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Advocacy Issues

The following charts contain information about various federal and state advocacy opportunities.

Federal Policy and Legislative Advocacy – Current Issues

This chart includes policy and legislative opportunities at the federal level.

Year IntroducedIssueType (Letter, Regulation Comments, Legislation)Bill Number & TitleDescriptionPosition Statements & Coalition and Triage Cancer Letter of SupportStatusAdvocacy Opportunity
Access to Breast Cancer Diagnosis (ABCD) ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/1067.S.1067/H.R.5769This bill prohibits private health insurance plans from imposing higher cost-sharing requirements on breast cancer diagnostic examinations than initial breast cancer screening examinations. Diagnostic examinations are generally required after an initial screening detects an abnormality and typically require additional mammogram images (e.g., x-rays).Supporthttps://triagecancer.org/wp-content/uploads/2022/07/Letters-of-Support-for-ABCD-Combined.pdfIntroduced in Senate 4/12/2021; Introduced in House 10/28/2021Contact your congressperson to ask for their support for this funding.https://p2a.co/g3nmPnD
Access to Screening and Treatment for Prostate Cancer Among Underserved and Minority GroupsBillhttps://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...Providing funding to address inequity and access to screening and treatment for prostate cancer in FY 2022 would further lower mortality rates and address concerning increases in late-stage prostate cancer disease.Supporthttps://triagecancer.org/wp-content/uploads/2021/01/FoPCCC-Transition-Letter-FINAL.pdfPassed in House on 02/05/2021Contact your congressperson to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Better Care Better Jobs ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/2210?r=97&s=6H.R.4131/S.2210 - Better Care Better Jobs ActInvesting $400 billion in Medicaid home- and community-based services (HCBS) would make states eligible for HCBS planning grants, as well as permanent enhanced federal Medicaid match funding to expand and strengthen HCBS access and workforce.Supporthttps://triagecancer.org/Better-Care-Better-Jobs-ActIntroduced in both House and Senate 06/24/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Cancer Care Planning and Communications ActBillhttps://www.congress.gov/bill/117th-congress/house-bill/4414?q=%7B%22search%22%3A%5B%22H.R.+4414%22%5D%7D&s=1&r=1H.R.4414 -The Cancer Care Planning and Communications ActThis legislation would facilitate cancer patients’ access to comprehensive cancer care plans by allowing doctors to bill Medicare for their time crafting these plans, improving patients’ health literacy and survivorship outcomes.Supporthttps://triagecancer.org/The-Cancer-Care-Planning-and-Communications-Act-LetterIntroduced to House on 07/13/2021Contact your Member of Congress to ask for their support for Medicare coverage for cancer survivorship planshttps://www.commoncause.org/find-your-representative/
Cigna's Letters to Patients and Providers on CosentyxLetterhttps://www.cigna.com/employers-brokers/insights/informed-on-reform/wellness-programs-and-incentivesCigna's recent Cosentyx initiative coerces a non-medical switch in medication that may harm those suffering from autoimmune diseases and other chronic conditions.Opposehttps://triagecancer.org/wp-content/uploads/2021/04/Cigna-Sign-on-Letter-FINAL4.162.pdfCigna continues to incentivize patients to switch.Contact Cigna to ask Chief Clinical Officer Steve Miller to rescind this incentive.https://www.cigna.com/contact-us/
CONNECT for Health Act of 2021Billhttps://www.congress.gov/bill/117th-congress/senate-bill/1512S.1512/H.R. 2903 - CONNECT for Health Act of 2021This legislation facilitates access to telehealth services for Medicare beneficiaries by removing barriers to coverage, including geographic requirements which currently restrict access for those in rural areas.Supporthttps://triagecancer.org/CONNECT-Act-of-2021Introduced in House 4/28/2021; Introduced in Senate 04/29/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Cover Outstanding Vulnerable Expansion-Eligible Residents Now ActBillhttps://www.congress.gov/bill/117th-congress/house-bill/3961?s=1&r=3H.R.3961 - COVER Now ActThis act would allow the Centers for Medicare and Medicaid Services (CMS) to work directly with individual counties and cities to expand Medicaid coverage in their region, even if their State has declined to accept federal resources for Medicaid expansion.SupportIntroduced in House 06/17/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Credit for Caring ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/1670?s=1&r=9S.1670/H.R. 3321 - Credit for Caring Act of 2021This bill reduces costs for caregivers by creating a tax credit of up to $5,000 for 30% of the cost of long-term care expenses exceeding $2,000 in a taxable year. Eligible caregivers must earn more than $7,500 a year and pay for long-term care for their spouse or dependent relative.Supporthttps://triagecancer.org/Credit-For-Caring-LetterIntroduced in Senate 05/18/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
DIVERSE Trials ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/2706S.2706/H.R.5030 - DIVERSE Trials ActTo address health inequities by increasing racially diverse participation in clinical trials, this act allows sponsors of trials to allieviate costs for patients by reimbursing patients for non-medical costs associated with their trial participation, such as travel, parking, food, or lodging. This legislation also allows trial sponsors to provide free access to technologies associated with the trial. Plus, it creates a program for awarding grants to organizations providing community support for clinical trial enrollment.Supporthttps://triagecancer.org/DIVERSE-Trials-Act-LettersIntroduced in Senate on 08/10/2021; Introduced in House on 08/13/2021Contact your Member of Congress to ask for their support for diverse participation in clinical trialshttps://www.commoncause.org/find-your-representative/
Excellus BlueCross BlueShield's Decision on Prior Authorization for Non-Small Cell Lung Cancer TherapyLetterhttps://provider.excellusbcbs.com/authorizations/medicalThis change effectively excludes cemiplimab from coverage, leaving patients with non-small cell lung cancer (NSCLC) without access to it. We recommend that Excellus amend its prior authorization policy to remove the step therapy requirements for patients with advanced NSCLC whose tumors have high PD-L1 expression.Opposehttps://triagecancer.org/Excellus-BCBS-LetterAsk Excellus to remove step therapy for advanced NSCLC patientshttps://www.excellusbcbs.com/contact
Family and Medical Insurance Leave Act (FAMILY Act)Billhttps://www.congress.gov/bill/117th-congress/house-bill/804?q=%7B%22search%22%3A%5B%22FAMILY+delauro%22%5D%7D&r=4&s=5This bill would alleviate the financial burden associated with emergency medical care by entitling employees to family and medical leave insurance (FMLI), providing two thirds of their regular pay for 60 days.Supporthttps://triagecancer.org/facts-paid-family-and-medical-leaveIntroduced in House 02/04/2021Contact your Member of Congress to ask for their support for Family and Medical Leave Insurance (FMLI)https://www.commoncause.org/find-your-representative/
Improving Access to Mental Health Act of 2021Billhttps://www.congress.gov/bill/117th-congress/house-bill/2035/actions?r=6&s=1H.R.2035 - Improving Access to Mental Health Act of 2021This legislation will facilitate patient access to mental health services by increasing Medicare reimbursement rates for clinical social workers, access to mental health services for residents of skilled nursing facilities, and supports for beneficiaries managing emotional and social effects of medical conditions.Supporthttps://triagecancer.org/Improving-Access-to-Mental-Health-Act-of-2021-LettersIntroduced in House 03/18/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Improving Seniors’ Timely Access to Care Act of 2021Billhttps://www.congress.gov/bill/117th-congress/house-bill/3173?s=1&r=5H.R.3173/S.3018 - Improving Seniors’ Timely Access to Care Act of 2021This act streamlines the process for prior authorizations for Medicare Advantage (MA) plans by establishing an electronic prior authorization (ePA) program.Supporthttps://triagecancer.org//The-Improving-Seniors-Timely-Access-to-Care-Act-of-2021-LetterPassed out of House Ways and Means Committee on 7/27/2022, in the Energy and Commerce Committee Health Subcommittee; Introduced in Senate 10/20/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Lowering Medicare Premiums and Prescription DrugCosts ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/1844/text?r=4&s=1S.1844/H.R.5099 - Lowering Medicare Premiums and Prescription DrugCosts ActThis act helps reduce barriers to care by expanding and streamlining financialassistance for Medicare Part A, Part B and Part D beneficiaries.Supporthttps://www.aging.senate.gov/imo/media/doc/Lowering%20Medicare%20Premiums%20and%20Prescription%20Drug%20Costs%20Act%20-%20One%20Pager.pdf?eType=EmailBlastContent&eId=274324d7-62ef-43ba-a354-20b529cb91dcIntroduced in Senate 05/26/2021; Introduced in House on 8/24/2021Contact your congressperson to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Lymphedema Treatment ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/1315/text?r=6&s=1S.1315/H.R. 3630 - Lymphedema Treatment ActThis act provides Medicare coverage for certain lymphedema compression treatment items, reducing associated costs to facilitate patients' access to necessary supplies.Supporthttps://triagecancer.org/Lymphedema-Treatment-ActIntroduced in Senate 04/22/2021; Introduce in House on 5/28/2021Send an email with Susan G. Komen to ask your Member of Congress to support the Lymphedema Treatment Act.https://p2a.co/f5jIIAX
Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021Billhttps://www.congress.gov/bill/117th-congress/house-bill/1946/all-info?r=1&s=1HRH.R.1946 - Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021This act would provide Medicare coverage for multi-cancer early detection screening tests, improving patient access and reducing costs.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/MCED-Support-March-2021-and-May-2022.pdfIntroduced in House on 03/16/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Metastatic Breast Cancer Access to Care ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/1312/actionsH.R.3183/S.1312 - Metastatic Breast Cancer Access to Care ActThis legislation will facilitate the timely delivery of patients' financial help and medical care by eliminating the five-month waiting period for Social Security Disability Insurance (SSDI) and 24-month waiting period to access Medicare coverage for individuals with metastatic breast cancer.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/Metastatic-Breast-Cancer-Letters.pdfIntroduced in Senate 04/22/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Patient-Centered Drug Pricing Policies for Autoimmune PatientsBillhttps://www.congress.gov/bill/117th-congress/house-bill/3?q=%7B%22search%22%3A%5B%22H.R.+3+Elijah+E.+Cummings+Lower+Drug+Costs+Now+Act%22%5D%7D&r=1&s=1H.R. 3 - Elijah E. Cummings Lower Drug Costs Now ActH.R. 3 would use other countries' reference price methodology to set drug prices to a maximum fair price (MFP). These countries use a Quality Adjusted Life Years (QALY) metric, which would discriminate against seniors and disabilities, resulting in the rationing of their care. Instead, we recommend protecting co-pay assistance, instituting federal cost-sharing caps, and mandating transparency for Pharmacy Benefit Managers (PBM) operations to lower drug prices for patients.Supporthttps://triagecancer.org/Patient-Centered-Drug-Pricing-LettersIntroduced in House 04/22/2021Contact your Member of Congress to ask them to support patience-centered drug pricing policies.https://www.commoncause.org/find-your-representative/
Protecting Seniors Through Immunization Act of 2021Billhttps://www.congress.gov/bill/117th-congress/senate-bill/912/textS. 912/H.R. 1978 - Protecting Seniors Through Immunization ActThis act will help strengthen vaccine uptake by improving education and equitable access to recommended vaccines for Medicare beneficiaries.Supporthttps://triagecancer.org/AVAC-Protecting-Seniors-SupportIntroduced in the House 3/17/2021; Introduced in Senate 03/23/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Reducing Hereditary Cancer Act of 2021 & Reducing Hereditary Cancer Act of 2022Billhttps://www.congress.gov/bill/117th-congress/house-bill/4110/all-infoH.R.4110 - Reducing Hereditary Cancer Act of 2021; S.3656 Reducing Hereditary Cancer Act of 2022This act would facilitate patient access to medically-appropriate genetic testing for cancer risk and other risk reducing interventions by providing Medicare coverage for these services.Supporthttps://triagecancer.org/wp-content/uploads/2022/07/Support-Letters-for-Reducing-Hereditary-Cancer-Act-Combined.pdfIntroduced in House 06/23/2021; Introduced in Senate 2/16/2022Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Safe Step ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/464?overview=closedS.464/H.R.2163 - Safe Step ActThis legislation would require employer-sponsored health insurance plans to create clear step-therapy exception protocols, laying out steps for getting medications approved without step therapy. If the first drug patients must take before "stepping-up" to their preferred drug a) would not be effective, b) is expected to be ineffective and delaying treatment would cause irreversible consequences, c) would cause an allergic reaction, b) would prevent the patient from completing daily activities, or e) would disrupt an already-stable drug regimen, the request must be approved.Supporthttps://triagecancer.org/Safe-Step-Act-LettersIntroduced in Senate on 02/25/2021; Introduced in House, 03/23/2021Send an email with Susan G. Komen to ask your Member of Congress to support the Safe Step Acthttps://p2a.co/B3RBiPA
Seniors Prescription Drug Relief ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/2327?q=%7B%22search%22%3A%5B%22S.+2327+%28IS%29+-+Seniors+Prescription+Drug+Relief+Act%22%5D%7D&s=1&r=1S. 2327- Seniors Prescription Drug Relief ActThe Seniors Prescription Drug Relief Act alleviates costs for Medicare Part D beneficiaries by capping out-of-pocket costs at $3,100, allowing patients to pay high prescription drug costs through monthly payment plans, and reducing prescription drug co-insurance from 25 to 20 percent during the “doughnut hole” period.Supporthttps://triagecancer.org/Seniors-Prescription-Drug-Relief-Act-Letter-of-SupportIntroduced in Senate on 07/13/2021; many of the provisions of this law were incorporated into the Inflation Reduction Act of 2022 and signed into law on 08/16/2022Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Supplementary Security Income (SSI) Restoration Act of 2021Billhttps://www.congress.gov/bill/117th-congress/senate-bill/2065H.R.3824/S.2065 - The Supplementary Security Income (SSI) Restoration Act of 2021The SSI Restoration Act updates regulations for the Supplemental Security Income program to increase benefits available to low-income Americans with disabilities and older Americans.Supporthttps://triagecancer.org/SSI-Restoration-Letter-of-SupportIntroduced in Senate 06/11/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
VALID Act of 2021Billhttps://www.congress.gov/bill/117th-congress/senate-bill/2209?overview=closedH.R. 4128/S. 2209 VALID Act of 2021This act would create a regulation specific to vitro clinical tests (IVCTs), separate from the regulatory framework for other medical devices. IVCTs would be subject to a premarket review process, notably including a Technology Certification Program.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/VALID-Act-Letters-of-Support-Combined.pdfIntroduced in Senate 6/24/2021Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Paid Family Medical LeaveBillhttps://www.congress.gov/117/bills/sconres14/BILLS-117sconres14es.pdfS. CON. RES. 14Paid Family and Medical Leave provisions included in the FY 2022 Budget Reconciliation Proposal to institute a comprehensive, universal, paid family and medical leave plan for workers, including caregivers of older adults and people with disabilities.Supporthttps://triagecancer.org/paidleave-10-29Paid Family Medical Leave was not included in the Budget for FY22Contact your Member of Congress to ask for their support for this bill.https://www.commoncause.org/find-your-representative/
Increase Funding for NIH in FY23 to $49 BillionForthcoming Budget Resolution FY23Increasing funding for the National Institutes of Health will help make progress to address health challenges, including COVID-19.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/FY-2023-Ad-Hoc-Group-Recommendation_5.10.22_Final.pdfContact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Provide robust funding to Consumer Assistance Program Funding for FY23Forthcoming Budget Resolution FY23Consumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.SupportContact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Response to Public Comment Period Requesting Information Regarding Reporting on PharmacyBenefits and Prescription Drug CostsFTC Request for Informationhttps://www.ftc.gov/news-events/news/press-releases/2022/04/federal-trade-commission-extends-public-comment-period-request-information-impact-pharmacy-benefitPBMs play a large part in how patients access and afford their prescription medications. We call on the FTC to use all the power within its purview to help alleviate these harmful policies and practices that make access to prescription drugs out of reach for patients and impact the health of our nation. We support increased regulation of the PBMs.Supporthttps://hivhep.org/wp-content/uploads/2022/05/FTC-Public-Comments-on-PBM-Practices-5.24.22-1.pdfPeriod for Public Comments to FTC ended 5/25/2022Contact your Member of Congress to ask for their support for collecting and analyzing information on health plans and PBMs.https://www.commoncause.org/find-your-representative/
Restore robust funding to Consumer Assistance Program Funding for FY23Forthcoming Budget Resolution FY23Consumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.SupportContact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Health Equity and Accountability Act of 2022Billhttps://www.congress.gov/bill/117th-congress/house-bill/7585H.R. 7585Achieving health equity – the highest level of health for everyone – is a critical imperative for this country, not only because it is at the heart of our shared values of fairness, justice, and equal opportunity, but because it is impossible to have a sustainable healthcare system without it. The Health Equity and Accountability Act (HEAA) can provide the tools necessary to address these health inequities and ensure that health and health care disparities elimination are prioritized.Supporthttps://triagecancer.org/HEAA-Letter-of-SupportPassed the out of the House 6/8/2022 and received by the Senate 6/9/2022Contact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Building a Sustainable Workforce for Healthy Communities ActBillhttps://www.congress.gov/bill/117th-congress/senate-bill/3479 https://www.congress.gov/bill/117th-congress/house-bill/8151?s=1&r=22H.R. 8151/S. 3479Reauthorizes funding allotted to the CDC for Community Health Workers through 2027Supporthttps://triagecancer.org/wp-content/uploads/2022/09/Sign-on_Building-Sustainable-CHW-Workforce_PIH_9-8-22.pdfIntroduced in the Senate 1/11/2022, and in the House 6/21/2022Contact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Saving Access to Laboratory Services ActBillhttps://www.congress.gov/bill/117th-congress/house-bill/8188 https://www.congress.gov/bill/117th-congress/senate-bill/4449H.R. 8188/S. 4449Updates Medicare's payment system for laboratory testing to provide improved access to testing and foster innovation.Supporthttps://triagecancer.org/wp-content/uploads/2022/09/Stakeholder-Letter-in-Support-of-SALSA-9-13-22.pdfIntroduced 6/22/2022Contact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Preserving Access to Home Health Act of 2022Billhttps://www.congress.gov/bill/117th-congress/house-bill/8581?q=%7B%22search%22%3A%5B%22HR+8581%22%2C%22HR%22%2C%228581%22%5D%7D&s=1&r=1H.R. 8581/S. 4605Prevent cuts in Medicare's rates to Home Health Care rates from going into effectSupportIntroduced 7/28/2022 and referred to committeeContact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Accelerating Kids’ Access to Care Act (AKACA)Billhttps://www.congress.gov/bill/117th-congress/house-bill/3089/actionsHR 3089/S 1544Establishes a limited streamlined federal Medicaid screening and enrollment pathway for providers caring for children so that children on Medicaid can receive prompt care in another state when the care is not available in their home state.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/AKACA-Updated-Endorsement-Letter-Fall-2022.pdfIntroduced 5/2021, referred to committeeContact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Palliative Care and Hospice Education and Training Act (PCHETA)Billhttps://www.congress.gov/bill/117th-congress/senate-bill/4260S 4260Improves training programs for Palliative Care and Hospice Education to increase the field of professionals with this training as the demand for such services is expected to grow.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/Triage-Cancer-Letter-of-Support-for-PCHETA.pdfIntroduced 5/19/2022, referred to committeeContact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/
Prostate Specific Antigen Screeing for High RIsk Insured Mens Act (PSA for HIM Act)Billhttps://www.congress.gov/bill/117th-congress/house-bill/1176/all-actions?s=1&r=95HR 1176The PSA for HIM Act would waive deductibles, copayments, and coinsurances for prostate cancer screenings for those with a family history of prostate cancer or who are African-American.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/HR-1176-Endorsement-Letter.pdfIntroduced 2/19/2021Contact your Member of Congress to ask for their support for this funding.https://www.commoncause.org/find-your-representative/

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State Policy and Legislative Advocacy – Current Issues

This chart includes policy and legislative opportunities in various states.

Year IntroducedStateIssueType (Letter, Regulation Comments, Legislation)Bill Number & TitleDescriptionPosition Statements & Coalition and Triage Cancer Letter of SupportStatusAdvocacy Opportunity
2021OHEnact Vaccine Choice and Anti-Discrimination ActBillhttps://www.legislature.ohio.gov/legislation/legislation-summary?id=GA134-HB-248HB 248-11 Enact Vaccine Choice and Anti-Discrimination ActThe legislature has heard that this bill’s purpose is to prevent the COVID-19 vaccine from becoming mandatory, but HB 248-11 applies to ALL immunizations, including childhood vaccines. If passed, this legislation has the potential to reverse decades of immunity from life-threatening, but vaccine-preventable diseases such as measles, mumps, hepatitis, meningitis and polio.Opposehttps://triagecancer.org/Vaccine-Coalition-Letter_6.14Pending in the House Health CommitteeContact your Ohio representative to ask them to oppose this bill.https://www.legislature.ohio.gov/legislators/house-directory
2021NCMedicaid ExpasionBillhttps://lrs.sog.unc.edu/bill-summaries-lookup/H/149/2021/H149H149 Will expand access to eligible adults up to 138% of the Federal Poverty LevelThis bill would allow adults who do not qualify under another program to enroll in Medicaid if their income is below 138% of poverty. NC expects that about 600,000 low income individuals would become eligible under expansion criteria.Supporthttps://triagecancer.org/wp-content/uploads/2022/09/Triage-Cancer-Support-for-HB-149.pdfPassed the Senate (6/2/2022), Returned to HouseContact your North Carolina Representative to ask them to suppor this bill.https://www.ncleg.gov/findyourlegislators
2022NYBiomarker TestingBillhttps://assembly.state.ny.us/leg/?default_fld=&leg_video=&bn=A09149&term=2021&Summary=YA09149Assembly Bill A09149 will require increased coverage of Biomarker Testing for those on both public and private health insurance plans. Despite the clear benefits of biomarker testing, many insurance plans do not cover evidence-based biomarker testing for all patients who need it. Improving coverage for and access to biomarker testing across insurance types is key to reducing health disparities.Supporthttps://triagecancer.org/wp-content/uploads/2022/06/NCOIL-biomarker-coalition-letter_FINAL.pdfIntroduced and referred to the Insurance CommitteeContact your New York Assembly Member to ask them to support this bill.https://nyassembly.gov/mem/search/
2022PAThe MRI BillBillhttps://www.legis.state.pa.us/cfdocs/billInfo/BillInfo.cfm?syear=2021&sind=0&body=S&type=B&bn=1225S1225This will clarify that the MRI/Ultrasound coverage extends to women with any of the following risk factors, and without the application of any deductible, copayment or coinsurance provisions contained in the policy or plan:personal history of atypical breast histologies;personal history or family history of breast cancer;genetic predisposition for breast cancer;prior therapeutic thoracic radiation therapy;extremely dense or heterogeneously dense breast tissue based on breast composition categories of the Breast Imaging and Reporting Data System established by the American College of Radiology.SupportPassed by the Senate, referred to the House Insurance committeeContact your State Representative and ask them to support this billhttps://www.legis.state.pa.us/cfdocs/legis/home/findyourlegislator/
2022MNBiomarker Testingbillhttps://www.revisor.mn.gov/bills/bill.php?b=House&f=HF4899&ssn=0&y=2022HF4899/SF4610Health plans required to provide coverage for biomarker testing.SupportIntroduced 5/2022Contact your State Representative and ask them to support this billhttps://www.gis.lcc.mn.gov/iMaps/districts/

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Federal/State Policy and Legislative Advocacy – Past Issues

This chart includes past policy and legislative opportunities at the federal and state levels.

Federal / StateYear IntroducedIssueType (Letter, Regulation Comments, Legislation)Bill Number & TitleDescriptionPosition Statements & Coalition and Triage Cancer Letter of SupportStatusLearn more
Federal2020Additional Direction on Civil Rights Law and Emergency State Guidance During COVID-19 from HHS’s Office for Civil Rights (OCR)Letterhttps://www.hhs.gov/about/news/2020/03/28/ocr-issues-bulletin-on-civil-rights-laws-and-hipaa-flexibilities-that-apply-during-the-covid-19-emergency.htmlAdditional direction from Department of Health and Human Service’s (HHS’s) Office for Civil Rights (OCR) would make clear that state emergency triage guidance that would limit or restrict access to lifesaving care for certain patients with underlying conditions due to the COVID-19 pandemic violates federal antidiscrimination laws.Supporthttps://triagecancer.org/wp-content/uploads/2020/05/Emergency-Triage-Letter-to-OCR-5.20.20-Final.pdfNo additional guidance on civil rights and states' emergency response issued by the OCR.https://www.hhs.gov/sites/default/files/ocr-bulletin-3-28-20.pdf
Federal2020Administrative Changes to HHS to Increase Patient Access During COVID-19Regulationhttps://www.cms.gov/files/document/summary-covid-19-emergency-declaration-waivers.pdfJoined the ACS CAN to urge HHS Secretary Alex Azar to ensure plan networks do not hinder access to Care, waive facility-specific pre-certification and prior authorization, provide considerations for home infusion services, allow Medicaid patients to recieve a 90-day supply of necessary medications, and clarify improvements to telehealth services.Supporthttps://triagecancer.org/wp-content/uploads/2020/05/Letter-to-HHS-Sec-Azar-on-Covid-Fixes-for-Cancer-Patients-FINAL.pdfUpdated CMS Blanket Waivers issued April 8, 2021 provide additional guidance and protections for patients and providers.https://www.medicare.gov/what-medicare-covers/getting-prescriptions-in-disaster-or-emergency
Federal2020Advancing Policies Supporting the Role of Oral Health in Fighting COVID-19Letterhttps://www.cdc.gov/oralhealth/conditions/index.htmlProposed Legislation: Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer to advancing policies promote oral health in addressing the COVID-19 pandemic would help prevent worstening long-standing disparities in oral health.Supporthttps://triagecancer.org/wp-content/uploads/2020/05/OPENLetterSignedF-Medicaid-HEROS-Act.pdfAction is still needed to address America's Oral Health Crisis.https://www.oralhealth.network/home
Federal2020Allowing Patients with Medicare Part D to use Drug Discount Cards through the Novel Coronavirus (COVID19) PandemicRegulationhttps://www.medicare.gov/drug-coverage-part-d/what-medicare-part-d-drug-plans-cover/drug-plan-coverage-rulesRescinding the ban on the use of copay cards in the Medicare Part D program through the Novel Coronavirus (COVID19) pandemic would facilitate access to and adherence with needed medicines. It would also improve beneficiaries’ overall ability to manage critical and pressing health-related and household expenses.Supporthttps://triagecancer.org/wp-content/uploads/2020/08/Patient-Group-Letter-to-OIG-on-Medicare-Part-D-Copay-Coupon-Assitance-FINAL-8.24.20.pdfThe ban was not rescinded through the Novel Coronavirus (COVID19) pandemic.https://triagecancer.org/medicare-part-d
Federal2020Biden-Harris Transition Team Prioritizing Health and HealthcareLetterhttps://www.whitehouse.gov/priorities/The Biden-Harris Transition Team taking action to end the COVID-19 pandemic, address racial injustices in healthcare, pursue affordable healthcare for all Americans, and lower health care costs will be key to turning the tide of the pandemic, restoring the economy, and saving lives.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/Letter-from-320-organizations-to-urge-Biden-Harris-transition-team-to-prioritize-health-and-healthcare.pdfThe Biden-Harris administration's efforts to end the COVID-19 pandemic and address inequities in and access to healthcare are ongoing. However, they describe ending COVID-19, achieveing racial equity, and protecting American's access to healthcare as policy priorities.https://familiesusa.org/resources/over-320-organizations-urge-biden-harris-transition-team-to-prioritize-health-and-health-care/
Federal2018Cancer Care Planning and Communications Act of 2018BillH.R.5160 - Cancer Care Planning and Communications Act of 2018https://www.congress.gov/bill/115th-congress/house-bill/5160/text?format=txtProposed Legislation: The CCPC Act would establish a new Medicare service for cancer care planning.Supporthttps://canceradvocacy.org/wp-content/uploads/2018/02/NCCS-CCPC-Fact-Sheet.pdfThis bill died in congress after being introduced on March 5, 2018.https://triagecancer.org/tag/cancer-care-planning-and-communications-act
Federal2019Cancer Drug Parity ActBillH.R. 1730/S. 741 - Cancer Drug Parity Act of 2019https://www.congress.gov/bill/116th-congress/senate-bill/741/all-infoProposed Legislation: The Cancer Drug Parity Act would reduce healthcare costs for cancer patients by requiring insurance companies to cover orally administered cancer drugs in the same way as intravenous (IV) chemotherapy.Supporthttps://triagecancer.org/wp-content/uploads/2019/12/Triage-Cancer-Letter-of-Support.pdfThe Cancer Drug Parity Act (H.R. 1730/S. 741) bill died after being referred to the Committee on Health, Education, Labor, and Pensions.https://triagecancer.org/cancer-drug-parity-act-support
Federal2019Cancer Drug Parity Act and Other Measures to Increase Access to Care and PPE during the Novel Coronavirus PandemicBillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Proposed Legislation: The Cancer Drug Parity Act, as well as other measures to increase access to care during the Novel Coronavirus Pandemic including increased funding for state Medicaid and the production of Personal Protective Equiptment (PPE), would ensure continuity of care for people with cancerand survivors.Supporthttps://triagecancer.org/wp-content/uploads/2020/08/ACS-CAN-Cancer-Community-Letter-July-2020.pdfThe Cancer Drug Parity Act (H.R. 1730/S. 741) bill died after being referred to the Committee on Health, Education, Labor, and Pensions. However, other recommendations were honored in subsequent pandemic relief bills.https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2021Changes to CMMI Part D Payment Modernization Models on Jan 18, 2019Regulationhttps://www.cms.gov/newsroom/fact-sheets/part-d-payment-modernization-model-calendar-year-cy-2022-fact-sheetThe Trump Administration's changes to CMMI Part D Payment Models would result in Part D plans in this model no longer having to cover “all or substantially all” drugs within five of the six protected classes (anticonvulsants, immunosuppressants, antidepressants, antipsychotics, and antineoplastics).Opposehttps://triagecancer.org/wp-content/uploads/2021/02/Six-Protected-Classes-Patient-and-Provider-Letter-Final.pdfThe Biden Administration released an updated Request for Applications (RFA) for the Part D Payment Modernization (PDM) Model for CY 2022 eliminating changes proposed during the previous administration.https://innovation.cms.gov/innovation-models/part-d-payment-modernization-model
Federal2019Clinical Treatment ActBillH.R.913/S.4742 - The Clinical Treatment Acthttps://www.congress.gov/bill/116th-congress/house-bill/913Proposed Legislation: This bill would ensure states cover routine care costs of participation in an approved clinical trial for Medicaid enrollees with life-threatening conditions.Supporthttps://triagecancer.org/wp-content/uploads/2019/02/HR-913-Community-Support-Letter.pdfThe Clinical Treatment Act (H.R.913/S.4742) bill died after being introduced to the House.https://triagecancer.org/clinical-treatment-act-advocacy
Federal2019Coverage for Germline and Somatic Tumor NGS-based testing for Early-Stage Cancer Patients with MedicareRegulationhttps://www.cms.gov/medicare-coverage-database/details/nca-decision-memo.aspx?NCAId=29663 organizations expressed serious concerns that the overly broad interpretation of national coverage determination for next generation sequencing will restrict patient access to medically necessary and relevant clinical tests and adversely impact cancer care and outcomes.Supporthttps://triagecancer.org/wp-content/uploads/2019/02/Group_Stakeholder_Letter_NGSNCD-FINAL-1-31-2019.pdfA Jan. 27, 2020 decision memo from the Centers for Medicare & Medicaid Services (CMS) announced that Medicare will cover next-generation sequencing (NGS) tests for qualified patients with any stage of female breast or ovarian cancer to determine if they have hereditary cancer-associated mutations.https://www.cms.gov/medicare-coverage-database/details/ncd-details.aspx?NCDId=372
Federal2021Designating May as "National Cancer Research Month"BillS.Res.253 - A resolution supporting the designation of May 2021 as "National Cancer Research Month"https://www.congress.gov/bill/117th-congress/senate-resolution/253/textRecognizing May as National Cancer Research Month celebrates and encourages our nation's continued investment in cancer research, which is vital to those diagnosed and their loved ones.Supporthttps://triagecancer.org/NCRM-Resolution-Support-LetterAgreed to in Senate on 06/07/2021https://www.aacr.org/patients-caregivers/awareness-months/national-cancer-research-month/
Federal2019Emergency Funding For Critical Nonprofits During COVID-19BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Legislation: Providing emergency funding would assure the stalled research supported by non-profit organizations, voluntary health associations, science societies, and foundations, can resume once researchers return to their labs.Supporthttps://triagecancer.org/wp-content/uploads/2020/05/Sign-on-letter-research-protections-for-non-profits-FINAL-5620.pdfAdditional funding provided in the "Consolidated Appropriations Act, 2021’’ enacted December 21, 2020.https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2021Enforcing the CDC Moratorium on Evictions During COVID-19Regulationhttps://www.cdc.gov/coronavirus/2019-ncov/covid-eviction-declaration.htmlCDC Director Dr. Rochelle Walensky determined that the evictioning tenants could be detrimental to public health control measures to slow the spread of COVID-19.Supporthttps://triagecancer.org/wp-content/uploads/2021/03/Moratorium-letter-to-CFPBFTC-03.03.21-w-sign_ons.pdfThe CDC called for enforcement and extended moratorium until June 30, 2021.https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2019Equitable Access to Testing and Treatment for COVID-19BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Legislation: Providing equitable access to testing and treatment for COVID-19; equip states and localities with sufficient financial support to combat the crisis; provide protection and support to the health care workforce and others on the frontlines of the pandemic; assure access and capacity in the health system; and protect against high and unexpected health care costs would help protect American's overall well-being.Supporthttps://triagecancer.org/wp-content/uploads/2020/04/FUSA-COVID-response-recs-sign-on-4.22.20-final.pdfMuch of these requests were honored in additional action taken to combat the COVID-19 pandemic.https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2019Funding for the Kidney CancerResearch Program for Fiscal Year 2021BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133 This bill requires the Department of Defense to provide $50 million in research funding to develop innovative treatment options for kidney and renal pelvic cancer.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/12.08.2020-CR-Jt.-Approp-Ltr-KCRP-Request-for-FY-21.pdfIn FY21 KCRP received an additional appropriation of $50M to conduct kidney cancer research.https://cdmrp.army.mil/kcrp/default
Federal2019Funding for the National Institutes of Health (NIH) in FY 2020Letterhttps://www.appropriations.senate.gov/imo/media/doc/H1865PLT_44.PDFLegislation: One Voice Against Cancer (OVAC), a coalition of public interest groups representing millions of cancer researchers, physicians and nurses, patients, survivors and their families, urges congress to raise the FY 2020 budget caps for cancer research, treatment, prevention and detection.Supporthttps://triagecancer.org/wp-content/uploads/2019/02/OVAC-Budget-Cap-Letter-February-2019.pdfNIH received $41.68 billion in funding in FY 2020, an increase of $2.6 billion from FY 2019.https://www.nia.nih.gov/research/blog/2018/10/we-have-budget-fy-2019#:~:text=The%20total%20NIH%20appropriation%20for,Alzheimer's%20and%20related%20dementias%20research.
Federal2019Funding Increases for Cancer Research in FY 2021BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Funding for (NIH) and (NCI) in FY2021 would be used to ensure that cancer research and clinical trials impacted by the COVID-19 pandemic can be restarted when safe to do so and for research related to COVID-19.Supporthttps://triagecancer.org/wp-content/uploads/2020/11/FY2021_OVAC-Letter-Requesting-Funding-increases-for-cancer-research-and-prevention-11.24.2020.pdfFY 2021 included a $1.25 billion budget increase for NIH, and a nearly $120 million increase for the NCI.https://www.nih.gov/about-nih/what-we-do/nih-almanac/national-cancer-institute-nci
Federal2019Funding the DoD's Congressionally Directed Medical Research Program and its PRCRP in FY 2021BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133 Funding for the Department of Defense’s (DoD) Congressionally Directed Medical Research Program and its Peer-Reviewed Cancer Research Program (PRCRP) in Fiscal Year 2021 (FY 2021) advances high-impact research for cancer prevention, detection, treatment, and survivorship to support service members, their families, and the American public at-large.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/ACS-CAN-FY-2021-CDMRP-letter-FINAL.pdfCongress appropriated $115,000,000 for PRCRP in FY 2021.https://cdmrp.army.mil/prcrp/default
State2021Health Insurance Coverage for Genetic TestingBillLA SB 84http://www.legis.la.gov/Legis/BillInfo.aspx?i=240103This act facilitates cancer patients' access to genetic testing by requiring health plans to provide coverage for these services.Supporthttps://triagecancer.org/LA-SB-84-Letter-of-SupportEffective date 1/1/2022
Federal2019Henrietta Lacks Enhancing Cancer Research Act of 2019BillH.R.1966/S. 946 - The Henrietta Lacks Enhancing Cancer Research Act of 2019https://www.congress.gov/116/plaws/publ291/PLAW-116publ291.pdfLegislation: By analyzing the federal policies that directly impact participation rates in cancer clinical trials and then recommending potential policy changes across federal agencies, this act works to reduce barriers that keep patients from enrolling in clinical trials.Supporthttps://triagecancer.org/wp-content/uploads/2019/06/S.-946-Endorsement-Letter-FINAL.pdfThis act became a public law on January 5, 2021.https://www.congress.gov/116/plaws/publ291/PLAW-116publ291.pdf
Federal2021Increasing Access and Affordability of Health Care in American Rescue Plan Act of 2021BillH.R.1319 - American Rescue Plan Act of 2021https://www.congress.gov/bill/117th-congress/house-bill/1319/textProvisions in the American Rescue plan work to improve health coverage affordability in the private market, build on the foundation of provisions in the existing health law and ensure access to vaccines, and focus on the needs of communities of color.Supporthttps://triagecancer.org/wp-content/uploads/2021/02/COVID-19ReliefSupportLtr_021821_FINAL_830PM.pdfEnacted March 11, 2021https://triagecancer.org/news-you-need-about-tax-time-more
Federal2019Medical Expense Savings ActBillH.R.2073/S.110- Medical Expense Savings Acthttps://www.congress.gov/bill/116th-congress/senate-bill/110Proposed Legislation: This act would make permanent the 7.5 percent threshold for the medical expense deduction. Tax relief in this area can provide needed resources, especially important to middle income seniors with high medical costs.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/FINAL_Med_Ex_Coalition_12.14.2020.pdfThe Medical Expense Savings Act (H.R.2073/S.110) died after being referred to the Committee on Finance.https://www.congress.gov/116/bills/s110/BILLS-116s110is.pdf
Federal2019Medicare National Coverage Determinations (NCD)Regulationhttps://www.cms.gov/medicare-coverage-database/details/nca-details.aspx?NCAId=296&bc=AIAAAAAACAAAAAAA&Legislation: The bill will change the Medicare statutes to allow for germline testing of affected and unaffected carriers who meet personal and/or family history criteria (as defined by NCCN). It would also cover evidence-based increased screening and risk-reducing surgeries.Supporthttps://triagecancer.org/wp-content/uploads/2019/06/NGS-NCD-Comments_90.2_May2019-FINAL.pdfThe Centers for Medicare & Medicaid Services (CMS) covers Next Generation Sequencing (NGS) as a diagnostic laboratory test when performed in a CLIA-certified laboratory and ordered by a treating physician for qualified patients.https://www.facingourrisk.org/privacy-policy-legal/advocacy/medicare-finalizes-genetic-testing-policy
State2020Paid Sick Leave for New YorkersBillNew York Assembly Bill A9506Bhttps://www.nysenate.gov/legislation/bills/2019/a9506Building on protections created during the COVID-19 pandemic, this bill guarantees most New York residents one hour of paid sick leave for every 30 hours worked.SupportSigned by the Governor 04/03/2021, effective 01/01/2021https://www.ny.gov/programs/new-york-paid-sick-leave
Federal2021Requesting Prioritization of Cancer Patients for COVID-19 VaccinationsRegulationhttps://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.htmlPatients with active cancer and survivors of cancer must be provided priority access to a lifesaving COVID-19 vaccine.Supporthttps://triagecancer.org/wp-content/uploads/2021/02/SignOnLetter-re-COVID-19-Vaccine-Prioritization-for-Cancer-Patients_FINAL.pdfThe CDC prioritized cancer patients in groups 4 and 6 for COVID-19 vaccination.https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/specific-groups.html
Federal2020Transparency in Denials of CoverageRegulation85 FR 72158https://www.federalregister.gov/documents/2020/11/12/2020-24591/transparency-in-coverageA regulation issued by the Trump Administration requires all non-grandfathered plans, including employer-sponsored plans, to report billed charges and negotiated allowed amounts for covered medical care, starting in 2023. But, Triage Cancer recommends that Health and Human Services (HHS) audit insurers' claim denials, and investigate their efforts to add providers to their networks.SupportEffective Date: 01/11/2021https://www.regulations.gov/document/IRS-2020-0044-0001
Federal2021Access to Screening and Treatment for Prostate Cancer Among Underserved and Minority GroupsBillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textProviding funding to address inequity and access to screening and treatment for prostate cancer in FY 2022 would further lower mortality rates and address concerning increases in late-stage prostate cancer disease.Supporthttps://triagecancer.org/wp-content/uploads/2021/01/FoPCCC-Transition-Letter-FINAL.pdfPassed in House on 02/05/2021
Federal2021Restore robust funding to Consumer Assistance Program Funding for FY22BillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textConsumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.Supporthttps://triagecancer.org/wp-content/uploads/2021/04/042621-CAP-Grant-Support-Letter-w-Logos-FINAL.pdfPassed in House on 2/5/2021
Federal2021Allocating $10 Billion in Funding for NIH in FY22BillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textProviding the National Institutes of Health (NIH) with at least $10 billion would help mitigate delays in cancer research caused by the COVID-19 pandemic.Supporthttps://triagecancer.org/wp-content/uploads/2021/12/Ad-Hoc-Group-Letter-Urging-Swift-Passage-of-FY22-Appropriations_Final.pdfPassed 2/5/2021 with NIH Budget Increase of $2B
Federal2021Comments in Response to Request for Information Regarding Reporting on PharmacyBenefits and Prescription Drug CostsCommentshttps://www.federalregister.gov/documents/2021/06/23/2021-13138/request-for-information-regarding-reporting-on-pharmacy-benefits-and-prescription-drug-costsOur recommendations to Secretary of the U.S. Department of Health and Human Services (HHS), Xavier Becerra, include: requiring health plans to report on the treatment and accounting of copay assistance, collecting information on rebates and pharmacy benefit managers (PBMs), and carefully considering the impact of costs associated with prescription drugs on patients, their families, and society as a whole.Supporthttps://triagecancer.org/Letter-to-HHS-On-Standard-Plan-OptionsSecretary Becerra responded to our letter on June 28th, 2021.
Federal2021Expanding MedicareBillS.Con.Res.14https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/14The Senate's proposed budget would lower patient spending and increase patient's access to care by expanding Medicare. This includes adding dental, vision, and hearing coverage, as well as expanding home and community-based services. This bill would also alleviate the financial crisis caused by COVID-19 by making increased child tax credit and cost-share subsidies from the American Rescue Plan permanent.Supporthttps://triagecancer.org/Senate-Budget-Resolution-SupportAgreed in House on 08/24/2021
Federal2021Improving Patient Drug Affordability through Standardized Benefit PlansRegulationCMS-9906-Phttps://www.federalregister.gov/documents/2021/07/01/2021-13993/patient-protection-and-affordable-care-act-updating-payment-parameters-section-1332-waiverWe support the Centers for Medicare & Medicaid Services and the Department of the Treasury's proposed rule to offer standardized options for qualified health plans beginning in 2023, assisting patients better afford the prescription drugs and health services. We also believe that copay assistance should count towards their deductible and out-of-pocket maximum. We urge HHS to amend the Notice of Payment Parameters Rule for 2022 to prohibit the practice of not allowing such copay assistance to count by insurers.Supporthttps://triagecancer.org/Letter-Standardized-Benefit-PlansFinal Rule Published 9/27/2021; Effective 11/26/2021https://www.federalregister.gov/documents/2021/09/27/2021-20509/patient-protection-and-affordable-care-act-updating-payment-parameters-section-1332-waiver
State- CA2021Health Insurance Coverage for Biomarker TestingBillSB 535https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220SB535By requiring California health care plans to cover biomarker testing, this bill facilitates patient access to testing and reduces associated costs. This legislation will further protect patients’ access to care by prohibiting plans from requiring preauthorization for these services, eliminating pre-authorization for biomarker testing for patients with advanced or metastatic cancers.Supporthttps://triagecancer.org/CA-SB-535-Letter-of-SupportPassed both chambers, signed into law on 10/6/2021https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220SB535
State- CA2021Cancer Medication Recycling ActBillSB-310 - The Cancer Medication Recycling Acthttps://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB310This legislation would facilitate patient access to oral cancer medications by creating an avenue for providers to donate unused medications to patients in need, increasing the likelihood that patients will correctly administer these life-saving medications.Supporthttps://triagecancer.org/CA-SB-310-Letter-of-SupportSigned into law on 10/5/2021https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB310
State- CA2021Health Insurance Coverage for Colorectal Cancer TestingBillAB 342https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220AB342This legislation would facilitate patient access to colorectal cancer (CRC) testing by requiring insurance companies and health plans to provide coverage for follow-up tests without cost-sharing, reducing out-of-pocket medical costs and increasingly the likelihood that patients will proactively undergo follow up testing, rather than decline crucial testing due to costs.Supporthttps://triagecancer.org/CA-AB-342-Letter-of-SupportSigned into law on 10/1/2021
Federal2021Restore robust funding to Consumer Assistance Program Funding for FY22BillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textConsumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.Supporthttps://triagecancer.org/wp-content/uploads/2021/04/042621-CAP-Grant-Support-Letter-w-Logos-FINAL.pdfPassed in House on 2/5/2021
Federal2022Reduce the costs of drugs on Part D Medicare and extend tax credits and subsidies for Marketplace plans through 2025BillInflation Reduction ActSupportSigned into law on 08/16/2022https://www.whitehouse.gov/briefing-room/statements-releases/2022/08/19/fact-sheet-the-inflation-reduction-act-supports-workers-and-families/#:~:text=The%20Inflation%20Reduction%20Act%20will%20protect%20Medicare%20recipients%20from%20catastrophic,for%20the%20first%20time%20ever.
California2022Access to Cancer Treatment for Medi-Cal beneficiariesBillSB 987- Cancer Care Equity Acthttps://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB987The California Cancer Care Equity Act would ensure Medi-Cal beneficiaries who receive a complex cancer diagnosis have the choice to seek treatment at a comprehensive cancer center, increasing the number of Californians able to benefit from emerging therapies, clinical trials and appropriate cancer treatment specialized for particular types of cancer.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/SB-987-Cancer-Coalition-Support.pdfSigned in to law on 9/27/2022https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB987
California2022Biomarker TestingBillSB 912Senate Bill 912 will require state-regulated plans, including Medi-Cal, to cover comprehensive biomarker testing when supported by medical and scientific evidence, including nationally recognized clinical practice guidelines.Supporthttps://triaghttps://triagecancer.org/wp-content/uploads/2022/09/TC-Support-for-SB912.pdfVetoed by Governor on 9/29/2022https://www.fightcancer.org/increasing-access-biomarker-testing-sb912-lim%C3%B3n
Federal2022Renewal of the Prescription Drug User Fee ActReauthorization needed at the end of the FYIncluded within: H.R.7667https://www.congress.gov/bill/117th-congress/house-bill/7667Equitable access to clinical trials and diverse participation requires deliberate planning to achieve. FDA has recently taken steps to encourage sponsors to develop diversity action plans through the release of draft guidance, but such plans are currently optional. Several provisions in the House-passed version of PDUFA would make such plans mandatory, and we urge Congress to include these diversity planning requirements in final PDUFA legislation.Supporthttps://triagecancer.org/PDUFAConferenceCommunitySupportLetter20225 year reauthorization included in temporary budget bill passed on 9/30/2022
New Jersey2021State Guidelines for Step Therapy ProtocolsBillS3051/A4815 Establishes certain guidelines for health insurance carriers concerning step therapy protocols.https://www.njleg.state.nj.us/bill-search/2020/A4815This act would ensure patient access to appropriate care by requiring health insurance carriers to base step therapy protocols on peer-reviewed data, exempting patients from step therapy when protocols would not be in the best interest of the patient, and establishing patients' right to a fair process for requesting exemptions.SupportPassed by House, died in Senate Commerce Committee

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