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Cancer Advocacy

Our cancer advocacy resources provide information and tools to help individuals diagnosed with cancer, their caregivers, and health care professionals become empowered advocates. There are many ways to be an advocate, learn more now, at Triage Cancer.

Our Resources

What is Advocacy?

ad·vo·ca·cy /ˈadvəkəsē/: The application of pressure and influence on the people and/or institutions that have the power to give you what you want.

Quick Guide to the Spectrum of Advocacy

Quick Guide to Legislative Advocacy

Quick Guide to Scientific Advocacy

Triage Cancer Educational Blogs – Advocacy


How to Contact Your Elected Officials

Members of Congress: Social Media Handles
Members of Congress are increasingly using social media such as Twitter and Facebook to engage with their constituents. Find your elected official here!

Our Webinars

Below you will find recordings of past webinars. Check out our upcoming webinars for up-to-date information on these topics here.

Webinar Description

Many laws exist to protect individuals coping with cancer, however, there is still more that can be done to improve care and protect those in the cancer community. Ever thought about getting involved in advocacy? Wondered what legislative advocacy entails? Have questions about how to be a better advocate? This webinar will cover the basics of personal, community, and legislative advocacy as well as highlight some existing legislative advocacy opportunities. Even if you only have five minutes a week to dedicated to advocacy there is something you can do to help others coping with cancer survivorship!

Webinar Description

Social media is a powerful tool for advocacy, however, many individuals in the cancer community are unsure of how to most effectively use Twitter. This webinar will cover everything from the basics of setting up an account, to how to tweet and engage in Tweet Chats. The speakers will also discuss issues around privacy and online disclosure. While examples will be focused on advocacy in the Breast Cancer Community, the information presented can be extrapolated to all communities and many types of advocacy.

Partner Resources

The Legislative Process

Our Advocacy Efforts

Calendar

Download the 2019 Legislative Advocacy Calendar

This calendar shows convene and adjourn dates for all 50 state legislatures and Washington, D.C.

Download the 2019 Congressional Calendar

This calendar provides session dates for both the House and Senate.


Coalitions

Triage Cancer is proud to be a member of the following coalitions, working towards improving laws for people coping with cancer.

ASTHO’s 22 by 22 CDC Campaign

I Am Essential Coalition

One Voice Against Cancer

The Coalition to Protect Parenthood After Cancer


Legislation

Current Legislation & Policy Proposals

Triage Cancer supports the following legislative efforts to improve laws for people coping with cancer.

Cancer Drug Parity Act 
The Cancer Drug Parity Act will reduce healthcare costs for cancer patients by requiring insurance companies to cover orally administered cancer drugs in the same way as intravenous (IV) chemotherapy.

Clinical Treatment Act (H.R. 913)

Guarantees coverage of the routine care costs of clinical trial participation for Medicaid enrollees with a life-threatening condition. This protections exists under the ACA for private health insurance. This coverage also exists under Medicare, and military and veterans plans.
More information on H.R. 913
Clinical Trials Information Letter 2020

Funding for research for children, adolescents, and young adults coping with cancer

Henrietta Lacks  Enhancing Cancer Research Act of 2019
Committed to eliminating barriers in patient access to cancer clinical trials.

Medicare Coverage of Hereditary Cancer Testing
In this letter to the Administrator of the Centers for Medicare and Medicaid Services (CMS), 63 organizations expressed serious concerns that the overly broad interpretation of national coverage determination for next generation sequencing will restrict patient access to medically necessary and relevant clinical tests and adversely impact cancer care and outcomes.
More information

Medical Expense Savings Act
This act would make permanent the 7.5 percent threshold for the medical expense deduction. Tax relief in this area can provide needed resources, especially important to middle income seniors with high medical costs
Letter to the U.S. Senate 

Medicare National Coverage Determinations (NCD)
The bill will aim to change the Medicare statutes to allow for germline testing of affected and unaffected carriers who meet personal and/or family history criteria (as defined by NCCN).  It would also cover evidence-based increased screening and risk-reducing surgeries.

OVAC Budget Cap Letter 2019
One Voice Against Cancer (OVAC), a coalition of public interest groups representing millions of cancer researchers, physicians and nurses, patients, survivors and their families, urges congress to raise the FY 2020 budget caps for cancer research, treatment, prevention and detection.

Past Legislation & Policy Proposals

Cancer Care Planning and Communications (CPPC) Act 2018


How to Find Your Elected Officials

Project Vote Smart
A non-profit, non-partisan research organization that collects and distributes information on candidates for public office in the United States.


How to Find Federal Legislative Information

The Library of Congress
To find public access to information on bills, resolutions, activity in Congress, the Congressional Record, schedules, calendars, committee information, presidential nominations, treaties, and other government resources.


How to Find State Legislative Information

Triage Cancer State Resources