This chart includes policy and legislative successes at the federal level.
| Year Introduced | Issue | Type (Letter, Regulation Comments, Legislation) | Bill Number & Title | Description | Position Statements & Coalition and Triage Cancer Letter of Support | Status | ||
|---|---|---|---|---|---|---|---|---|
| 2025 | Access to Care | Legislation | https://www.congress.gov/bill/119th-congress/house-bill/946 | H.R.946/S.1862 - ORPHAN Cures Act | This bill would expand the drugs that are excluded from the Medicare Drug Price Negotiation Program to apply to orphan drugs with multiple rare disease indications. | Support | Passed in Reconciliation Package of H.R.1 | |
| 2024 | Access to Care | Letter | https://www.disabilityscoop.com/2024/11/21/disability-advocates-sound-alarm-over-possible-medicaid-cuts/31179/ | Letter Opposing Medicaid Funding Cuts | Members of the Disability and Aging Collaborative (DAC), the Health and Long-Term Services and Supports Task Forces of the Consortium for Constituents with Disabilities(CCD), and allied organizations write to urge you to exclude Medicaid cuts, work requirements,or any changes that limit funding or eligibility, from budget reconciliation or other legislation.People with disabilities, older adults, family caregivers and their children, direct care workers,and other low-income individuals and families depend on Medicaid every day for their health,safety, and independence. Medicaid enables them to go to work and to care for their lovedones. It is our communities' lifeline, and we cannot afford for any part of it to be cut. | Oppose | https://triagecancer.org/wp-content/uploads/2025/01/Disability-Aging-Sign-On-No-Cuts-to-Medicaid-December-2024.pdf | Funding Was Not Cut in FY 2024 |
| 2024 | Medicare | Letter | https://www.cms.gov/inflation-reduction-act-and-medicare | Medicare Part D Low-Income Subsidy | Letter to thank the Biden Administration for implementingCongress’ expansion starting in January 2024 of the full Medicare Part D Low-Income Subsidy (LIS, or “ExtraHelp”) | Support | https://triagecancer.org/wp-content/uploads/2025/01/NCOA-letter-to-CMS-on-LIS-recommendations.pdf | Passed into Law |
| 2024 | Medicare | Letter | https://www.congress.gov/event/118th-congress/house-event/117503 | FY 2025 Allocations | Letter to ask Congress to includereport language in the Fiscal Year 2025 Labor, Health, and Human Services Subcommitteereport regarding the implementation of the Medicare Prescription Payment Plan thatbegins on January 1, 2025. | Support | https://triagecancer.org/wp-content/uploads/2025/01/FY2025-Senate-LHHS-Report-Language-Sign-on-Letter.pdf | Became Public Law No: 118-83. |
| 2024 | Access to Care | Letter | https://debbiesdream.org/advocacy/#:~:text=November%201%2C%202024%20%2D%20Debbie's%20Dream,below%20to%20read%20the%20letter. | Stomach Cancer Awareness Letter form President Biden | In this letter Triage Cancer joined our partners in requesting that President Biden issue a proclamation for national stomach cancer awareness month | Support | https://triagecancer.org/wp-content/uploads/2025/01/10.1.24-Request-to-WH-for-Stomach-Cancer-Proclamation.pdf | President Biden wrote back to Debbie's Dream acknowledging stomach cancer awareness month. |
| 2024 | Research and development | Letter | https://www.congress.gov/bill/118th-congress/house-bill/4366 | H.R.4366 - Consolidated Appropriations Act, 2024 | Letter requesting that the NationalInstitutes of Health (NIH) receive no less than $47.7 billion, including $7.38 billion for the National Cancer Institute (NCI), plus $1.5 billion for the Advanced Research Program Agency for Health (ARPA-H). | Support | https://triagecancer.org/wp-content/uploads/2025/01/Ad-Hoc-Group-FY-25-NIH-Appropriations-Conference-Letter-11.18.24-_Final.pdf | 03/09/2024 Became Public Law No: 118-42. |
| 2023 | Access to Care | Letter | https://www.hhs.gov/sites/default/files/ocr-dcl-section-504-section-1557-disability.pdf | Section 504 of the Rehabilitation Act and Section 1557 of the Affordable Care Act | Letter in support of expanding the Affordable Care Act’s (ACA) ban on the use of the quality adjusted life year (QALY). | Support | https://triagecancer.org/wp-content/uploads/2025/01/OCR-504-Sign-on-FINAL-11.13.23.pdf | Final Rule Announced 1/7/2025 |
| 2024 | Research and development | Letter | https://www.congress.gov/bill/118th-congress/house-bill/4366 | H.R.4366 - Consolidated Appropriations Act, 2024 | Letter requesting that the NationalInstitutes of Health (NIH) receive no less than $47.7 billion, including $7.38 billion for theNational Cancer Institute (NCI), plus $1.5 billion for the Advanced Research Program Agencyfor Health (ARPA-H). | Support | https://triagecancer.org/wp-content/uploads/2025/01/FY24.final_.1.24.pdf | 03/09/2024 Became Public Law No: 118-42. |
| 2023 | Research and development | Letter | https://www.congress.gov/bill/118th-congress/senate-bill/2140 | S.2140 - Patent Eligibility Restoration Act of 2023 | This bill would overturn established Supreme Court precedent and expand patent-eligible subject matter to encompass abstract ideas, laws of nature, and natural phenomena. | Oppose | https://triagecancer.org/wp-content/uploads/2025/01/Stakeholder-Letter-Opposing-PERA-2024-3.12.24.pdf | Senate - 06/22/2023 Read twice and referred to the Committee on the Judiciary. |
| 2024 | Medicare | Letter | N/A | N/A | Letter commending the Department of Health & Human Services inclusion of provisions in the FY2025 budget that rein in harmful practices of some MA plans. | Support | https://triagecancer.org/wp-content/uploads/2025/01/MA-Final-Rule-Sign-On.pdf | Passed |
| 2024 | Medicare | Letter | N/A | Cancer Support Community Letter in support of Medicare Prescription Payment Plan | Support | https://triagecancer.org/wp-content/uploads/2025/01/CSC-Sign-On-Letter-Medicare-Prescription-Payment-Plan-Model-Documents-FINAL.pdf | Passed | |
| 2024 | Medicare | Letter | N/A | N/A | Alliance for Aging Research Support Letter FY2025 Medicare Prescription Payment Plan | Support | https://triagecancer.org/wp-content/uploads/2025/01/FY25-Medicare-Prescription-Payment-Plan-Report-Language-Letter.pdf | Passed |
| 2024 | Medicare | Letter | N/A | N/A | MapRx Letter of support for FY2025 Medicare Prescription Payment Plan | Support | https://triagecancer.org/wp-content/uploads/2025/01/MAPRx_MPPP-Model-Documents-Comment-Letter_2024-04-29-Final.pdf | Passed |
| 2023 | Disability Insurance | Proposed Regulations | https://www.regulations.gov/document/SSA-2021-0014-4327 | SA-2021-0014-0001 | SSA proposal to stop reducing SSI payments when someone receives food as a gift or donation. | Support | https://triagecancer.org/wp-content/uploads/2023/05/Comments-Submitted-on-Proposed-Regulation.pdf | Final Rule effective 9/30/24 |
| 2022 | Curb Utilization Management Policies | Proposed Rule | https://www.regulations.gov/document/CMS-2022-0190-0901 | 87 FR 76238 Medicare and Medicaid Programs; Patient Protection and Affordable Care Act; Advancing Interoperability and Improving Prior Authorization Processes for Medicare Advantage Organizations, Medicaid Managed Care Plans, State Medicaid Agencies, Children's Health Insurance Program (CHIP) Agencies and CHIP Managed Care Entities, Issuers of Qualified Health Plans on the Federally-Facilitated Exchanges, Merit-Based Incentive Payment System (MIPS) Eligible Clinicians, and Eligible Hospitals and Critical Access Hospitals in the Medicare Promoting Interoperability Program | Will improve the efficiency of the Prior Authorization processes, reduce delays in care and alleviate the burden associated with prior authorization for Medicare Advantage, some Medicaid programs, and Qualified Health Plans. | Support | Final Rule effective 4/8/24 | |
| 2023 | Health Insurance Access | Proposed Regulations | https://www.federalregister.gov/documents/2023/04/26/2023-08635/clarifying-eligibility-for-a-qualified-health-plan-through-an-exchange-advance-payments-of-the | 88 FR 25313 Clarifying Eligibility for a Qualified Health Plan Through an Exchange, Advance Payments of the Premium Tax Credit, Cost-Sharing Reductions, a Basic Health Program, and for Some Medicaid and Children's Health Insurance Programs | Proposal to allow DACA recipients to access health insurance on the Marketplace | Support | Final Rule effective 11/1/24 | |
| 2023 | Access to Care | Proposed Regulations | https://www.federalregister.gov/documents/2023/11/16/2023-24184/medicare-and-medicaid-programs-cy-2024-payment-policies-under-the-physician-fee-schedule-and-other | 88 Fed. Reg. 52262 | Groups expressing support to allow for reimbursment of navigation services | Support | Final Rule effective 1/1/24 | |
| 2023 | Insurance Coverage | Letter | https://www.cms.gov/files/document/2023-hcpcs-application-summary-biannual-1-2023-non-drug-and-non-biological-items-and-services.pdf | Group request to CMS to reverse the decision to eliminate S code covering DIEP flap surgery | Support | https://triagecancer.org/wp-content/uploads/2023/05/Group-Letters-DIEP-Flap-Surgery.pdf | CMS decision reversed; S codes covering DIEP flap surgery remain in effect | |
| 2023 | Insurance Coverage | Comments | https://www.cms.gov/files/document/hcpcs-public-meeting-agenda-non-drug-and-non-biological-items-and-services-june-1-2023-updated-05/09.pdf | Centers for Medicare & Medicaid Services’ (CMS’) First Biannual 2023 Healthcare Common Procedure Coding System (HCPCS) Public Meeting Agenda | CMS to revisit the decision to remove S codes for FLAP reconstructive surgeries from the HCPCS. | Support keeping the S codes | https://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Comments-on-HCP210813XRPKE.pdf | CMS decision reversed; S codes covering DIEP flap surgery remain in effect |
| 2023 | Medical Debt | Letter from Patient Advocacy Groups | https://kffhealthnews.org/news/article/advocates-urging-biden-medical-debt-health-costs/?utm_campaign=KHN%3A%20Daily%20Health%20Policy%20Report&utm_medium=email&_hsmi=249132270&_hsenc=p2ANqtz-9tkopwbsCqd7coFUapOqU4Oupn-WYJbel4-qON6MRBMa8Xjr-TtI-2nc9H8Ke9oAdpcyiioDzrVhWe094KFPKISJFJMQ&utm_content=249132270&utm_source=hs_email | Groups asked the Biden Administration to do more to help alleviate medical debt | Support | The Biden administration announced a major initiative to protect Americans from medical debt outlining plans to develop federal rules barring unpaid medical bills from affecting patients’ credit scores. |