering consequences of cancer treatment – infertility. www.allianceforfertilitypreservation.org
American Association for Cancer Research (AACR)
The mission of the American Association for Cancer Research (AACR) is to prevent and cure cancer through:
Through its programs and services, the AACR fosters research in cancer and related biomedical science; accelerates the dissemination of new research findings among scientists and others dedicated to the conquest of cancer; promotes science education and training; and advances the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world. www.aacr.org
American Brain Tumor Association
The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.
Founded in 1973, the American Brain Tumor Association was the first and is now the only national organization committed to funding brain tumor research and providing information, support and educational resources for all age groups and all tumor types. For 40 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.
American Cancer Society
At the American Cancer Society, we're on a mission to free the world from cancer. Until we do, we'll be funding and conducting research, sharing expert information, supporting patients, and spreading the word about prevention. All so you can live longer — and better. www.cancer.org
Athletes for Cancer
We use adventure-based experiences such as surfing, outrigger canoeing, standup paddling, skiing and snowboarding, as channels of healing, achievement and life-renewal that treat the mind, body, and soul. Athletes 4 Cancer’s programs aim to help young survivors (diagnosed between 18-39) not just survive, but thrive in all aspects of life, inspiring others facing cancer to do the same.
Blood & Marrow Transplant Information Network
The Blood & Marrow Transplant Information Network provides answers, advice and a caring companion throughout your transplant journey. Our website is your gateway to detailed information about what to expect before, during and after your transplant. Popular features including: an in-depth information about each step of the transplant process, potential complications and practical solutions; emotional support for patients, survivors and caregivers; facts about more than 200 transplant centers in the U.S., including staff, number of transplants performed, accreditation and diseases treated; and extensive information for survivors about how to live well after transplant.
Bone Marrow & Cancer Foundation
The Bone Marrow & Cancer Foundation, founded in 1992, is dedicated to improving the quality of life for cancer and transplant patients and their families by providing vital financial assistance, comprehensive resources, educational information, physician referrals, and emotional support programs.
Guided by a medical advisory board of nationally-recognized cancer specialists and working with hospitals across the United States, the Bone Marrow & Cancer Foundation is the only organization of its kind that does not limit assistance to a specific disease, type of transplant or age range. For the past 27 years, the Foundation has connected patients and their families with the services they need—from diagnosis through survivorship—to make effective decisions about treatment and its aftermath. All of the Foundation’s programs and services are offered to patients and their families free of charge.
Cancer and Careers
Cancer and Careers empowers and educates people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events. The program offers a comprehensive website (in English and Spanish), free publications (in English and Spanish), career coaching, and a series of support groups and educational seminars for employees with cancer and their healthcare providers.
CancerCare is a national nonprofit organization that provides free professional counseling, educational programs, financial assistance and practical help to people with cancer, their loved ones and the bereaved.
Cancer Hope Network provides free one-on-one support to adult cancer patients and their loved ones. Each of CHN’s 400+ volunteers is at least one year post-treatment or successfully undergoing maintenance therapies. They represent more than 80 cancer types and speak 15 languages. Support Volunteers offer support from diagnosis, through treatment and into recovery. Cancer Hope Network serves cancer patients in the United States and Canada.
Cancer Patient Education Network
The Cancer Patient Education Network (CPEN) is a group of healthcare professionals who share experiences and best practices in all aspects of cancer patient education. The Cancer Patient Education Network was founded in 1989 by the National Cancer Institute (NCI) as a structure for strengthening cancer education through collaboration with patient educators at NCI-designated Cancer Centers in the U.S. Recognizing the value of CPEN for those working in cancer patient education, and wishing to broaden our reach to a larger audience of patient educators, CPEN established itself as an independent professional organization in July 2005. Through our work and collaboration, we reach our goals of delivering effective education to patients and their families. Effective education is essential for achieving optimum outcomes for cancer patients, and the use of evidence-based best practices in patient and family education has contributed to the ongoing national and international efforts to reduce cancer morbidity and mortality.
Cancer Support Community
As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC) is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community. CSC achieves its mission through three areas: direct service delivery, research and advocacy. The organization includes an international network of Affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. The Research and Training Institute conducts cutting-edge psychosocial, behavioral and survivorship research. CSC furthers its focus on patient advocacy through its Cancer Policy Institute, informing public policy in Washington, D.C. and across the nation.
Cancerdietitian.com is a healthy living web site for cancer survivors and their friends and family. It translates evidence based nutrition guidelines into consumer friendly messages for everyday life and debunks the many myths regarding nutrition and cancer. The site reaches thousands of people across the country who are interested in cancer nutrition and the most current topics on healthy lifestyle in our culture. Whether you’ve been diagnosed with cancer or not, we will provide you with the most up-to-date and evidence based information regarding lifestyle choices and cancer risk.
The site is authored by Julie Lanford MPH, RD, CSO, LDN, the Wellness Director for Cancer Services, a non-profit located in NC. She is a registered dietitian, licensed nutritionist and a board certified specialist in oncology nutrition. Her passion is wellness for cancer prevention and survivorship, and she specializes in making healthy living fun!
CancerFightClub is the young adult cancer program of Hope & Cope at the Jewish General Hospital/McGill University in Montréal, Québec, Cancer. This multi-modal program provides support through a bilingual public health tool and online social media presence (Facebook, Twitter, #MAYACC). It also offers in-person programs, including: our EnFamille program for young families with children under the age of 18 (informative resource guides, counselling referrals, high school outreach, parents’ support group and a meal program); dance classes; cooking classes; exercise evenings/personal training programs; general young adult cancer retreats; retreats for young adults living with metastatic and/or advanced cancer; workshops; community events; café nights; a support group for young people living with metastatic and/or advanced cancer; and Bro’s Club, a club for young male patients and supporters.
CaringBridge transforms your personal connections into support when you need it most.
CaringBridge is a nonprofit that supports the love and connection of people every day. CaringBridge provides personal websites where people can share updates during any type of health event. A CaringBridge website allows you to share news quickly and easily, while ensuring that your privacy is always protected. Through a CaringBridge website, everyone can leave messages of support and encouragement. We also provide a Planner that helps loved ones coordinate care and organize daily tasks, such as bringing a meal, taking care of pets or driving to appointments. CaringBridge believes that in times of need, the greatest source of hope and healing is the love of family and friends. “Using CaringBridge was definitely the best decision I possibly could have made at that point in our cancer journey. It felt incredible to have people all over the world checking in and sending us good thoughts, prayers, love and hugs,” says Joy Steinback, whose daughter Julia is in remission after three years of treatment for leukemia. At CaringBridge, personal data is protected and never sold, and there is no outside advertising. Therefore we rely on the compassion and generosity of our donors and volunteers to make CaringBridge possible, and to keep millions of people connected every year.
Change Together, an online resource managed by the Astellas Patient Centricity team, was created to stimulate dialogue and create opportunities to share information, inspiration and ideas across the advocacy and patient experience professional community. This forum aims to foster patient-focused collaboration, share best practices and provide resources aimed at improving patient care.
Ciitizen was founded by Anil Sethi in honor of his sister Tania, who died of metastatic breast cancer in 2017.
Our mission is to provide patients their comprehensive health information – including clinical, genomic and imaging data – and give them the choice of sharing it with whomever they want.
Coalition to Protect Parenthood After Cancer
The Coalition to Protect Parenthood After Cancer (CPPAC) aims to raise awareness surrounding fertility options for cancer patients before cancer treatment. CPPAC works to preserve the opportunity for parenthood after cancer treatments by seeking to raise awareness of this option into the doctor/patient conversation, as well as promote insurance coverage of fertility preservation, thus helping enable cancer patients to be able to have biological children in the future.
Colon Cancer Alliance
The Colon Cancer Alliance (CCA) is a community that provides hope and support to patients and their families while saving lives through screening, access, awareness, advocacy and research. We are the leading national patient advocacy organization dedicated to increasing screening rates and survivorship. Ask the hundreds of thousands of people we help each year and they will tell you we are an active, caring community. We know first-hand how devastating this cancer can be. We also know it doesn’t have to be this way. We see a brighter future on the horizon. Each year, our programs reach more communities, and each year, we see more people getting screened and beating this disease. We know that a future free of colon cancer isn’t just a dream; it can be a reality. But, we can’t do it alone. Our staff and army of volunteers are committed to taking action both nationally and locally through exciting and impactful campaigns and events. Join our fight!
Critical Mass: The Young Adult Cancer Alliance is a community-powered advocacy organization on a mission to ensure adolescents and young adults have no barriers to survive and thrive after a cancer diagnosis. We are working in community hospitals, cancer centers, and Washington, DC to transform adolescent and young adult cancer care in the United States.
Our mission focuses on serving AYA’s diagnosed with cancer by:
CURE Media Group is the leading resource for cancer updates, research and education. It combines a full suite of media products, including its industry-leading website, CUREtoday.com; innovative video programs, such as “CURE Connections®”; a series of widely attended live events; and CURE® magazine, which reaches over 1 million readers, as well as the dynamic website for oncology nurses, OncNursingNews.com, and its companion publication, Oncology Nursing News®. CURE Media Group is part of the Cranbury, New Jersey-based MJH Associates, Inc., family of businesses, which includes the acclaimed OncLive® platform of resources for the practicing oncologist. For more information, visit http://www.curetoday.com and http://www.mjhassoc.com.
CureLauncher provides free Personalized Clinical Trial Matching. We empower cancer patients and caregivers to know ALL of their new treatment options. CureLauncher is patient-centered and survivor-inspired. We were co-founded by a two-time cancer survivor and an FDA-regulatory advisory. CureLauncher focuses on the patient first, and then finds clinical trials that match each person’s unique goals and conditions. We are the only clinical trial referral company that gives people access to ALL enrolling clinical trials.
We have translated the medical jargon into easy-to-understand language. Our Relationship Managers support people through every step of the process, from learning about clinical trials to scheduling an appointment. We are your personal advocates.
Cutaneous Lymphoma Foundation
The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting every person affected by cutaneous lymphoma by promoting awareness and education, advancing patient care, and facilitating research. We offer programming for both the newly-diagnosed patient and those who have been living with their diagnosis for a long time, providing information that can help improve and maintain quality of life while living with cutaneous lymphoma.
We exist to make sure that each person with cutaneous lymphoma gets the best care possible.
Do It For The Love Foundation
Do It For The Love is a nonprofit wish-granting foundation that brings people living with life-threatening illnesses, children with severe challenges, and wounded veterans to live concerts. Founded in 2013 by musician Michael Franti and ER nurse Sara Agah, Do It For The Love has, to date, granted more than 500 wishes, working with a wide variety of musicians. Through the healing power of music, our goal is to inspire joy, hope, and lasting celebratory memories in the face of severe illness or trauma. Nominate someone online today at www.DoItForTheLove.org
Dr. Susan Love Research Foundation
Dr. Susan Love Research Foundation is dedicated to achieving a future without breast cancer by engaging the public and the scientific communities in innovative research on cause and prevention. We do this through performing and facilitating innovative and collaborative research, translating science to engage the public as informed partners, and inspiring novel research.
Dr. Susan Love Research Foundation has received a 4-star Charity Navigator rating for three consecutive years, putting it in the top 12% of rated charities in terms of fiscal performance, accountability, and transparency. The Foundation is also a GuideStar Exchange Silver Level participant and a member of the Better Business Bureau Wise Giving Alliance. Dr. Susan Love Research Foundation, and its more than 376,000 volunteers nationwide, invite you become part of a movement to engage the public in breast cancer research with the goal of eradicating the disease once and for all.
Elephants and Tea
Elephants and Tea is a media company with the mission to help adolescent and young adult (AYA) patients, survivors and caregivers know they are not alone in their fight with cancer.
The Elephant in the room is cancer. Tea is the relief conversation provides.
Be Heard. Join the Herd.
We are the only magazine written for and by the AYA cancer community telling their story in their own words.
EmergingMed is the leading innovator in clinical trial enrollment optimization. Our company was founded in 2000 to accelerate the discovery of new and better treatments for people with serious and life threatening medical conditions. We provide services for patients that raise awareness and facilitate access to clinical trials. These patient-focused services are part of the broader solution EmergingMed hosts for clinical trial sponsors and investigators to overcome barriers in the “last mile” of enrolling patients in clinical trials.
EmergingMed received a patent on its System and Method for Matching Patients to Clinical Trials (US Patent No. 7,711,580 B2) in May of 2010. This matching system shortens the clinical trial search process from weeks to minutes, helping users identify clinical trials with eligibility criteria that match a patient’s specific diagnosis, stage, symptoms, and treatment history.
Over the years, we have facilitated clinical trial searches for nearly 500,000 patients with cancer and other serious and life threatening conditions.
Facing Our Risk of Cancer Empowered (FORCE)
FORCE: Facing Our Risk of Cancer Empowered is a national nonprofit dedicated to the hereditary breast and ovarian cancer (HBOC) community. With over 50 outreach groups throughout the U.S., and international affiliates, FORCE programs provide support, education, and awareness on behalf of individuals and families affected by HBOC, including women, men, survivors and previvors. FORCE also takes a leadership role in guiding research and policy affecting the high-risk community.
Fight Colorectal Cancer
Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients, push for changes in policy that will increase and improve research, and empower survivors to raise their voices against the status quo. We are the leading national colorectal cancer advocacy organization empowering survivors to raise their voices, training advocates around the country, and educating lawmakers and pushing them for better policies.
Through our toll-free Answer Line at 877-427-2111 and our website, we offer support for patients, family members and their caregivers, and we serve as a resource for colorectal cancer advocates, policymakers, medical professionals, and healthcare providers. Additionally, we do everything we can to increase and improve research—at all stages of development and for all stages of cancer.
First Descents offers young adult cancer fighters and survivors a free outdoor adventure experience designed to empower them to climb, paddle and surf beyond their diagnosis, defy their cancer, reclaim their lives and connect with others doing the same.
Our programs are offered all over the US and even internationally. They range anywhere from 2 days to 1 week. Any young adult with cancer is eligible regardless of physical challenges, diagnosis or prognosis! No experience required.
GI Cancers Alliance
The GI Cancers Alliance works to raise awareness, provide education and advocate to prevent, treat and cure gastrointestinal cancers through a collaboration between advocacy groups, industry and institutional partners.
Their vision is a stronger, more unified voice to fight gastrointestinal cancers, which collectively make up the most common and deadliest type of cancers. The patient voice is central in addressing unmet needs in screening, awareness and treatment.
Information is not a luxury, but an undeniable right to patients. Our mission is to help patients, survivors, and caregivers achieve personal triumph by providing the information and human connections that empower them to make choices that are right for them – based on their personal values and lifestyles.
A nationally recognized, independent non-profit organization founded in 2003, the HealthWell Foundation has served as a safety net for more than 320,000 underinsured patients by providing access to life-changing medical treatments they otherwise would not be able to afford. HealthWell provides financial assistance to adults and children facing medical hardship resulting from gaps in their insurance that cause out-of-pocket medical expenses to escalate rapidly. HealthWell assists with the treatment-related cost-sharing obligations of these patients.
Imerman Angels carefully matches and individually pairs a person touched by cancer (a cancer fighter or survivor) with someone who has fought and survived the same type of cancer (a Mentor Angel). Cancer caregivers (spouses, parents, children and other family and friends of fighters) also receive 1-on-1 connections with other caregivers and survivors. These 1-on-1 relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience. The service is absolutely free and helps anyone touched by any type of cancer, at any cancer stage level, at any age, living anywhere in the world.
The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led nonprofit organization dedicated to a simple but compelling vision: Support everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure.
To accomplish this vision, the IWMF offers several invaluable benefits:
• Information for patients and caregivers written in easy-to-understand language.
• Education to help patients and caregivers learn about WM.
• On-going updates about WM and the IWMF on www.iwmf.com and through the quarterly Torch newsletter and NEWS releases.
• Peer support from a world-wide network of patient groups and an online discussion forum.
• Information for medical professionals who have limited experience with this rare disease.
• Research funding directed to better treatments and the search for a cure.
Leukemia & Lymphoma Society (LLS)
The Leukemia & Lymphoma Society (LLS) mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. Speak one-on-one with an LLS Information Specialist who can assist you through cancer treatment, financial and social challenges and give accurate, up-to-date disease, treatment and support information. LLS funds lifesaving blood cancer research around the world and provides free information and support services for patients in their communities through chapters across the US and Canada.
The LIVESTRONG Foundation provides free cancer support services to help people cope with the financial, emotional and practical challenges that accompany the disease. Created in 1997 by cancer survivor and philanthropist Lance Armstrong, the Foundation is known for its powerful brand – LIVESTRONG – and for its advocacy on behalf of survivors and their families. With its iconic yellow LIVESTRONG wristband, the Foundation has become a symbol of hope and inspiration around the world. Since its inception, the Foundation has served 2.5 million people affected by the disease and raised more than $500 million to support cancer survivors. One of America’s top non-profit organizations, the Foundation enjoys a four-star rating from Charity Navigator and has been recognized by the National Health Council and the Better Business Bureau for its excellent governance, high standards and transparency.
Living Beyond Breast Cancer
Living Beyond Breast Cancer is a national, non-profit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. LBBC’s programs are available at little or no cost and serve women of all ages and at all stages of diagnosis and recovery. Programs include: national educational conferences; monthly webinars; quarterly educational newsletters; educational publications; culturally relevant, community-based outreach and educational materials for medically underserved women of color; education, support, and networking opportunities for young women; an interactive web site; a toll-free, peer support breast cancer Helpline; and small grants to women with financial needs.
Founded in 1991, LBBC has earned its reputation for delivering responsible, clear; credible and comforting information to women affected by breast cancer through its educational, support and outreach programs.
Lymphoma Research Foundation
The Lymphoma Research Foundation (LRF) is the nation’s largest non-profit organization devoted to funding innovative research and serving the lymphoma community through a comprehensive series of education programs, outreach initiatives and patient services. LRF’s mission is to eradicate lymphoma and serve those touched by this disease.
LRF remains dedicated to finding a cure for lymphoma through an aggressively-funded research program and by supporting the next generation of lymphoma researchers. LRF provides education for people with lymphoma, their loved ones and caregivers, including comprehensive disease guides and facts sheets, in-person conferences and online resources.
The Foundation also provides continuing medical education programs designed to increase the knowledge, skills and performance of healthcare professionals. The LRF Advocacy and Public Policy Program, and fundraising programs – including Active Lifestyle events and Lymphoma Walks – encourage members of the lymphoma community to become involved and support the LRF mission. The Foundation’s patient services, including the LRF Helpline, Clinical Trials Information Service, financial assistance programs and Lymphoma Support Network, provide direct support to people with lymphoma.
LUNGevity Foundation is the nation’s largest lung cancer-focused nonprofit. The mission of LUNGevity Foundation is to have a meaningful impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients and provide a community for those impacted by lung cancer. It does so by supporting critical research into the early detection and successful treatment of lung cancer, as well as by providing information, resources and a support community to patients and caregivers. LUNGevity seeks to inspire the nation to commit to ending lung cancer.
mAss Kickers Foundation
mAss Kickers Foundation (MKF) is a 501(c)(3) non-profit organization, which provides support and motivation to all newly-diagnosed patients, family, and friends affected by tumors or cancer. MKF serves this mission through its website, fund-raising, and select events throughout the year. MKF strives To be the first website newly diagnosed tumor/cancer patients and their loved ones visit for information, inspiration, and a “pugilistic attitude” after getting an intimidating diagnosis. A unique global “mAss Kicking community” will be formed to empower individuals to be proactive in the struggle against these diseases. Globally, MKF strives to abolish the “stigma” of tumors/cancer as a death sentence. MKF is also a strong proponent of exercise/physical activity for post treatment “tumor thrivership.”
We are a team of doctors and artists, turning complicated medical information into engaging, entertaining and easy to understand stories. Many people are confused or uninformed about their condition, which can leave them feeling hopeless and anxious. We believe that every person, regardless of age, gender, culture or condition, should understand and be involved in their own health.
Each Medicine X story is based on a real person – it reflects their journey, diagnosis, coping and treatment as they live with their condition—Chronic Pancreatitis to Alzheimer’s Disease.
The main character in each story walks us through their life and ‘xplains' what it’s like to live with the condition: what is happening inside of their bodies, what common struggles there are and how tough it is to be diagnosed. These stories provide you with real-world advice about how to best live with a condition through their everyday experiences.
Metastatic Breast Cancer Alliance
The Alliance unifies the efforts of its members to improve the lives of and outcomes for those living with MBC and their families through increasing awareness and education about the disease and advancing policy and strategic coordination of MBC research funding that has the potential to extend life, enhance quality of life, and ultimately to cure.
National Bone Marrow Transplant Link
The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital educational information and personalized support services.
National Cancer Legal Services Network (NCLSN)
The National Cancer Legal Services Network (NCLSN) promotes access to healthcare and seeks to increase the availability of legal services for people living with cancer, their families and caregivers. Through direct work, educational efforts and advocacy, this multidisciplinary coalition helps to alleviate the legal and economic consequences of cancer so that those affected may focus on their medical care and quality of life. The NCLSN supports the efforts of individuals and organizations focused on meeting the legal needs of the cancer-affected community. It augments the voice of disparate services, creates a forum for established and nascent legal advocacy groups, and facilitates the development of similar programs.
National Cancer Survivors Day
National Cancer Survivors Day® is an annual, treasured Celebration of Life that is held in hundreds of communities nationwide, and around the world, on the first Sunday in June. It is a CELEBRATION for those who have survived, an INSPIRATION for those recently diagnosed, a gathering of SUPPORT for families, and an OUTREACH to the community. On National Cancer Survivors Day®, thousands gather across the globe to honor cancer survivors and to show the world that life after a cancer diagnosis can be fruitful, rewarding, and even inspiring.
It is a day for everyone, whether you're a cancer survivor, a family member, friend, or medical professional. This day provides an opportunity for all people living with a history of cancer – including America’s more than 16.9 million cancer survivors – to connect with each other, celebrate milestones, and recognize those who have supported them along the way. It is also a day to draw attention to the ongoing challenges of cancer survivorship in order to promote more resources, research, and survivor-friendly legislation to improve cancer survivors’ quality of life.
National Coalition for Cancer Survivorship (NCCS)
Founded by and for cancer survivors, the National Coalition for Cancer Survivorship (NCCS) is the nation’s oldest survivor-led advocacy organization. Redefining survivorship from the time of diagnosis through the balance of life early on, NCCS quickly obtained the reputation as the “go-to” authority on the full spectrum of survivorship issues. Now for 30 years, NCCS has been a recognized leader in advocating to improve cancer related public policy and empowering cancer survivors.
National Leiomyosarcoma Foundation
The NLMSF’s mission is to do all we can to meet the needs of Patients, Families, and Caregivers. We have been on the front line of research collaboration since 2002; funding support of well vetted LMS specific research projects. The Foundation has developed numerous programs to provide resources to the LMS community and invaluable partnerships with those researching this rare disease.
National Marrow Donor Program
For the thousands of people diagnosed every year with life-threatening blood cancers like leukemia and lymphoma, a cure exists. Over the past 30 years Be The Match ®, operated by the National Marrow Donor Program ® (NMDP), has managed the largest and most diverse marrow registry in the world. We work every day to save lives through transplant.
NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. Uninsured and underinsured Americans rely on NeedyMeds’ information when they lose a job, become ill, or have an unexpected increase in the cost of medication. For assistance, visit the website or call the NeedyMeds Helpline at (800) 503-6897.
More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. All of the information is regularly updated, accessible online, at no charge and without registration. NeedyMeds also provides a free drug discount card that offers a discount of up to 80% at more than 63,000 pharmacies nationwide.
The Oncofertility Consortium brings diverse experts together to solve the previously intractable problem of fertility loss after cancer treatment. The Consortium is an interdisciplinary team of researchers and clinicians created with the goal to explore and expand the future of young cancer survivors whose disease or treatment may impair their reproductive ability, and to advance research and improve clinical care. At the intersection of oncology and reproductive medicine, we expand fertility options for pediatric and adolescent/young adult cancer survivors through collaboration with scientists, clinicians, social scientists, and humanists who are dedicated to developing new fertility preservation options and reducing cancer patients’ barriers to care and patient navigation through a national fertility FERTline hotline at 866-708-FERT (3378).
OncoLink was the first cancer information website on the Internet, started in 1994, and remains one of the largest. This award-winning site is maintained by a group of oncology healthcare professionals who understand the need of patients, caregivers and healthcare professionals. OncoLink’s content is continually updated and ranges from treatment and disease information for a newly diagnosed patient, support through the side effects of treatment, and into survivorship.
OncoLink provides tools and educational materials to support the practice of busy practitioners, including on treatment education, psychosocial support and survivorship care plans. These create a one-stop shop for patient education, enabling more impactful patient interactions, improving patient-provider communication and satisfaction. In addition, these tools can enable practices to meet regulatory requirements. Our content is available for syndication and co-branding to meet your patient education needs.
Our primary goal is to support patients, caregivers and practitioners through education. This can empower patients to make educated treatment decisions, be active participants in their care, and be their own advocate. We provide up-to-date cancer information, free of charge. We hope our passion for this goal shows in the resources you find on OncoLink.
Ovarian Cancer Research Alliance (OCRA) is the leading organization in the world fighting ovarian cancer from all fronts, including in the lab and on Capitol Hill, while supporting women and their families.
As the largest non-government funder of ovarian cancer research, OCRA’s ongoing investments in the most promising scientific research is funding discoveries, creating new treatments, and hastening desperately needed breakthroughs. OCRA is the voice for the ovarian cancer community, working with legislators to ensure federal ovarian cancer research and education, patient safety, and access to high-quality care are protected on Capitol Hill. OCRA’s programs help women navigate their diagnosis and support patients and their families when and where they need it most.
Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network is the national organization creating hope in a comprehensive way through research, patient support, community outreach and advocacy for a cure. The organization is leading the way to increase survival for people diagnosed with this devastating disease through a bold initiative — The Vision of Progress: Double Pancreatic Cancer Survival by 2020. Together, we can Wage Hope in the fight against pancreatic cancer by intensifying our efforts to heighten awareness, raise funds for comprehensive private research, and advocate for dedicated federal research to advance early diagnostics and better treatments and increase chances of survival.
Patient Services: We Wage Hope with free comprehensive services individualized for each pancreatic cancer patient. We connect each patient or family member with a highly educated, expertly trained and compassionate Patient Central Associate who provides information about the disease, treatment options, clinical trials searches, diet and nutrition, Know Your Tumor personalized medicine service and much more. Contact a Patient Central Associate toll-free at (877) 272-6226 or email email@example.com. Associates are available M – F, 7AM – 5PM, Pacific Time. Resources and Patient Central Support
Patient Access Network (PAN) Foundation
The Patient Access Network (PAN) Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. Partnering with generous donors, healthcare providers and pharmacies, PAN provides the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. Since its founding in 2004, PAN has provided nearly 1 million underinsured patients with over $3 billion in financial assistance, through close to 70 disease-specific programs.
Patient Services, Inc.
The founder of PSI shaped the very first non-profit patient assistance model in 1989 and knows the pain firsthand of watching a loved one fight-and-lose their battle against chronic illness; he knows, too, the crippling financial burden often carried by those left behind. Since our inception in 1989, Patient Services has been a pioneer leading the charge to find solutions to the challenges that face the chronically ill in the United States.
We provide financial support and guidance for qualified patients with specific, rare chronic diseases. Through PSI assistance programs patients and their families rediscover hope and health.
Prevent Cancer Foundation
The mission of the Prevent Cancer Foundation is to save lives through cancer prevention and early detection. Our vision is to Stop Cancer Before It Starts! The Prevent Cancer Foundation has invested $134 million in research, education, advocacy and community outreach programs in support of its mission. Prevent Cancer focuses its resources on cancers such as breast, cervical, colorectal, lung, oral, prostate, skin and testicular that can be prevented through healthy lifestyle choices or early detection and treatment. In addition to these 8 cancers, there are other preventable cancers like anal, endometrial, head and neck, oral, penile, throat and vulvar cancers.
The four areas of focus of the Prevent Cancer Foundation’s work are:
Research: Since 1985, the Foundation has funded more than 450 peer-reviewed grants and fellowships at more than 150 medical institutions nationwide.
Education: Prevent Cancer supports programs to help individuals across the country understand the value of cancer screenings and healthy lifestyles.
Community Outreach: Prevent Cancer is proud to partner with trusted and respected members of communities to implement life-saving cancer prevention and early detection programs.
Advocacy: Prevent Cancer advocates for policies and legislation that advances cancer research and prevention and that supports the needs of cancer patients and their families.
Savor Health offers a comprehensive range of nutrition services for people with cancer and their loved ones. Using the latest technology and research, Savor provides individually personalized nutrition solutions that meet each patient’s unique needs from prevention to survivorship. Services include individually curated information and resources, one on one nutrition counseling with oncology-credentialed registered dietitians and home delivery of meals tailored to individual needs and tastes. Savor is in the business of nourishing the body, mind and spirit of people with cancer. Cancer starves the body of nutrition. Savor Health uses nutrition to fight cancer.
Headquartered in Los Angeles, Science 37 brings together patients, doctors, inventors, thinkers, and doers to make the world a better place. We use science and technology to connect the world with practical solutions. By reinventing clinical research through our decentralized Metasite™, we’ve helped accelerate biomedical discovery and reduced clinical trial costs. Beyond the traditional process, our model is faster, more efficient, and more human: We reach patients directly in the comfort of their homes.
SHARE Cancer Support
SHARE is a national nonprofit that supports, educates, and empowers women affected by breast, ovarian, or metastatic breast cancer, with a special focus on medically underserved communities. Our mission is to connect these women with the unique support of survivors and peers, creating a community where no one has to face breast or ovarian cancer alone.
Sharsheret, Hebrew for “chain”, is a national not-for-profit organization supporting young women and their families, of all Jewish backgrounds, facing breast cancer. Our mission is to offer a community of support to women diagnosed with breast cancer or at increased genetic risk, by fostering culturally-relevant individualized connections with networks of peers, health professionals, and related resources.
Stand Up To Cancer
Stand Up To Cancer’s (SU2C) mission is to raise funds to accelerate the pace of groundbreaking translational research that can get new therapies to patients quickly and save lives now.
SU2C brings together the best and the brightest researchers and mandates collaboration among the cancer community. By galvanizing the entertainment industry, SU2C has set out to generate awareness, educate the public on cancer prevention, and help more people diagnosed with cancer become long-term survivors.
Stupid Cancer is a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services. We are the nation’s largest support community for this underserved population and serve as a bullhorn for the young adult cancer movement.
Susan G. Komen®
In 1980, Nancy G. Brinker promised her dying sister, Susan, that she would do everything in her power to end breast cancer forever. In 1982, that promise became the Susan G. Komen® organization and the beginning of a global movement. What was started with $200 and a shoebox full of potential donor names has now grown into the world’s largest nonprofit source of funding for the fight against breast cancer. To date, we’ve invested more than $2.6 billion in groundbreaking research, community health outreach, advocacy and programs in more than 60 countries. Our efforts helped reduce deaths from breast cancer by 38 percent between 1989-2014 and we won’t stop until our promise is fulfilled.
Susan G. Komen is the ONLY organization that addresses breast cancer on multiple fronts such as research, community health, global outreach and public policy initiatives in order to make the biggest impact against this disease.
At TeleHealth Services, we design and deliver interactive touchpoint solutions for better outcomes across the patient care continuum. With more than 2,500 client hospitals and clinics, 430 interactive patient care solutions commissioned, and 60 years of point-of-care expertise, TeleHealth Services is the leading provider of interactive patient experience solutions to the U.S. healthcare industry. We are the only provider of end-to-end interactive patient engagement and interactive patient TV solutions to enhance the patient experience, improve outcomes, and support the continuum of care. Our Health AV solutions are designed for the particular needs of the healthcare industry and, with our sister division Avidex; we are the 9th largest A/V integrator in the nation.
The core mission of TeleHealth Services is excellence in the patient experience. Our solutions combine state-of-the-art hardware and software to deliver high-quality educational and entertainment programming and provide patient-specific interactive education. Our innovative solutions, resolute corporate leadership team, hundreds of dedicated employees, and most of all, our distinguished customers, have enabled TeleHealth to become the largest and most successful provider of healthcare television and interactive education systems in the United States.
Testicular Cancer Foundation
The Testicular Cancer Foundation provides education and support to young adult men to raise awareness about testicular cancer, the #1 cancer among men ages 15 – 35. Testicular Cancer Foundation education materials include shower cards, brochures, a website, and an iPhone/iPad app. Additionally, the Testicular Cancer Foundation invests significant time helping families, speaking to groups and sharing its mission and resources with the medical and healthcare communities, schools and wherever groups of young men can be reached.
The Pink Fund
The Pink Fund helps breast cancer patients in treatment focus on healing, raising their families and returning to the workplace.
The Pink Fund provides short-term financial aid during active treatment. While other organizations raise funds for early detection and research, many families facing breast cancer urgently need financial help to pay their basic living expenses. The Pink Fund provides this help.
The Samfund supports young adult cancer survivors in the United States as they recover from the financial impact of cancer treatment. Through direct financial assistance and free online support and education, The Samfund helps young adults move forward towards their personal, professional, and academic goals.
Thrive/Survive aims to create a portal community to enable real-life meetups of young adult cancer survivors (support groups and seminars), in addition to clear, concise access to providing information such as local medical practitioners, financial resources (including lenders and property managers willing to work with medically bankrupt survivors) and lifestyle information (cancer-friendly yoga, dietitians and more). Thrive/Survive Los Angeles is a project of The Giving Back Fund, a 501(c)(3) organization.
ThyCa: Thyroid Cancer Survivors’ Association, Inc.
ThyCa: Thyroid Cancer Survivors’ Association, Inc. (ThyCa), an international nonprofit organization advised by thyroid cancer specialists. ThyCa educates and supports patients and families through its award-winning web site, support groups, person-to-person support, free newsletter and free downloadable low-iodine cookbook, and free materials in English, Chinese, French, and Spanish. ThyCa sponsors webinars, seminars, workshops, and an annual international 3-day conference, as well as Thyroid Cancer Awareness Month, year-round awareness programs for early detection, and thyroid cancer research funds and research grants.
The mission of Twisted Pink is to extend lives and improve quality of life for late stage breast cancer patients and their families by funding metastatic (stage IV) breast cancer research.
Twisted Pink was established in 2014 after our founder, Caroline Johnson, completed her own treatment for stage III ER+ breast cancer. Her passion for funding research was driven partially by learning more about the statistics of the disease during her own journey. These can be found here.
Since our inception in 2014, Twisted Pink has raised $1,394,922.84 to fund Stage IV research. These are much needed research dollars that have the potential to extend or save lives for metastatic breast cancer patients. Our collaborations and advocacy for matching dollars has resulted in over $1.82 million dollars to metastatic breast cancer research. This success and the research we have funded wouldn’t be possible without our volunteers, board members, patient advocacy groups, generous donors and our corporate sponsors.
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Young Survivors Coalition (YSC)
Young Survival Coalition (YSC) strengthens the community, addresses the unique needs, amplifies the voice and improves the quality of life of young adults affected by breast cancer, locally, nationally and internationally.
ZERO – The End of Prostate Cancer
ZERO – The End of Prostate Cancer is a national nonprofit organization with the mission to end prostate cancer. As a leader in the fight against prostate cancer, ZERO advances research, encourages action, and provides education and support to men and their families. ZERO’s premier programs include the ZERO Prostate Cancer Run/Walk, the largest men’s health event series in America. We are a 501c3 charity recognized with four stars by Charity Navigator, a Better Business Bureau member, and 98 cents of every dollar donated goes to research and programs.