Research & Scientific Advocacy Resources:
The AIS program brings the patient voice to research, ensuring that the unique and valuable perspectives of breast cancer patients, survivors, and co-survivors are integrated into the scientific dialogue and decisions, which impact progress toward ending breast cancer. Advocates play a variety of roles throughout the research process, from educating others about research, to participating in research grant peer reviews, and working with or as part of scientific teams to help prioritize, develop and implement research projects. Advocates also engage in ongoing education to enhance their advocacy skills and expand their own scientific knowledge.
NBCC offers a variety of Project LEAD® courses that prepare advocates to engage and effectively influence breast cancer decision-making in research, quality care and community settings. They range from shorter introductory courses open to all, to longer intensive courses involving a competitive application process.
The Research Advocacy Network offers publications, tutorial resources, and training, designed to equip advocates with an understanding of the medical research system, scientific concepts, and research safeguards.
Local Cancer Centers—Institutional Review Boards (IRBs)
Before a cancer center engages in a research study, they have to get approval from an IRB. Many cancer centers include patients, survivors, and caregivers in this process. Ask your healthcare team for more information.
NBCC’s Center for Advocacy Training has developed programs to teach breast cancer activists the strategic and evidence-based approach to advocacy that NBCC has pioneered. By offering world-class, targeted training in breast cancer science and public policy, the center readies breast cancer advocates to become agents of action and change in the mission to eradicate breast cancer.
By integrating patients, survivors, family members and/or caregivers into the scientific review process, the CDMRP is able to enrich the scientific review with personal perspective, passion, and a sense of urgency that ensures the human dimension is incorporated in the research focus. More than 2,000 consumers have served as Peer and Programmatic reviewers since 1995.
This conference provides state-of-the-art information on the experimental biology, etiology, prevention, diagnosis, and therapy of breast cancer. Patient advocates wishing to attend the SABCS can apply for financial assistance by contacting the Alamo Breast Cancer Foundation.
The ASCO Annual Meeting is a forum for cutting edge scientific and educational developments in oncology. Patient advocates can apply for reduced registration rates and scholarships to attend. ASCO also co-sponsors other symposia that offer patient advocate opportunities.
AACR offers advocates affiliate membership to qualified individuals who are survivor-advocates and who are members of organizations that promote the advancement of cancer research. AACR also offers patient advocates discounted registration rates for select conferences and other advocate resources.