Cancer Advocacy

Our cancer advocacy resources provide information and tools to help individuals diagnosed with cancer, their caregivers, and health care professionals become empowered advocates. There are many ways to be an advocate,

What is Advocacy?

ad·vo·ca·cy /ˈadvəkəsē/: The application of pressure and influence on the people and/or institutions that have the power to give you what you want.

Our Resources

How to Find Your Elected Officials

Common Cause
A non-partisan organization that provides information about elected officials at all levels of government. 

How to Contact Your Elected Officials

Members of Congress: Social Media Handles
Members of Congress are increasingly using social media such as Twitter, Facebook, and Instagram to engage with their constituents. Find your elected official's social media handles here!

How to Find Federal Legislative Information

The Library of Congress
To find information on bills, resolutions, activity in Congress, the Congressional Record, schedules, calendars, committee information, presidential nominations, treaties, and other government resources.

How to Find State Legislative Information

Triage Cancer State Resources

Legislative Calendars

Download the 2021 House Vote Schedule

This calendar indicate the days (black dates) that the House of Representatives is in session.

Download the 2021 Senate Schedule

This calendar indicate the days (black dates) that the Senate is in session.

Download the Current State Legislature Calendar

This calendar shows convene and adjourn dates for all 50 state legislatures and Washington, D.C.

Download the Current Congressional Calendar

This calendar provides session dates for both the House and Senate.

The Legislative Process

Our Webinars

Below you will find recordings of past webinars. Check out our upcoming webinars for up-to-date information on these topics here.

Webinar Description

This webinar will provide insider's tips for how to better engage in legislative advocacy and how to leverage this information to benefit the cancer community.

Webinar Description

What does a patient advocate DO anyway? Join us to learn how you can use your experience and unique voice to effect change and improve cancer care. Whether you want to focus on research, access to care, or the financial toxicity of being a patient, we'll cover ways to get involved. Learn which organizations provide training and/or resources to get you started, as well as the elements of what makes a good “pitch” in patient advocacy.

Webinar Description

Social media is a powerful tool for advocacy, however, many individuals in the cancer community are unsure of how to most effectively use Twitter. This webinar will cover everything from the basics of setting up an account, to how to tweet and engage in Tweet Chats. The speakers will also discuss issues around privacy and online disclosure. While examples will be focused on advocacy in the Breast Cancer Community, the information presented can be extrapolated to all communities and many types of advocacy.

Partner Resources

Our Advocacy Efforts

Cancer Coalitions

Triage Cancer is proud to be a member of the following coalitions, working towards improving laws for people coping with cancer.

One Voice Against Cancer

ASTHO’s 22 by 22 CDC Campaign

I Am Essential Coalition

The Coalition to Protect Parenthood After Cancer

Friends of the Prostate Cancer Community (FoPCCC)

Current Legislation & Policy Proposals

Triage Cancer is engaged in the following advocacy efforts to improve the lives of people coping with cancer.

Letter to Congressional Leaders in Support of the Reducing Hereditary Cancer Act of 2021

Information About the Reducing Hereditary Cancer Act of 2021

Letter to the Consumer Financial Protection Bureau and the Federal Trade Commission urging enforcement of CDC moratorium

Letter to President Biden requesting COVID-19 vaccine prioritization for cancer patients

Press Release: More than 125 organizations send letter to Biden urging priority access to the COVID-19 vaccines for cancer patients and survivors 

Letter to Congressional leaders in support of health coverage in COVID-19 relief package

Letter to Secretary Designee Becerra Regarding CMMI Part D Payment Modernization Models

Letter to President-Elect Biden to Address Inequity in Access to Screening and Treatment for Prostate Cancer Among Underserved and Minority Groups

Letter to House Committee on Appropriations to Request Funding for the Kidney Cancer Research Program

Letter to Urge Biden-Harris Transition Team to Prioritize Health and Healthcare

Letter to Request Funding for the Department of Defense (DoD) Congressionally Directed Medical Research Program and Peer-Reviewed Cancer Research Program (PRCRP)

One Voice Against Cancer (OVAC) Letter to Congress to Request Funding Increases for Cancer Research and Prevention

Letter to Office of the Inspector General on Medicare Part D Copay Coupon Assistance

Letter to Congressional leaders requesting support for provisions designed to reduce barriers to accessing care. 

Letter to the Office of Civil Rights at HHS requesting additional guidance on state emergency triage plans

Letter to Members of Congress in support of including bridge funding COVID-19 relief packages to resume research supported by non-profit organizations

Cancer Community Letter to Members of Congress related to fixes needed during COVID-19 Pandemic

Cancer Community Letter to HHS Secretary Alex Azar related to fixes needed during COVID-19 Pandemic

Oral Health Progress and Equity Network (OPEN) Medicaid Proposals

5 COVID-19 Related Policy Recommendations

Cancer Drug Parity Act 
The Cancer Drug Parity Act will reduce healthcare costs for cancer patients by requiring insurance companies to cover orally administered cancer drugs in the same way as intravenous (IV) chemotherapy.

Clinical Treatment Act (H.R. 913)

Covering Life-saving Investigations Needed in Cancer and Other Life-threatening Conditions through Timely use of Resources for Easy and Affordable Treatment from Medicaid for Enrollees in Need Today Act or the CLINICAL TREATMENT (H.R. 913)
~ASCO Letter of Support

Guarantees coverage of the routine care costs of clinical trial participation for Medicaid enrollees with a life-threatening condition. This protections exists under the ACA for private health insurance. This coverage also exists under Medicare, and military and veterans plans.
More information on H.R. 913
Clinical Treatment Act Infographic
Clinical Trials Information Letter 2020
Clinical Treatment Act Community Endorsement Letter 2020 – Senate

Henrietta Lacks  Enhancing Cancer Research Act of 2019
Committed to eliminating barriers in patient access to cancer clinical trials.

Medicare Coverage of Hereditary Cancer Testing
In this letter to the Administrator of the Centers for Medicare and Medicaid Services (CMS), 63 organizations expressed serious concerns that the overly broad interpretation of national coverage determination for next generation sequencing will restrict patient access to medically necessary and relevant clinical tests and adversely impact cancer care and outcomes.
More information

Medical Expense Savings Act
This act would make permanent the 7.5 percent threshold for the medical expense deduction. Tax relief in this area can provide needed resources, especially important to middle income seniors with high medical costs
Letter to the U.S. Congress

Medicare National Coverage Determinations (NCD)
The bill will aim to change the Medicare statutes to allow for germline testing of affected and unaffected carriers who meet personal and/or family history criteria (as defined by NCCN).  It would also cover evidence-based increased screening and risk-reducing surgeries.

Past Legislation & Policy Proposals

Cancer Care Planning and Communications (CPPC) Act 2018

OVAC Budget Cap Letter 2019
One Voice Against Cancer (OVAC), a coalition of public interest groups representing millions of cancer researchers, physicians and nurses, patients, survivors and their families, urges congress to raise the FY 2020 budget caps for cancer research, treatment, prevention and detection.