Advocacy Issues

The following charts contain information about various federal and state advocacy opportunities.

Federal Policy and Legislative Advocacy – Current Issues

This chart includes policy and legislative opportunities at the federal level.

Year IntroducedIssueType (Letter, Regulation Comments, Legislation)Bill Number & TitleDescriptionPosition Statements & Coalition and Triage Cancer Letter of SupportStatusAdvocacy Opportunity
2023Medicaid ExpansionLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/31/textH.R.31 COVER Now Act - Cover Outstanding Vulnerable Expansion-eligible Residents Now ActUnder the program, local governments may provide coverage for individuals who are newly eligible for Medicaid under the Patient Protection and Affordable Care Act (i.e., the Medicaid expansion population) for a maximum of 10 years, or until their respective states expand Medicaid. The bill provides a 100% federal matching rate for the first three years of program participation.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-in-Support-of-H.R.31-COVER-Now-Act.pdfIntroduced by Representative Doggett (D-TX) 1/9/2023; referred to subcommittee on Health in the House Energy and Commerce CommitteeContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareProposed Rulehttps://www.federalregister.gov/documents/2022/11/28/2022-25901/solicitation-of-proposals-for-new-and-modified-safe-harbors-and-special-fraud-alerts87 FR 72953 Solicitation of Proposals for New and Modified Safe Harbors and Special FraudProposes that HHS create a safe harbor to allow for assistance for non-medical expenses to be provided to individuals participating in clinical trials to increase diversity of participants.Supporthttps://triagecancer.org/wp-content/uploads/2023/02/ACS-CAN_-Proposed-Safe-Harbor_27Jan23Final.pdfComment period closed 1/27/2023
2022Curb Utilization Management PoliciesProposed Rulehttps://www.cms.gov/newsroom/fact-sheets/hhs-notice-benefit-and-payment-parameters-2024-proposed-rule88 FR 25740 HHS Notice of Benefit and Payment Parameters for 2024 Proposed RuleProposed rule from CMS fails to address copay accumulatoradjustment policies in this proposed rule.Suggests additions to proposed rulehttps://triagecancer.org/wp-content/uploads/2023/06/Combined-Group-Letters-NBPP-2024.pdfRegulations effective June 18, 2023
2022Essential Health BenefitsProposed Rulehttps://www.federalregister.gov/documents/2022/12/02/2022-26282/request-for-information-essential-health-benefits87 FR 74097 HHS: Request for Information; Essential Health BenefitsIn response to a request for information from HHS, Triage Cancer signed on with 49 other organizations to make suggestions on how the rules on Essential Health Benefits can be improved.Proposed improvements to EBH ruleshttps://hivhep.org/wp-content/uploads/2023/01/EHB-Signon-Letter.pdfComment period closed on 1/31/2023
2023Eliminate Waiting PeriodsLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/549/textHR 549 Metastatic Breast Cancer Access to Care ActThis legislation would provide immediate access to support and medical care for individuals with metastatic breast cancer (MBC) who already qualify for Social Security Disability Insurance (SSDI) and are therefore eligible for Medicare. Under current law, these individuals must wait five months for SSDI and 24 months for Medicare benefits to take effect. This bill would waive both waiting periods, helping individuals with late-stage cancer get the benefits they are eligible to receive.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/TC-Letter-of-Support-for-H.R.-549-Metastatic-Breast-Cancer-Access-to-Care-Act.pdfIntroduced by Representative Garbarino (R-NY) 1/26/2023; Referred to House Committee on Ways and MeansContact your elected official to ask them to support this legislation through the Komen Advocacy Action Centerhttps://p2a.co/8m0MuUx
2023Eliminate Waiting PeriodsLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/663S.663 Metastatic Breast Cancer Access to Care ActThis legislation would provide immediate access to support and medical care for individuals with metastatic breast cancer (MBC) who already qualify for Social Security Disability Insurance (SSDI) and are therefore eligible for Medicare. Under current law, these individuals must wait five months for SSDI and 24 months for Medicare benefits to take effect. This bill would waive both waiting periods, helping individuals with late-stage cancer get the benefits they are eligible to receive.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/TC-Letter-of-Support-for-S.-663-Metastatic-Breast-Cancer-Access-to-Care-Act.pdfIntroduced by Senator Christopher Murphy (D-CT) 3/6/2023; referred to the Committee on FinanceContact your elected official to ask them to support this legislation through the Komen Advocacy Action Centerhttps://p2a.co/8m0MuUx
2022Curb Utilization Management PoliciesFederal Court Casehttps://litigationtracker.law.georgetown.edu/litigation/hiv-and-hepatitis-policy-institute-et-al-v-u-s-department-of-health-and-human-services-et-al/DC District Court: No. 1:22-cv-2604: HIV and Hepatitis Policy Institute, et al. v. HHSThe Plaintiffs ask the court to tell HHS that they were wrong when they approved the use of copay accumulator programs and that the rule permitting them be stopped.Support the Plaintiffshttps://hivhep.org/wp-content/uploads/2023/02/Aimed-Alliance-amicus-brief.pdfFiled 8/30/2022; HHS filed Motion to Dismiss 10/28/2022; Plaintiff responded 11/14/2022; Complaint Amended 11/18/2022; Plaintiffs filed Motion for Summary Judgment 2/2/2023; HHS filed a Cross Motion for Summary Judgment 3/16/2023; Plaintiff filed Reply in Support Motion for Summary Judgment and Opposition to Cross Motion 5/1/2023; Defendants have until 7/7/2023 to respond
2023Curb Junk PlansLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/711H.R. 711 Throw Away Junk Plans ActTo eliminate the exemption for junk plans from the ACA’s consumer protectionsSupporthttps://triagecancer.org/wp-content/uploads/2023/03/TC-Letter-of-Support-H.R.-711.pdfIntroduced 2/3/2023 by Representative Castor (D-Fl); Referred to the Committee on Energy and Commerce Subcommittee on HealthContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Curb Utilization Management PoliciesLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/830H.R. 830 Help Ensure Lower Patient Copays Act (HELP Copays Act)To prohibit the use of copay accumulator programsSupporthttps://allcopayscount.org/resources/all-copays-count-coalition-supports-the-reintroduction-of-the-help-copays-act-h-r-830/Introduced 2/6/2023 by Representative Carter (R-GA); Referred to the Committee on Energy and Commerce Subcommittee on HealthContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023HousingLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/773H.R. 773 The Homelessness and Behavioral Health Care Coordination Act of 2023The Homelessness and Behavioral Health Care Coordination Act would authorize a grant program within the Department of Housing and Urban Development (HUD) to help state and local governments, tribal entities, public housing agencies, and Continuums of Care better coordinate services for behavioral health, including substance use disorder, and homelessness.Supporthttps://triagecancer.org/wp-content/uploads/2023/05/Triage-Cancer-Letter-of-Support-HR-773.pdfIntroduced by Representative Dean (D-PA); Referred to the House Committee on Financial Services.Ask your elected officials to co-sponsor this bill using Action Network's advocacy letter.https://actionnetwork.org/letters/co-sponsor-the-vital-act?source=direct_link&
2023FundingBudget FY 2024Ask Congress to include funding for the Childhood Cancer STAR Act ($30M) the Childhood Cancer Data Initiative ($50M)Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-for-Funding-of-Childhood-Cancer-FY-24-Senate.pdfContact your legislators to ask them to support funding for these two initiatives.https://advocacy.lls.org/a/227-appropriations-1?emci=e51f0e0f-61b8-ed11-a8e0-00224832e811&emdi=eb1f0e0f-61b8-ed11-a8e0-00224832e811&ceid=74169
2023Insurance CoverageLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/485H.R. 485 The Protecting Healthcare for All Patients ActThis bill will protect vulnerable Americans by banning the use of Quality-Adjusted Life Years (QALY) in all federal programs.Supporthttps://triagecancer.org/wp-content/uploads/2023/03/2023-0307-H.R.-485-QALY-Ban-Bill-Sign-on-Letter-FINAL.pdfIntroduced by Representative Cathy McMorris Rodgers (R-WA); referred to Ways and Means; referred to subcommittee on Health; Committee Meetings held 2/1, 3/8, and 3/23/2023; Reported (Amended) by Committee on Energy and Commerce; Discharged by Ways and Means 5/17/2023; Placed on Union Calendar, Calendar No. 45Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023MedicareLetterGroup request to CMS to solicit patient input and feedback when implementing rules and regulations related to the Inflation Reduction Act's changes to Medicare.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Group-letters-to-CMS-re-IRA-implementation-3.pdf
2023Insurance CoverageLetterGroup request to CMS to reverse the decision to eliminate S code covering DIEP flap surgerySupporthttps://triagecancer.org/wp-content/uploads/2023/05/Group-Letters-DIEP-Flap-Surgery.pdfCommunity Breast Reconstruction Alliancehttps://cbralliance.org/
2023Insurance CoverageCommentshttps://www.cms.gov/files/document/hcpcs-public-meeting-agenda-non-drug-and-non-biological-items-and-services-june-1-2023-updated-05/09.pdfCenters for Medicare & Medicaid Services’ (CMS’) First Biannual 2023 Healthcare Common Procedure Coding System (HCPCS) Public Meeting AgendaCMS to revisit the decision to remove S codes for FLAP reconstructive surgeries from the HCPCS.Support keeping the S codeshttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Comments-on-HCP210813XRPKE.pdfMeeting held June 1, 2023
2023FundingBudget FY 2024https://www.whitehouse.gov/wp-content/uploads/2023/03/budget_fy2024.pdfBudget of the Federal Government for FY 2024For fiscal year (FY) 2024, the Ad Hoc Group recommends at least $50.924 billion for NIH’s foundational work, a $3.465 billion increase over the comparable FY 2023 program level, which would allow NIH’s base budget to keep pace with the biomedical research and development price index (BRDPI) and allow meaningful growth of nearly 5%.Supporthttps://www.aamc.org/research/adhocgp/FY2024Recommendation.pdfBudget presented by President Biden March 2024Contact your representative to ask them to support this funding requesthttps://www.commoncause.org/find-your-representative/
2023Research and developmentLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/1355 S. 1355 PASTEUR ActBill to incentivize innovative drug development targeting the most threatening infections, improve the appropriate use of antibiotics, and ensure domestic availability when needed.Supporthttps://triagecancer.org/wp-content/uploads/2023/04/PASTEUR-Stakeholder-Support-letter-combined.pdfIntroduced 4/27/2023 by Sen. Bennet, Michael F. [D-CO]; Referred to the Committee on Health, Education, Labor, and PensionsContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Research and developmentLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/2940H.R. 2940 PASTEUR Act of 2023Bill to incentivize innovative drug development targeting the most threatening infections, improve the appropriate use of antibiotics, and ensure domestic availability when needed.Supporthttps://triagecancer.org/wp-content/uploads/2023/04/PASTEUR-Stakeholder-Support-letter-combined.pdfIntroduced 4/27/2023 by Rep. Ferguson, A. Drew, IV [R-GA-3]; Referred to the Committee on Energy and Commerce, the Committees on Oversight and Accountability, Ways and Means, and the BudgetContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Insurance CoverageLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/1526H.R. 1526 Reducing Hereditary Cancer ActBill to modify the Medicare statutes to enable coverage of potentially life-saving genetic counseling, testing, screening and risk-reducing interventions.Supporthttps://triagecancer.org/wp-content/uploads/2023/04/RHCA-letter_03.13.2023Final.pdfIntroduced 3/9/2023 by Rep. Wasserman Schultz, Debbie [D-FL-25]; Referred to Committee on Energy and Commerce, and in addition to the Committee on Ways and Means; Referred to Energy and Commerce Subcommittee on HealthContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Insurance CoverageLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/765S.765 Reducing Hereditary Cancer ActBill to modify the Medicare statutes to enable coverage of potentially life-saving genetic counseling, testing, screening and risk-reducing interventions.Supporthttps://triagecancer.org/wp-content/uploads/2023/04/RHCA-letter_03.13.2023Final.pdfIntroduced 3/9/2023 Sen. Murkowski, Lisa [R-AK]; Referred to Committee on FinanceContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Disability InsuranceProposed Regulationshttps://www.regulations.gov/document/SSA-2021-0014-0001SA-2021-0014-0001SSA proposal to stop reducing SSI payments when someone receives food as a gift or donation.Supporthttps://triagecancer.org/wp-content/uploads/2023/05/Comments-Submitted-on-Proposed-Regulation.pdfAnnounced 2/17/2023; Comment period closed 4/17/2023
2023Medicare CoverageLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/2407?s=1&r=1H.R. 2407 Nancy Gardner Sewell Medicare Multi-Cancer Early Detection Screening Coverage ActThis bill provides for Medicare coverage and payment for multi-cancer early detection screening tests that are approved by the Food and Drug Administration and that are used to screen for cancer across many cancer types.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-for-H.R.2407.pdfIntroduced 3/30/2023 by Rep. Arrington, Jodey C. [R-TX-19]; Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and Means; Referred to Subcommittee on HealthSign onto Prevent Cancer's letter of supporthttps://docs.google.com/forms/d/e/1FAIpQLSc9xnaI0AerBJtjrfuJ8lgUIVWOl-tKGLw93VlvMN9XU-MtcQ/viewform
Legislationhttps://www.congress.gov/bill/118th-congress/senate-bill/2085/S. 2085 Medicare Multi-Cancer Early Detection Screening Coverage ActThis bill provides for Medicare coverage and payment for multi-cancer early detection screening tests that are approved by the Food and Drug Administration and that are used to screen for cancer across many cancer types.Supporthttps://www.preventcancer.org/wp-content/uploads/2023/06/2023-6-22-mced-sign-on-letter.pdfIntroduced 6/21/2023 by Sen. Crapo, Mike [R-ID]; Referred to Committee on FinanceSign onto Prevent Cancer's letter of supporthttps://docs.google.com/forms/d/e/1FAIpQLSc9xnaI0AerBJtjrfuJ8lgUIVWOl-tKGLw93VlvMN9XU-MtcQ/viewform
2023HousingLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/1377S. 1377 VITAL ActThe bill would address the housing affordability and accessibility crisis for people with disabilities by increasing the overall funding for the Low-Income Housing Tax Credit (LIHTC) program and encouraging development of accessible housing for seniors and people with disabilities.Supporthttps://www.casey.senate.gov/news/releases/casey-introduces-bill-to-produce-more-accessible-affordable-housingIntroduced by Senator Casey (D-Pa) 4/27/2023Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Curb Utilization Management PoliciesLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/830H.R.830 - HELP Copays ActTo prohibit the use of copay accumulator programsSupporthttps://allcopayscount.org/resources/all-copays-count-coalition-supports-the-reintroduction-of-the-help-copays-act-h-r-830/Introduced by Rep. Carter, Earl L. "Buddy" [R-GA-1] 2/6/2023; Referred to the Subcommittee on Health in the Committee on Energy and CommerceContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Curb Utilization Management PoliciesLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/1375S.1375 HELP Copays ActTo prohibit the use of copay accumulator programsSupportIntroduced by Sen. Marshall, Roger [R-KS] on 4/27/2023Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2022Curb Utilization Management PoliciesProposed Rulehttps://www.regulations.gov/docket/CMS-2022-019087 FR 76238 Medicare and Medicaid Programs; Patient Protection and Affordable Care Act; Advancing Interoperability and Improving Prior Authorization Processes for Medicare Advantage Organizations, Medicaid Managed Care Plans, State Medicaid Agencies, Children's Health Insurance Program (CHIP) Agencies and CHIP Managed Care Entities, Issuers of Qualified Health Plans on the Federally-Facilitated Exchanges, Merit-Based Incentive Payment System (MIPS) Eligible Clinicians, and Eligible Hospitals and Critical Access Hospitals in the Medicare Promoting Interoperability ProgramWill improve the efficiency of the Prior Authorization processes, reduce delays in care and alleviate the burden associated with prior authorization for Medicare Advantage, some Medicaid programs, and Qualified Health Plans.SupportProposed Rule issued 12/13/2022; comment period closed 3/13/2023Regulatory Relief Coalitionhttps://www.regrelief.org/support/
2023Curb Utilization Management PoliciesLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/652S. 652 Safe Step ActThis bill requires a group health plan to establish an exception to medication step-therapy protocol in specified cases.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-S.652-Safe-Step-Act.pdfIntroduced 3/2/2023 by Senator Murkowski (R-AK); Added to S.1339 - Pharmacy Benefit Manager Reform Act by amendmentContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Curb Utilization Management PoliciesLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/2630H.R. 2630 Safe Step ActThis bill requires a group health plan to establish an exception to medication step-therapy protocol in specified cases.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-H.R.2630-Safe-Step-Act.pdfIntroduced by Rep Brad Wenstrup (R-OH-2) 4/13/2023; Referred to the House Committee on Education and the WorkforceContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/762/S. 762 HCBS Access ActThe HCBS (Home- and Community-Based Services)Access Act is designed to ensure eligible older adults and people with disabilities have a real choice of care and support options between home care and institutional care. The bill would, over time, eliminate HCBS waiting lists and the need for states to repeatedly apply for HCBS waivers.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-for-S.762.pdfIntroduced by Senator Casey (D-Pa) 3/9/2023Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/1493H.R. 1493 HCBS Access ActThe HCBS (Home- and Community-Based Services) Access Act is designed to ensure eligible older adults and people with disabilities have a real choice of care and support options between home care and institutional care. The bill would, over time, eliminate HCBS waiting lists and the need for states to repeatedly apply for HCBS waivers.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-for-H.R.1493.pdfIntroduced by Rep. Dingell, Debbie [D-MI-6]; Referred to Commitees on Energy and Commerce, Education and the Workforce, and Oversight and Accountability; Referred to the subcommittee on Health in Energy and Commerce Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023CaregivingExecutive Orderhttps://www.whitehouse.gov/briefing-room/presidential-actions/2023/04/18/executive-order-on-increasing-access-to-high-quality-care-and-supporting-caregivers/Executive Order on Increasing Access to High-Quality Care and Supporting CaregiversDirectives expand access to affordable, high-quality care and assist family members and workers who care for older adultsSupporthttps://triagecancer.org/wp-content/uploads/2023/05/Organizational-Sign-On-Letter-to-President-Biden-EO-Family-Caregivers-051823-Final.pdfSigned by President Biden on 4/18/2023
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/1826H.R. 1826 PSA Screening for HIMThis bill requires private health insurance plans to cover preventive prostate cancer screenings that are not already covered under the recommendations of the U.S. Preventive Services Task Force for men with a family history of prostate cancer, without imposing any cost-sharing requirement.Supporthttps://triagecancer.org/wp-content/uploads/2023/05/FINAL_HR-1826-PCIA-Endorsement-Letter_May-2023.pdfIntroduced 3/28/2023 by Rep. Bucshon, Larry [R-IN-8]; Referred to the House Committee on House Administration.Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/1000S. 1000 Saving Access to Laboratory Services Act (SALSA)This bill modifies provisions relating to Medicare payment rates for clinical diagnostic laboratory services, including by requiring payment rates for certain widely available clinical diagnostic laboratory tests to be based on a statistical sampling of private sector rates.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Combined-TC-and-Group-Letter-S.1000.pdfIntroduced 3/28/2023 by Sen. Brown, Sherrod [D-OH]; referred to the Committee on FinanceContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/2377H.R. 2377 Saving Access to Laboratory Services Act (SALSA)This bill modifies provisions relating to Medicare payment rates for clinical diagnostic laboratory services, including by requiring payment rates for certain widely available clinical diagnostic laboratory tests to be based on a statistical sampling of private sector rates.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/TC-Letter-of-Support-for-H.R.2377.pdfIntroduced 3/29/2023 by Rep. Hudson, Richard [R-NC-9] referred to the Committee on Energy and Commerce; and Committee on Ways and Means; referred to subcommittee on Health in Energy and CommerceContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/842S. 842 Medicare and Medicaid Dental, Vision, and Hearing Benefit Act of 2023This bill provides for Medicare coverage of dental, vision, and hearing care. Coverage includes (1) routine dental cleanings and exams, basic and major dental services, emergency dental care, and dentures; (2) routine eye exams, eyeglasses, and contact lenses; and (3) routine hearing exams, hearing aids, and exams for hearing aids. With respect to such care, the bill establishes special payment rules, limitations, and coinsurance requirements. The bill also increases the Medicaid Federal Medical Assistance Percentage (i.e., federal matching rate) for dental, vision, and hearing services.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-S.842.pdfIntroduced 3/16/2023 by Sen. Casey, Robert P., Jr. [D-PA]Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/1687S. 1687 Beneficiary Enrollment Notification and Eligibility Simplification 2.0 Act or the BENES 2.0 ActThis bill requires Social Security account statements for individuals attaining ages 60 to 65 to include information about Medicare eligibility, late enrollment penalties, benefit coordination, and related resources.Statements with the required information must be mailed to individuals at least three months before they turn 65; the required information must also be mailed to those who are age 65 or over and are entitled to Social Security benefits three months before their initial Medicare enrollment period begins.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-for-S.1687.pdfIntroduced 5/18/2023 by Sen. Casey, Robert P., Jr. [D-PA]Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Research and developmentLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/2369H.R. 2369 VALID Act of 2023This act would create a regulation specific to vitro clinical tests (IVCTs), separate from the regulatory framework for other medical devices. IVCTs would be subject to a premarket review process, notably including a Technology Certification Program.SupportIntroduced 3/29/2023 by Rep. Bucshon, Larry [R-IN-8]; referred to Commitee on Energy and Commerce, and Committee on Ways and Means; referred to House Energy and Commerce Subcommittee on HealthContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Communication ConcernsLetterDue to long processing times for SS disability applications at state DDS programs, Federal DDS units are assisting with processing. There is no contact information available for these units, making it difficult for applicants and their representatives to reach them. A group of advocates has requested that SSA share contact informaiton, so that they can communicate with the unit processing applications and reconsideration requests.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/2023-June-2-Letter-to-Chicago-RCD-Federal-DDS-Contacts.pdf
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/3916H.R. 3916 The Screening for Communities to Receive Early and Equitable Needed Services (SCREENS) for Cancer Act This bill would reauthorize the National Breast and Cervical Cancer Early Detection Program (NBCCEDP) through 2028, helping make screening services more accessible to more peopleSupporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-H.R.3916.pdfIntroduced 6/7/2023 by Rep. Morelle, Joseph D. [D-NY-25]; Referred to the House Committee on Energy and Commerce.Contact your representative to ask them to support this legislation through the Komen Advocacy Action Centerhttps://p2a.co/TpFeesO
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/1840S.1840 The Screening for Communities to Receive Early and Equitable Needed Services (SCREENS) for Cancer Act This bill would reauthorize the National Breast and Cervical Cancer Early Detection Program (NBCCEDP) through 2028, helping make screening services more accessible to more peopleSupporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-S.1840.pdfIntroduced 6/7/2023 by Sen. Baldwin, Tammy [D-WI]; referred to the Committee on Health, Education, Labor, and Pensions.Contact your representative to ask them to support this legislation through the Komen Advocacy Action Centerhttps://p2a.co/TpFeesO
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/3851H.R.3851 Access to Breast Cancer Diagnosis (ABCD) ActThis bill would prohibit group health plans and health insurance issuers offering group or individual health insurance coverage from imposing cost-sharing requirements with respect to diagnostic and supplemental breast examinations.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Support-H.R.3851.pdfIntroduced 6/6/2023 by Rep. Dingell, Debbie [D-MI-6]; Referred to the Committee on Energy and Commerce, and in addition to the Committee on Ways and MeansContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/house-bill/4363H.R.4363 Comprehensive Cancer Survivorship ActThe CCSA will address gaps in survivorship care and develop desperately needed standards to improve the overall patient-centered quality of care and navigation needs that cancer survivors and their families experience.Supporthttps://wassermanschultz.house.gov/news/documentsingle.aspx?DocumentID=3029Introduced 6/23/2023 by Rep. Wasserman Schultz, Debbie [D; Referred to the Committee on Energy and Commerce, and in addition to the Committees on Ways and Means, and Education and the Workforce,-FL-25]Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/2213S.2213 Comprehensive Cancer Survivorship ActThe CCSA will address gaps in survivorship care and develop desperately needed standards to improve the overall patient-centered quality of care and navigation needs that cancer survivors and their families experience.Supporthttps://wassermanschultz.house.gov/news/documentsingle.aspx?DocumentID=3029Introduced 6/22/2023 by Sen. Klobuchar, Amy [D-MN]Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Access to CareLegislationAccelerating Kids’ Access to Care Act (AKACA) The Accelerating Kids’ Access to Care Act (AKACA) would establish a voluntary pathway available only to providers caring for children (under 21) to quickly enroll in other states’ Medicaid programsSupportExpected to be introduced in July 2023Contact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Oral Chemo ParityLegislationhttps://www.congress.gov/bill/118th-congress/senate-bill/2039S.2039 Cancer Drug Parity ActThis bill responds to the recent improvements in oral medications for cancer by preventing insurers from charging cancer patients higher copayments for those medications than for chemotherapy medicine delivered intravenouslySupportIntroduced 6/15/2023 by Sen. Smith, Tina [D-MN]; Referred to HELP CommitteeContact your representative to ask them to support this legislationhttps://www.commoncause.org/find-your-representative/
2023Health Insurance AccessProposed Regulationshttps://www.federalregister.gov/documents/2023/04/26/2023-08635/clarifying-eligibility-for-a-qualified-health-plan-through-an-exchange-advance-payments-of-the88 FR 25313 Clarifying Eligibility for a Qualified Health Plan Through an Exchange, Advance Payments of the Premium Tax Credit, Cost-Sharing Reductions, a Basic Health Program, and for Some Medicaid and Children's Health Insurance ProgramsProposal to allow DACA recipients to access health insurance on the MarketplaceSupportComment period opened 4/23/2023; comment period closed 6/23/2023
2023Medical DebtLetter from Patient Advocacy Groupshttps://kffhealthnews.org/news/article/advocates-urging-biden-medical-debt-health-costs/?utm_campaign=KHN%3A%20Daily%20Health%20Policy%20Report&utm_medium=email&_hsmi=249132270&_hsenc=p2ANqtz-9tkopwbsCqd7coFUapOqU4Oupn-WYJbel4-qON6MRBMa8Xjr-TtI-2nc9H8Ke9oAdpcyiioDzrVhWe094KFPKISJFJMQ&utm_content=249132270&utm_source=hs_emailGroups asked the Biden Administration to do more to help alleviate medical debtSupport
2023Access to CareProposed Regulationshttps://www.fightcancer.org/sites/default/files/acs_can_sign-on_letter_cy2024_medicare_pfs_nprm_09082023_final.pdf88 Fed. Reg. 52262 Groups expressing support to allow for reimbursment of navigation servicesSupportComment period closes 09/11/2023Submit comments for file code CMS–1784–Phttps://www.regulations.gov/

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State Policy and Legislative Advocacy – Current Issues

This chart includes policy and legislative opportunities in various states.

Year IntroducedStateIssueType (Letter, Regulation Comments, Legislation)Bill Number & TitleDescriptionPosition Statements & Coalition and Triage Cancer Letter of SupportStatusAdvocacy Opportunity
2023New MexicoBiomarker TestingLegislationhttps://www.nmlegis.gov/Sessions/23%20Regular/bills/house/HB0073.pdfHB73Require that health plans provide coverage for biomarker testingSupportIntroduced 1/12/2023; Signed into law 4/5/2023; effective 1/1/2024Contact your State Representative and ask them to support this billhttps://www.nmlegis.gov/Members/Find_My_Legislator
2023New YorkBiomarker TestingLegislationhttps://assembly.state.ny.us/leg/?default_fld=&leg_video=&bn=S01196&term=2023&Summary=Y&Actions=Y&Committee%26nbspVotes=Y&Floor%26nbspVotes=Y&Memo=Y&Text=YS1196/A1673Require that health plans provide coverage for biomarker testingSupporthttps://triagecancer.org/wp-content/uploads/2023/05/TC-Letters-of-support-for-NY-A-1673-and-S-1196.pdfIntroduced 1/10/2023; referred to insurance committee; passed the Senate on June 5; passed the Assembly June 8; sent to Governor Newsome for signatureContact your State Representative and ask them to support this billAssembly Member Search | New York State Assembly
2023WashingtonBiomarker TestingLegislationhttps://app.leg.wa.gov/billsummary?BillNumber=5074&Year=2023&Initiative=falseSB 5074 (Companion Bill H 1450)Require that health plans provide coverage for biomarker testingSupportIntroduced 1/9/2023; referred to Health and Long Term Care Committee; Committee Hearing 1/20/2023; passed out of committee; not scheduled for Appropriations, no additional movement expected Contact your State Representative and ask them to support this billhttps://app.leg.wa.gov/DistrictFinder/
2023IllinoisPaid LeaveLegislationhttps://www.ilga.gov/legislation/fulltext.asp?DocName=&SessionId=110&GA=102&DocTypeId=SB&DocNum=208&GAID=16&LegID=129513&SpecSess=&Session=SB208 Paid Leave for All Workers ActProvide all workers in Illinois with up to 40 hours of paid leave per year for any reasonSupportPassed by both chambers on 1/10/2023; sent to Governor for signature on 1/30/2023; signed by the Governor on 3/13/2023, effective 1/1/2024
2023GeorgiaBiomarker TestingLegislationhttps://www.legis.ga.gov/legislation/63669HB 85 Require health benefit policy coverage for biomarker testing if supported by medical and scientific evidenceSupporthttps://triagecancer.org/wp-content/uploads/2023/05/TC-support-for-GA-HB-85-Biomarker-Testing.pdfIntroduced 1/26/2023; signed by the Governor 5/2/2023; effective 7/1/2023Ask your representative to support this legislationhttps://www.legis.ga.gov/find-my-legislator
2023ColoradoBiomarker TestingLegislationhttps://leg.colorado.gov/bills/hb23-1110H23-1110Require health insurance coverage of Biomarker TestingSupportIntroduced 1/23/2023; Passed out of House Health & Insurance Commitee 2/21; in appropriations, amendments failedAsk your representative to support this legislationhttps://leg.colorado.gov/house-district-map
2023OklahomaBiomarker TestingLegislationhttp://www.oklegislature.gov/BillInfo.aspx?Bill=sb513&Session=2300SB513Require health insurance coverage of Biomarker TestingSupporthttps://triagecancer.org/wp-content/uploads/2023/06/OK-partner-letter-final.pdfIntroduced 1/23/2023; passed Senate 2/23/2023 and House 4/6/2023; signed by Governor 6/6/2023; effective 1/1/2024Ask your representative to support this legislationhttp://www.oklegislature.gov/FindMyLegislature.aspx
2023MarylandBiomarker TestingLegislationhttps://mgaleg.maryland.gov/mgawebsite/Legislation/Details/hb1217?ys=2023RSHB1217/SB805Require health insurance coverage of Biomarker TestingSupportIntroduced 2/10/2013; Passed 3/27/2023; Signed by the Governor 5/3/2023; effective 1/1/2024
2023IllinoisPaid Family LeaveLegislationhttps://www.ilga.gov/legislation/103/HB/10300HB1006.htmHB1006 Paid Family Leave ActRequire employers to provide 6 weeks of paid leave to provide care for a family memberSupportIntroduced 1/12/2023Ask your representative to support this legislationhttps://elections.il.gov/ElectionOperations/DistrictLocator/DistrictOfficialSearchByAddress.aspx
2023ConnecticutBiomarker TestingLegislationhttps://cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2023&bill_num=976SB 976 AN ACT CONCERNING HEALTH COVERAGE MANDATES FOR CERTAIN HEALTH CONDITIONSRequire Commercial Health Insurance plans to cover biomarker testing.SupportReferred to Committee on 2/8/2023; Committee Hearing 2/14/2023Ask your representative to support this legislationhttps://cga.ct.gov/asp/menu/cgafindleg.asp
2023ConnecticutBiomarker TestingLegislationhttps://cga.ct.gov/asp/cgabillstatus/cgabillstatus.asp?selBillType=Bill&which_year=2023&bill_num=6628HB 6628 AN ACT CONCERNING MEDICAID COVERAGE OF BIOMARKER TESTINGRequire Medicaid to cover Biomarker TestingSupportIntroduced 1/19/2023; amended and sent to AppropriationsAsk your representative to support this legislationhttps://cga.ct.gov/asp/menu/cgafindleg.asp
2023KentuckyBiomarker TestingLegislationhttps://apps.legislature.ky.gov/record/23rs/hb180.htmlHB 180 AN ACT relating to coverage for biomarker testing.Require Health Insurance coverage of Biomarker TestingSupportIntroduced 2/9/2023; signed by the Governor on 3/23/2023; effective 1/1/2024Ask your representative to support this legislationhttps://apps.legislature.ky.gov/findyourlegislator/findyourlegislator.html
2023FloridaBiomarker TestingLegislationhttps://www.flsenate.gov/Session/Bill/2023/805HB 805: Health Insurance Coverage for Biomarker TestingRequire Health Insurance coverage of Biomarker TestingSupportIntroduced 2/14/2023; Action unlikely this sessionAsk your representative to support this legislationhttps://www.flsenate.gov/Senators/Find
2023FloridaBiomarker TestingLegislationhttps://www.flsenate.gov/Session/Bill/2023/1218/ByCategorySB 1218: Biomarker TestingRequire Medicaid to cover Biomarker TestingSupportIntroduced 3/7/2023; Action unlikely this sessionAsk your representative to support this legislationhttps://www.flsenate.gov/Senators/Find
2023ArkansasBiomarker TestingLegislationhttps://www.arkleg.state.ar.us/Bills/Detail?id=hb1121&ddBienniumSession=2023%2F2023RHB 1121: Concerning Coverage For Biomarker Testing For Early Detection And Management For Cancer Diagnoses.Require Health Insurance coverage of Biomarker Testing for cancer diagnosesSupportIntroduced 1/12/2023; singed into law on 4/4/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023MinnesotaBiomarker TestingLegislationhttps://www.revisor.mn.gov/bills/bill.php?b=Senate&f=SF1948&ssn=0&y=2023S1948/HF1978Require Health Insurance coverage of Biomarker testingSupportIntroduced 2/20/2023Ask your representative to support this legislationhttps://www.leg.mn.gov/
2023NevadaBiomarker TestingLegislationhttps://www.leg.state.nv.us/App/NELIS/REL/82nd2023/Bill/9818/OverviewAB155As amended, this bill would require insurance coverage of biomarker testing medically necessary for the ongoing monitoring of a cancer diagnosis.Oppose as amendedhttps://triagecancer.org/wp-content/uploads/2023/06/NV-AB155-opposed_senate-finance.pdfIntroduced 2/13/2023; passed out of to commmitee on Assembly Health & Human Services Committee; passed the Assembly 6/2/23; passed the Senate 6/5/23; signed by the Governor 6/12/2023; Parts effective 6/13/2023, 7/1/2023, and 10/1/2023Ask your representative to support this legislationhttps://www.leg.state.nv.us/whosmylegislator/
2023Ohiobiomarker TestingLegislationhttps://ohiohouse.gov/legislation/135/hb24HB 24: to require health benefit plan and Medicaid program coverage of biomarker testingRequire health insurance coverage of Biomarker testingSupportIntroduced 2/15/2023; referred to committee; 3rd hearing in committee 6/7/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023TexasBiomarker TestingLegislationhttps://capitol.texas.gov/BillLookup/History.aspx?LegSess=88R&Bill=SB989SB 989: Relating to health benefit plan coverage for certain biomarker testingRequire health insurance coverage of Biomarker testingSupportFiled 2/16/2023; Passed the Senate 4/12/2023; referred to House committee; Passed both House and Senate; signed by Governor 5/29/2023; effective 9/1/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023TexasBiomarker TestingLegislationhttps://capitol.texas.gov/BillLookup/Actions.aspx?LegSess=88R&Bill=HB3188HB3188: Relating to health benefit plan coverage for certain biomarker testingRequire health insurance coverage of Biomarker testingSupporthttps://triagecancer.org/wp-content/uploads/2023/06/TX-SB989-partner-letter_final.pdfFiled 3/1/2023; pending in committeeAsk your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023CaliforniaInsurance CoverageLegislationhttps://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202320240AB632AB 632 Health care coverage: prostate cancer screeningWould allow patients to receive prostate cancer screening without a deductible, copayment, or coinsurance for prostate cancer screening forthose at risk for prostate cancer.Supporthttps://triagecancer.org/wp-content/uploads/2023/03/Group-Letter-in-Support-of-AB-632.pdfIntroduced 2/9/2023; referred to committee on health; passed by Assembly; sent to Senate Commitee on Health, amended and passed out of Committee on Health; referred to Committee on Appropriations 6/15/2023; sent to suspense file 6/26/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023CaliforniaInsurance CoverageBudget Change Proposalhttps://www.dhcs.ca.gov/Documents/Budget-Highlights/DHCS-FY-2023-24-GB-Highlights.pdf2023-24 Governor’s Budget Department of Health Care Services HighlightsThe budget change would add funding for positions to support the implementation of the Cancer Care Equity Act, which was passed in 2022, and allows Medi-Cal patients with a complex cancer diagnosis the ability to request a referral to an NCI (National Cancer Institute) Designated Comprehensive Cancer Center.Supporthttps://triagecancer.org/wp-content/uploads/2023/03/SB-987-Budget-item-support-ltr3-5-23.pdf
2023WashingtonFertility PreservationLegislationhttps://app.leg.wa.gov/billsummary?BillNumber=1151&Year=2023&Chamber=HouseSHB 1151 Mandating coverage for fertility servicesRequires large group health plans, including health plans offered to public employees, to cover the diagnosis of infertility, treatment for infertility, and standard fertility preservation services.Support - noted support for the legislative record in the Health & Long Term Care CommitteeIntroduced 1/9/2023: Passed out of the House on 3/7/2023; in Senate Committee on Health & Long Term Care; returned to House Rules Committee 4/23/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023District of ColumbiaInsurance CoverageLegislationhttps://lims.dccouncil.gov/Legislation/B25-0229 B25-0229, The Cost-Free Coverage for Prostate Cancer Screening Amendment Act of 2023The bill would require insurers to provide coverage for prostate cancer screening in accordance with evidence-based guidelines, to include no less than one prostate-specific antigen test and digital rectal exam per year. Insurers would also be prohibited from imposing any deductible, coinsurance, copayment, or other cost-sharing requirement when a patient receives a prostate-specific antigen test and digital rectal exam.SupportIntroduced 3/20/2023; Referred to Committee on Business and Economic Development 4/4/2023; Notice of Intent to Act on B25-0229 Published in the District of Columbia RegisterAsk your councilmember to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023CaliforniaBiomarker TestingLegislationhttps://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240SB496SB496 Biomarker TestingThis bill would require a health care service plan contract or health insurance policy issued, amended, or renewed on or after July 1, 2024, to provide coverage for medically necessary biomarker testing, as prescribed, including whole genome sequencing, for the purposes of diagnosis, treatment, appropriate management, or ongoing monitoring of an enrollee’s or insured’s disease or condition to guide treatment decisions if the test is supported by medical and scientific evidence, as prescribed. The bill would specify that it does not require a health care service plan or health insurer to cover biomarker testing for screening purposes unless otherwise required by law.SupportIntroduced 2/14/2023; Passed out of Committee on Health; in Appropriations, passed 5/18/23; passed Senate floor vote 5/24/23; referred to House committee on HealthAsk your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023ColoradoBiomarker TestingLegislationhttp://leg.colorado.gov/sites/default/files/documents/2023A/bills/2023a_1110_01.pdfHB 23-1110The bill requires all individual and group health benefit plans to provide coverage for biomarker testing if the testing is supported by medical and scientific evidence. Biomarker testing is defined as an analysis of a patient's tissue, blood, or other biospecimen for the presence of an indicator of normal biological processes, pathogenic processes, or pharmacologic responses to a specific therapeutic intervention.The bill requires the commissioner of insurance to implement biomarker testing coverage for all individual and group health benefit plans issued or renewed on or after January 1, 2025. The bill requires expedited prior authorization. It would cover biomarked testing under state assistance programs starting July 1, 2024.SupportIntroducted 1/23/2023; Amended in Health and Insurance Committee and sent to Appropriations for study, no further action likely this sessionAsk your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023MassachussettsBiomarker TestingLegislationhttps://malegislature.gov/Bills/193/S689SB 689This bill requires that biomarker testing be covered for the purposes of diagnosis, treatment, appropriate management, or ongoing monitoring of an enrollee’s disease or condition when the test is supported by medical and scientific evidenceSupporthttps://triagecancer.org/wp-content/uploads/2023/06/MA-SB689-Triage-Cancer-Letter-of-Support.pdfIntroduced 2/16/2023; Committee scheduled hearing 5/2/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023MassachussettsBiomarker TestingLegislationhttps://malegislature.gov/Bills/193/S689HB 1074This bill requires that biomarker testing be covered for the purposes of diagnosis, treatment, appropriate management, or ongoing monitoring of an enrollee’s disease or condition when the test is supported by medical and scientific evidenceSupporthttps://triagecancer.org/wp-content/uploads/2023/06/MA-HB1074-Triage-Cancer-Letter-of-Support.pdfIntroduced 2/16/2023; Committee scheduled hearing 5/2/2023Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023MaineBiomarker TestingLegislationhttps://legislature.maine.gov/LawMakerWeb/dockets.asp?ID=280088559LD 1577: An Act to Require Health Insurance Coverage for Biomarker TestingThis bill requires that biomarker testing be covered for the purposes of diagnosis, treatment, appropriate management, or ongoing monitoring of an enrollee’s disease or condition when the test is supported by medical and scientific evidenceSupporthttps://triagecancer.org/wp-content/uploads/2023/06/ME-LD-1577-Triage-Cancer-Letter-of-Support.pdfIntroduced 4/11/2023; sent to Health CommitteesAsk your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023CaliforniaInsurance CoverageLegislationhttps://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240AB236AB-236 Health care coverage: provider directoriesThis bill will eliminate "ghost networks" by enforcing requirements that health insurance companies update their provder directories annually.Supporthttps://triagecancer.org/wp-content/uploads/2023/06/TC-Letter-of-Support-CA-AB-236.pdfIntroduced 1/13/2023; amended 2/14/2023, amended 3/20/2023; in committee on appropriationsAsk your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023CaliforniaInsurance CoverageLegislationhttps://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202320240AB4AB-4 Covered California; expansionThis bill would allow individuals to purchase health insurance on the Covered California marketplace, regardless of their immigration statusSupporthttps://triagecancer.org/wp-content/uploads/2023/06/TC-Letter-of-Support-AB-4.pdfSubmitted for Introduction 12/5/2022; amended 3/9/2023; revised 4/12/2023; in committee on appropriations; passed Assembly 5/25/2023; in Senate Committee on Health, amended 6/20 & 6/27Ask your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/
2023MainePaid Family and Medical LeaveLegislationhttps://legislature.maine.gov/bills/display_ps.asp?paper=SP0800&snum=131&PID=0LD 1964 An Act to Implement the Recommendations of the Commission to Develop a Paid Family and Medical Leave Benefits ProgramThis bill will create a Paid Family and Medical Leave program for Maine workers. This provides extended paid time away from work to take care of oneself or a family member.Supporthttps://triagecancer.org/wp-content/uploads/2023/05/Triage-Cancer-Support-for-Maine-LD-1964.pdfIntroduced ; Sent to Committee on Labor and Housing on 5/18/2023; Scheduled for a hearing on Thursday, May 25, 2023The Maine Paid Family Leave Coalition provides opportunities for actionhttps://mainefamilyleave.org/takeaction
2023MinnesotaFertility PreservationLegislationhttps://www.revisor.mn.gov/bills/bill.php?f=SF1704&y=2023&ssn=0&b=senateSF 1704 Coverage requirement for infertility treatmentSupporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Suppor-for-MN-SF-1704.pdfIntroduced 2/16/2023; Committee recommended amendment 3/8/2023Ask your representative to support this legislation using a letter from Resolvehttps://p2a.co/n5eiuyt
2023MinnesotaFertility PreservationLegislationhttps://www.revisor.mn.gov/bills/bill.php?f=HF1658&y=2023&ssn=0&b=houseHF1658Coverage requirement for infertility treatmentSupporthttps://triagecancer.org/wp-content/uploads/2023/06/Triage-Cancer-Letter-of-Suppor-for-MN-HF1658.pdfIntroduced 02/13/2023Ask your representative to support this legislation using a letter from Resolvehttps://p2a.co/n5eiuyt
2023IllinoisPaid LeaveLegislationhttps://www.ilga.gov/legislation/BillStatus.asp?DocNum=1234&GAID=17&DocTypeID=SB&SessionID=112&GA=103SB 1234The Family and Medical Leave Insurance Act creates a state-run insurance program that allows Illinois workers to use up to 26 weeks of job-protected leave a year:supporthttps://www.iltimetocare.org/homeIntroduced 2/2/2023, sent to Labor Committee, 3/10/2023 Rule 3-9(a) / Re-referred to AssignmentsAsk your representative to support this legislation through the Time to Care Coalitionhttps://www.iltimetocare.org/takeaction
2023IllinoisPaid LeaveLegislationhttps://www.ilga.gov/legislation/billstatus.asp?DocNum=1530&GAID=17&GA=103&DocTypeID=HB&LegID=143835&SessionID=112HB 1530The Family and Medical Leave Insurance Act creates a state-run insurance program that allows Illinois workers to use up to 26 weeks of job-protected leave a year:supporthttps://www.iltimetocare.org/homeIntroduced 1/27/2023; 1/31/2023 referred to Rules Committee; 3/8/2023 To Job Growth & Workforce Development Subcommittee; 3/10/2023 Rule 19(a) / Re-referred to Rules CommitteeAsk your representative to support this legislationhttps://www.commoncause.org/find-your-representative/addr/

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Federal/State Policy and Legislative Advocacy – Past Issues

This chart includes past policy and legislative opportunities at the federal and state levels.

Federal / StateYear IntroducedIssueType (Letter, Regulation Comments, Legislation)Bill Number & TitleDescriptionPosition Statements & Coalition and Triage Cancer Letter of SupportStatusLearn more
Federal2020Additional Direction on Civil Rights Law and Emergency State Guidance During COVID-19 from HHS’s Office for Civil Rights (OCR)Letterhttps://www.hhs.gov/about/news/2020/03/28/ocr-issues-bulletin-on-civil-rights-laws-and-hipaa-flexibilities-that-apply-during-the-covid-19-emergency.htmlAdditional direction from Department of Health and Human Service’s (HHS’s) Office for Civil Rights (OCR) would make clear that state emergency triage guidance that would limit or restrict access to lifesaving care for certain patients with underlying conditions due to the COVID-19 pandemic violates federal antidiscrimination laws.Supporthttps://triagecancer.org/wp-content/uploads/2020/05/Emergency-Triage-Letter-to-OCR-5.20.20-Final.pdfNo additional guidance on civil rights and states' emergency response issued by the OCR.https://www.hhs.gov/sites/default/files/ocr-bulletin-3-28-20.pdf
Federal2020Administrative Changes to HHS to Increase Patient Access During COVID-19Regulationhttps://www.cms.gov/files/document/summary-covid-19-emergency-declaration-waivers.pdfJoined the ACS CAN to urge HHS Secretary Alex Azar to ensure plan networks do not hinder access to Care, waive facility-specific pre-certification and prior authorization, provide considerations for home infusion services, allow Medicaid patients to recieve a 90-day supply of necessary medications, and clarify improvements to telehealth services. Supporthttps://triagecancer.org/wp-content/uploads/2020/05/Letter-to-HHS-Sec-Azar-on-Covid-Fixes-for-Cancer-Patients-FINAL.pdfUpdated CMS Blanket Waivers issued April 8, 2021 provide additional guidance and protections for patients and providers. https://www.medicare.gov/what-medicare-covers/getting-prescriptions-in-disaster-or-emergency
Federal2020Advancing Policies Supporting the Role of Oral Health in Fighting COVID-19Letterhttps://www.cdc.gov/oralhealth/conditions/index.htmlProposed Legislation: Speaker Pelosi and Leaders McConnell, McCarthy, and Schumer to advancing policies promote oral health in addressing the COVID-19 pandemic would help prevent worstening long-standing disparities in oral health.Supporthttps://triagecancer.org/wp-content/uploads/2020/05/OPENLetterSignedF-Medicaid-HEROS-Act.pdfAction is still needed to address America's Oral Health Crisis. https://www.oralhealth.network/home
Federal2020Allowing Patients with Medicare Part D to use Drug Discount Cards through the Novel Coronavirus (COVID19) PandemicRegulationhttps://www.medicare.gov/drug-coverage-part-d/what-medicare-part-d-drug-plans-cover/drug-plan-coverage-rulesRescinding the ban on the use of copay cards in the Medicare Part D program through the Novel Coronavirus (COVID19) pandemic would facilitate access to and adherence with needed medicines. It would also improve beneficiaries’ overall ability to manage critical and pressing health-related and household expenses.Supporthttps://triagecancer.org/wp-content/uploads/2020/08/Patient-Group-Letter-to-OIG-on-Medicare-Part-D-Copay-Coupon-Assitance-FINAL-8.24.20.pdfThe ban was not rescinded through the Novel Coronavirus (COVID19) pandemic.https://triagecancer.org/medicare-part-d
Federal2020Biden-Harris Transition Team Prioritizing Health and Healthcare Letterhttps://www.whitehouse.gov/priorities/The Biden-Harris Transition Team taking action to end the COVID-19 pandemic, address racial injustices in healthcare, pursue affordable healthcare for all Americans, and lower health care costs will be key to turning the tide of the pandemic, restoring the economy, and saving lives.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/Letter-from-320-organizations-to-urge-Biden-Harris-transition-team-to-prioritize-health-and-healthcare.pdfThe Biden-Harris administration's efforts to end the COVID-19 pandemic and address inequities in and access to healthcare are ongoing. However, they describe ending COVID-19, achieveing racial equity, and protecting American's access to healthcare as policy priorities. https://familiesusa.org/resources/over-320-organizations-urge-biden-harris-transition-team-to-prioritize-health-and-health-care/
Federal2018Cancer Care Planning and Communications Act of 2018BillH.R.5160 - Cancer Care Planning and Communications Act of 2018https://www.congress.gov/bill/115th-congress/house-bill/5160/text?format=txtProposed Legislation: The CCPC Act would establish a new Medicare service for cancer care planning.Supporthttps://canceradvocacy.org/wp-content/uploads/2018/02/NCCS-CCPC-Fact-Sheet.pdfThis bill died in congress after being introduced on March 5, 2018.https://triagecancer.org/tag/cancer-care-planning-and-communications-act
Federal2019Cancer Drug Parity ActBillH.R. 1730/S. 741 - Cancer Drug Parity Act of 2019https://www.congress.gov/bill/116th-congress/senate-bill/741/all-infoProposed Legislation: The Cancer Drug Parity Act would reduce healthcare costs for cancer patients by requiring insurance companies to cover orally administered cancer drugs in the same way as intravenous (IV) chemotherapy. Supporthttps://triagecancer.org/wp-content/uploads/2019/12/Triage-Cancer-Letter-of-Support.pdfThe Cancer Drug Parity Act (H.R. 1730/S. 741) bill died after being referred to the Committee on Health, Education, Labor, and Pensions. https://triagecancer.org/cancer-drug-parity-act-support
Federal2019Cancer Drug Parity Act and Other Measures to Increase Access to Care and PPE during the Novel Coronavirus PandemicBillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Proposed Legislation: The Cancer Drug Parity Act, as well as other measures to increase access to care during the Novel Coronavirus Pandemic including increased funding for state Medicaid and the production of Personal Protective Equiptment (PPE), would ensure continuity of care for people with cancerand survivors.Supporthttps://triagecancer.org/wp-content/uploads/2020/08/ACS-CAN-Cancer-Community-Letter-July-2020.pdfThe Cancer Drug Parity Act (H.R. 1730/S. 741) bill died after being referred to the Committee on Health, Education, Labor, and Pensions. However, other recommendations were honored in subsequent pandemic relief bills. https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2021Changes to CMMI Part D Payment Modernization Models on Jan 18, 2019Regulationhttps://www.cms.gov/newsroom/fact-sheets/part-d-payment-modernization-model-calendar-year-cy-2022-fact-sheetThe Trump Administration's changes to CMMI Part D Payment Models would result in Part D plans in this model no longer having to cover “all or substantially all” drugs within five of the six protected classes (anticonvulsants, immunosuppressants, antidepressants, antipsychotics, and antineoplastics).Opposehttps://triagecancer.org/wp-content/uploads/2021/02/Six-Protected-Classes-Patient-and-Provider-Letter-Final.pdfThe Biden Administration released an updated Request for Applications (RFA) for the Part D Payment Modernization (PDM) Model for CY 2022 eliminating changes proposed during the previous administration.https://innovation.cms.gov/innovation-models/part-d-payment-modernization-model
Federal2019Clinical Treatment ActBillH.R.913/S.4742 - The Clinical Treatment Acthttps://www.congress.gov/bill/116th-congress/house-bill/913Proposed Legislation: This bill would ensure states cover routine care costs of participation in an approved clinical trial for Medicaid enrollees with life-threatening conditions. Supporthttps://triagecancer.org/wp-content/uploads/2019/02/HR-913-Community-Support-Letter.pdfThe Clinical Treatment Act (H.R.913/S.4742) bill died after being introduced to the House. https://triagecancer.org/clinical-treatment-act-advocacy
Federal2019Coverage for Germline and Somatic Tumor NGS-based testing for Early-Stage Cancer Patients with Medicare Regulationhttps://www.cms.gov/medicare-coverage-database/details/nca-decision-memo.aspx?NCAId=29663 organizations expressed serious concerns that the overly broad interpretation of national coverage determination for next generation sequencing will restrict patient access to medically necessary and relevant clinical tests and adversely impact cancer care and outcomes.Supporthttps://triagecancer.org/wp-content/uploads/2019/02/Group_Stakeholder_Letter_NGSNCD-FINAL-1-31-2019.pdfA Jan. 27, 2020 decision memo from the Centers for Medicare & Medicaid Services (CMS) announced that Medicare will cover next-generation sequencing (NGS) tests for qualified patients with any stage of female breast or ovarian cancer to determine if they have hereditary cancer-associated mutations. https://www.cms.gov/medicare-coverage-database/details/ncd-details.aspx?NCDId=372
Federal2021Designating May as "National Cancer Research Month"BillS.Res.253 - A resolution supporting the designation of May 2021 as "National Cancer Research Month"https://www.congress.gov/bill/117th-congress/senate-resolution/253/textRecognizing May as National Cancer Research Month celebrates and encourages our nation's continued investment in cancer research, which is vital to those diagnosed and their loved ones. Supporthttps://triagecancer.org/NCRM-Resolution-Support-LetterAgreed to in Senate on 06/07/2021 https://www.aacr.org/patients-caregivers/awareness-months/national-cancer-research-month/
Federal2019Emergency Funding For Critical Nonprofits During COVID-19BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Legislation: Providing emergency funding would assure the stalled research supported by non-profit organizations, voluntary health associations, science societies, and foundations, can resume once researchers return to their labs. Supporthttps://triagecancer.org/wp-content/uploads/2020/05/Sign-on-letter-research-protections-for-non-profits-FINAL-5620.pdfAdditional funding provided in the "Consolidated Appropriations Act, 2021’’ enacted December 21, 2020. https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2021Enforcing the CDC Moratorium on Evictions During COVID-19Regulationhttps://www.cdc.gov/coronavirus/2019-ncov/covid-eviction-declaration.htmlCDC Director Dr. Rochelle Walensky determined that the evictioning tenants could be detrimental to public health control measures to slow the spread of COVID-19.Supporthttps://triagecancer.org/wp-content/uploads/2021/03/Moratorium-letter-to-CFPBFTC-03.03.21-w-sign_ons.pdfThe CDC called for enforcement and extended moratorium until June 30, 2021. https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2019Equitable Access to Testing and Treatment for COVID-19BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Legislation: Providing equitable access to testing and treatment for COVID-19; equip states and localities with sufficient financial support to combat the crisis; provide protection and support to the health care workforce and others on the frontlines of the pandemic; assure access and capacity in the health system; and protect against high and unexpected health care costs would help protect American's overall well-being. Supporthttps://triagecancer.org/wp-content/uploads/2020/04/FUSA-COVID-response-recs-sign-on-4.22.20-final.pdfMuch of these requests were honored in additional action taken to combat the COVID-19 pandemic.https://triagecancer.org/does-the-latest-covid-bill-signed-by-the-president-help-you
Federal2019Funding for the Kidney CancerResearch Program for Fiscal Year 2021BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133 This bill requires the Department of Defense to provide $50 million in research funding to develop innovative treatment options for kidney and renal pelvic cancer. Supporthttps://triagecancer.org/wp-content/uploads/2020/12/12.08.2020-CR-Jt.-Approp-Ltr-KCRP-Request-for-FY-21.pdfIn FY21 KCRP received an additional appropriation of $50M to conduct kidney cancer research.https://cdmrp.army.mil/kcrp/default
Federal2019Funding for the National Institutes of Health (NIH) in FY 2020Letterhttps://www.appropriations.senate.gov/imo/media/doc/H1865PLT_44.PDFLegislation: One Voice Against Cancer (OVAC), a coalition of public interest groups representing millions of cancer researchers, physicians and nurses, patients, survivors and their families, urges congress to raise the FY 2020 budget caps for cancer research, treatment, prevention and detection.Supporthttps://triagecancer.org/wp-content/uploads/2019/02/OVAC-Budget-Cap-Letter-February-2019.pdfNIH received $41.68 billion in funding in FY 2020, an increase of $2.6 billion from FY 2019. https://www.nia.nih.gov/research/blog/2018/10/we-have-budget-fy-2019#:~:text=The%20total%20NIH%20appropriation%20for,Alzheimer's%20and%20related%20dementias%20research.
Federal2019Funding Increases for Cancer Research in FY 2021BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133Funding for (NIH) and (NCI) in FY2021 would be used to ensure that cancer research and clinical trials impacted by the COVID-19 pandemic can be restarted when safe to do so and for research related to COVID-19.Supporthttps://triagecancer.org/wp-content/uploads/2020/11/FY2021_OVAC-Letter-Requesting-Funding-increases-for-cancer-research-and-prevention-11.24.2020.pdfFY 2021 included a $1.25 billion budget increase for NIH, and a nearly $120 million increase for the NCI. https://www.nih.gov/about-nih/what-we-do/nih-almanac/national-cancer-institute-nci
Federal2019Funding the DoD's Congressionally Directed Medical Research Program and its PRCRP in FY 2021BillH.R.133 - Consolidated Appropriations Act, 2021https://www.congress.gov/bill/116th-congress/house-bill/133 Funding for the Department of Defense’s (DoD) Congressionally Directed Medical Research Program and its Peer-Reviewed Cancer Research Program (PRCRP) in Fiscal Year 2021 (FY 2021) advances high-impact research for cancer prevention, detection, treatment, and survivorship to support service members, their families, and the American public at-large.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/ACS-CAN-FY-2021-CDMRP-letter-FINAL.pdfCongress appropriated $115,000,000 for PRCRP in FY 2021. https://cdmrp.army.mil/prcrp/default
State 2021Health Insurance Coverage for Genetic TestingBillLA SB 84http://www.legis.la.gov/Legis/BillInfo.aspx?i=240103This act facilitates cancer patients' access to genetic testing by requiring health plans to provide coverage for these services. Supporthttps://triagecancer.org/LA-SB-84-Letter-of-SupportEffective date 1/1/2022
Federal2019Henrietta Lacks Enhancing Cancer Research Act of 2019BillH.R.1966/S. 946 - The Henrietta Lacks Enhancing Cancer Research Act of 2019https://www.congress.gov/116/plaws/publ291/PLAW-116publ291.pdfLegislation: By analyzing the federal policies that directly impact participation rates in cancer clinical trials and then recommending potential policy changes across federal agencies, this act works to reduce barriers that keep patients from enrolling in clinical trials.Supporthttps://triagecancer.org/wp-content/uploads/2019/06/S.-946-Endorsement-Letter-FINAL.pdfThis act became a public law on January 5, 2021. https://www.congress.gov/116/plaws/publ291/PLAW-116publ291.pdf
Federal2021Increasing Access and Affordability of Health Care in American Rescue Plan Act of 2021BillH.R.1319 - American Rescue Plan Act of 2021https://www.congress.gov/bill/117th-congress/house-bill/1319/textProvisions in the American Rescue plan work to improve health coverage affordability in the private market, build on the foundation of provisions in the existing health law and ensure access to vaccines, and focus on the needs of communities of color.Supporthttps://triagecancer.org/wp-content/uploads/2021/02/COVID-19ReliefSupportLtr_021821_FINAL_830PM.pdfEnacted March 11, 2021https://triagecancer.org/news-you-need-about-tax-time-more
Federal2019Medical Expense Savings ActBillH.R.2073/S.110- Medical Expense Savings Acthttps://www.congress.gov/bill/116th-congress/senate-bill/110Proposed Legislation: This act would make permanent the 7.5 percent threshold for the medical expense deduction. Tax relief in this area can provide needed resources, especially important to middle income seniors with high medical costs.Supporthttps://triagecancer.org/wp-content/uploads/2020/12/FINAL_Med_Ex_Coalition_12.14.2020.pdfThe Medical Expense Savings Act (H.R.2073/S.110) died after being referred to the Committee on Finance.https://www.congress.gov/116/bills/s110/BILLS-116s110is.pdf
Federal2019Medicare National Coverage Determinations (NCD)Regulationhttps://www.cms.gov/medicare-coverage-database/details/nca-details.aspx?NCAId=296&bc=AIAAAAAACAAAAAAA&Legislation: The bill will change the Medicare statutes to allow for germline testing of affected and unaffected carriers who meet personal and/or family history criteria (as defined by NCCN). It would also cover evidence-based increased screening and risk-reducing surgeries.Supporthttps://triagecancer.org/wp-content/uploads/2019/06/NGS-NCD-Comments_90.2_May2019-FINAL.pdfThe Centers for Medicare & Medicaid Services (CMS) covers Next Generation Sequencing (NGS) as a diagnostic laboratory test when performed in a CLIA-certified laboratory and ordered by a treating physician for qualified patients. https://www.facingourrisk.org/privacy-policy-legal/advocacy/medicare-finalizes-genetic-testing-policy
State2020Paid Sick Leave for New YorkersBillNew York Assembly Bill A9506Bhttps://www.nysenate.gov/legislation/bills/2019/a9506Building on protections created during the COVID-19 pandemic, this bill guarantees most New York residents one hour of paid sick leave for every 30 hours worked. SupportSigned by the Governor 04/03/2021, effective 01/01/2021https://www.ny.gov/programs/new-york-paid-sick-leave
Federal2021Requesting Prioritization of Cancer Patients for COVID-19 VaccinationsRegulationhttps://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/underlying-conditions.htmlPatients with active cancer and survivors of cancer must be provided priority access to a lifesaving COVID-19 vaccine.Supporthttps://triagecancer.org/wp-content/uploads/2021/02/SignOnLetter-re-COVID-19-Vaccine-Prioritization-for-Cancer-Patients_FINAL.pdfThe CDC prioritized cancer patients in groups 4 and 6 for COVID-19 vaccination. https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/specific-groups.html
Federal2020Transparency in Denials of CoverageRegulation85 FR 72158https://www.federalregister.gov/documents/2020/11/12/2020-24591/transparency-in-coverageA regulation issued by the Trump Administration requires all non-grandfathered plans, including employer-sponsored plans, to report billed charges and negotiated allowed amounts for covered medical care, starting in 2023. But, Triage Cancer recommends that Health and Human Services (HHS) audit insurers' claim denials, and investigate their efforts to add providers to their networks. SupportEffective Date: 01/11/2021https://www.regulations.gov/document/IRS-2020-0044-0001
Federal2021Access to Screening and Treatment for Prostate Cancer Among Underserved and Minority GroupsBillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textProviding funding to address inequity and access to screening and treatment for prostate cancer in FY 2022 would further lower mortality rates and address concerning increases in late-stage prostate cancer disease.Supporthttps://triagecancer.org/wp-content/uploads/2021/01/FoPCCC-Transition-Letter-FINAL.pdfPassed in House on 02/05/2021
Federal2021Restore robust funding to Consumer Assistance Program Funding for FY22BillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textConsumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.Supporthttps://triagecancer.org/wp-content/uploads/2021/04/042621-CAP-Grant-Support-Letter-w-Logos-FINAL.pdfPassed in House on 2/5/2021
Federal2021Allocating $10 Billion in Funding for NIH in FY22BillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textProviding the National Institutes of Health (NIH) with at least $10 billion would help mitigate delays in cancer research caused by the COVID-19 pandemic. Supporthttps://triagecancer.org/wp-content/uploads/2021/12/Ad-Hoc-Group-Letter-Urging-Swift-Passage-of-FY22-Appropriations_Final.pdfPassed 2/5/2021 with NIH Budget Increase of $2B
Federal2021Comments in Response to Request for Information Regarding Reporting on PharmacyBenefits and Prescription Drug CostsCommentshttps://www.federalregister.gov/documents/2021/06/23/2021-13138/request-for-information-regarding-reporting-on-pharmacy-benefits-and-prescription-drug-costsOur recommendations to Secretary of the U.S. Department of Health and Human Services (HHS), Xavier Becerra, include: requiring health plans to report on the treatment and accounting of copay assistance, collecting information on rebates and pharmacy benefit managers (PBMs), and carefully considering the impact of costs associated with prescription drugs on patients, their families, and society as a whole. Supporthttps://triagecancer.org/Letter-to-HHS-On-Standard-Plan-OptionsSecretary Becerra responded to our letter on June 28th, 2021.
Federal2021Expanding MedicareBillS.Con.Res.14https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/14The Senate's proposed budget would lower patient spending and increase patient's access to care by expanding Medicare. This includes adding dental, vision, and hearing coverage, as well as expanding home and community-based services. This bill would also alleviate the financial crisis caused by COVID-19 by making increased child tax credit and cost-share subsidies from the American Rescue Plan permanent.Supporthttps://triagecancer.org/Senate-Budget-Resolution-SupportAgreed in House on 08/24/2021
Federal2021Improving Patient Drug Affordability through Standardized Benefit PlansRegulationCMS-9906-Phttps://www.federalregister.gov/documents/2021/07/01/2021-13993/patient-protection-and-affordable-care-act-updating-payment-parameters-section-1332-waiverWe support the Centers for Medicare & Medicaid Services and the Department of the Treasury's proposed rule to offer standardized options for qualified health plans beginning in 2023, assisting patients better afford the prescription drugs and health services. We also believe that copay assistance should count towards their deductible and out-of-pocket maximum. We urge HHS to amend the Notice of Payment Parameters Rule for 2022 to prohibit the practice of not allowing such copay assistance to count by insurers.Supporthttps://triagecancer.org/Letter-Standardized-Benefit-PlansFinal Rule Published 9/27/2021; Effective 11/26/2021https://www.federalregister.gov/documents/2021/09/27/2021-20509/patient-protection-and-affordable-care-act-updating-payment-parameters-section-1332-waiver
State- CA2021Health Insurance Coverage for Biomarker TestingBillSB 535https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220SB535By requiring California health care plans to cover biomarker testing, this bill facilitates patient access to testing and reduces associated costs. This legislation will further protect patients’ access to care by prohibiting plans from requiring preauthorization for these services, eliminating pre-authorization for biomarker testing for patients with advanced or metastatic cancers. Supporthttps://triagecancer.org/CA-SB-535-Letter-of-SupportPassed both chambers, signed into law on 10/6/2021https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220SB535
State- CA2021Cancer Medication Recycling ActBillSB-310 - The Cancer Medication Recycling Acthttps://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB310This legislation would facilitate patient access to oral cancer medications by creating an avenue for providers to donate unused medications to patients in need, increasing the likelihood that patients will correctly administer these life-saving medications.Supporthttps://triagecancer.org/CA-SB-310-Letter-of-SupportSigned into law on 10/5/2021https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB310
State- CA2021Health Insurance Coverage for Colorectal Cancer TestingBillAB 342https://leginfo.legislature.ca.gov/faces/billNavClient.xhtml?bill_id=202120220AB342This legislation would facilitate patient access to colorectal cancer (CRC) testing by requiring insurance companies and health plans to provide coverage for follow-up tests without cost-sharing, reducing out-of-pocket medical costs and increasingly the likelihood that patients will proactively undergo follow up testing, rather than decline crucial testing due to costs. Supporthttps://triagecancer.org/CA-AB-342-Letter-of-SupportSigned into law on 10/1/2021
Federal2021Restore robust funding to Consumer Assistance Program Funding for FY22BillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textConsumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.Supporthttps://triagecancer.org/wp-content/uploads/2021/04/042621-CAP-Grant-Support-Letter-w-Logos-FINAL.pdfPassed in House on 2/5/2021
Federal2022Reduce the costs of drugs on Part D Medicare and extend tax credits and subsidies for Marketplace plans through 2025BillInflation Reduction ActSupportSigned into law on 08/16/2022https://www.whitehouse.gov/briefing-room/statements-releases/2022/08/19/fact-sheet-the-inflation-reduction-act-supports-workers-and-families/#:~:text=The%20Inflation%20Reduction%20Act%20will%20protect%20Medicare%20recipients%20from%20catastrophic,for%20the%20first%20time%20ever.
California2022Access to Cancer Treatment for Medi-Cal beneficiariesBillSB 987- Cancer Care Equity Acthttps://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202120220SB987The California Cancer Care Equity Act would ensure Medi-Cal beneficiaries who receive a complex cancer diagnosis have the choice to seek treatment at a comprehensive cancer center, increasing the number of Californians able to benefit from emerging therapies, clinical trials and appropriate cancer treatment specialized for particular types of cancer.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/SB-987-Cancer-Coalition-Support.pdfSigned in to law on 9/27/2022https://triagecancer.org/SB987FactSheet
California2022Biomarker TestingBillSB 912Senate Bill 912 will require state-regulated plans, including Medi-Cal, to cover comprehensive biomarker testing when supported by medical and scientific evidence, including nationally recognized clinical practice guidelines.Supporthttps://triaghttps://triagecancer.org/wp-content/uploads/2022/09/TC-Support-for-SB912.pdfVetoed by Governor on 9/29/2022https://www.fightcancer.org/increasing-access-biomarker-testing-sb912-lim%C3%B3n
Federal2022Renewal of the Prescription Drug User Fee ActReauthorization needed at the end of the FYIncluded within: H.R.7667https://www.congress.gov/bill/117th-congress/house-bill/7667Equitable access to clinical trials and diverse participation requires deliberate planning to achieve. FDA has recently taken steps to encourage sponsors to develop diversity action plans through the release of draft guidance, but such plans are currently optional. Several provisions in the House-passed version of PDUFA would make such plans mandatory, and we urge Congress to include these diversity planning requirements in final PDUFA legislation.Supporthttps://triagecancer.org/PDUFAConferenceCommunitySupportLetter20225 year reauthorization included in temporary budget bill passed on 9/30/2022
New Jersey 2021State Guidelines for Step Therapy ProtocolsBillS3051/A4815 Establishes certain guidelines for health insurance carriers concerning step therapy protocols.https://www.njleg.state.nj.us/bill-search/2020/A4815This act would ensure patient access to appropriate care by requiring health insurance carriers to base step therapy protocols on peer-reviewed data, exempting patients from step therapy when protocols would not be in the best interest of the patient, and establishing patients' right to a fair process for requesting exemptions. SupportPassed by House, died in Senate Commerce Committee
Ohio2021Enact Vaccine Choice and Anti-Discrimination Act BillHB 248-11 Enact Vaccine Choice and Anti-Discrimination Act https://www.legislature.ohio.gov/legislation/legislation-summary?id=GA134-HB-248The legislature has heard that this bill’s purpose is to prevent the COVID-19 vaccine from becoming mandatory, but HB 248-11 applies to ALL immunizations, including childhood vaccines. If passed, this legislation has the potential to reverse decades of immunity from life-threatening, but vaccine-preventable diseases such as measles, mumps, hepatitis, meningitis and polio.Opposehttps://triagecancer.org/Vaccine-Coalition-Letter_6.14Died in the House Health Committee
North Carolina2021Medicaid ExpasionBillH149 Will expand access to eligible adults up to 138% of the Federal Poverty Levelhttps://lrs.sog.unc.edu/bill-summaries-lookup/H/149/2021/H149This bill would allow adults who do not qualify under another program to enroll in Medicaid if their income is below 138% of poverty. NC expects that about 600,000 low income individuals would become eligible under expansion criteria.Supporthttps://triagecancer.org/wp-content/uploads/2022/09/Triage-Cancer-Support-for-HB-149.pdfPassed the Senate (6/2/2022), Returned to House, no further action taken
New York2022Biomarker TestingBillA09149https://assembly.state.ny.us/leg/?default_fld=&leg_video=&bn=A09149&term=2021&Summary=YAssembly Bill A09149 will require increased coverage of Biomarker Testing for those on both public and private health insurance plans. Despite the clear benefits of biomarker testing, many insurance plans do not cover evidence-based biomarker testing for all patients who need it. Improving coverage for and access to biomarker testing across insurance types is key to reducing health disparities.Supporthttps://triagecancer.org/wp-content/uploads/2022/06/NCOIL-biomarker-coalition-letter_FINAL.pdfDied in insurance committee
Pennsylvania2022The MRI BillBillS1225https://www.legis.state.pa.us/cfdocs/billInfo/BillInfo.cfm?syear=2021&sind=0&body=S&type=B&bn=1225This will clarify that the MRI/Ultrasound coverage extends to women with any of the following risk factors, and without the application of any deductible, copayment or coinsurance provisions contained in the policy or plan:personal history of atypical breast histologies;personal history or family history of breast cancer;genetic predisposition for breast cancer;prior therapeutic thoracic radiation therapy;extremely dense or heterogeneously dense breast tissue based on breast composition categories of the Breast Imaging and Reporting Data System established by the American College of Radiology.SupportPassed by the Senate, referred to the House Insurance committee, no further action taken
Minnesota2022Biomarker TestingbillHF4899/SF4610https://www.revisor.mn.gov/bills/bill.php?b=House&f=HF4899&ssn=0&y=2022Health plans required to provide coverage for biomarker testing.SupportNo action taken
Federal2021Access to Breast Cancer Diagnosis (ABCD) ActBillS.1067/H.R.5769https://www.congress.gov/bill/117th-congress/senate-bill/1067.This bill prohibits private health insurance plans from imposing higher cost-sharing requirements on breast cancer diagnostic examinations than initial breast cancer screening examinations. Diagnostic examinations are generally required after an initial screening detects an abnormality and typically require additional mammogram images (e.g., x-rays).Supporthttps://triagecancer.org/wp-content/uploads/2022/07/Letters-of-Support-for-ABCD-Combined.pdfIntroduced in Senate 4/12/2021; Introduced in House 10/28/2021
Federal2021Access to Screening and Treatment for Prostate Cancer Among Underserved and Minority GroupsBillS.Con.Res.5 - A concurrent resolution setting forth the congressional budget...https://www.congress.gov/bill/117th-congress/senate-concurrent-resolution/5/textProviding funding to address inequity and access to screening and treatment for prostate cancer in FY 2022 would further lower mortality rates and address concerning increases in late-stage prostate cancer disease.Supporthttps://triagecancer.org/wp-content/uploads/2021/01/FoPCCC-Transition-Letter-FINAL.pdf
Federal2021Better Care Better Jobs Act BillH.R.4131/S.2210 - Better Care Better Jobs Acthttps://www.congress.gov/bill/117th-congress/senate-bill/2210?r=97&s=6Investing $400 billion in Medicaid home- and community-based services (HCBS) would make states eligible for HCBS planning grants, as well as permanent enhanced federal Medicaid match funding to expand and strengthen HCBS access and workforce. Supporthttps://triagecancer.org/Better-Care-Better-Jobs-ActIntroduced in both House and Senate 06/24/2021
Federal2021Cancer Care Planning and Communications ActBillH.R.4414 -The Cancer Care Planning and Communications Acthttps://www.congress.gov/bill/117th-congress/house-bill/4414?q=%7B%22search%22%3A%5B%22H.R.+4414%22%5D%7D&s=1&r=1 This legislation would facilitate cancer patients’ access to comprehensive cancer care plans by allowing doctors to bill Medicare for their time crafting these plans, improving patients’ health literacy and survivorship outcomes. Supporthttps://triagecancer.org/The-Cancer-Care-Planning-and-Communications-Act-LetterIntroduced to House on 07/13/2021
Federal2021Cigna's Letters to Patients and Providers on CosentyxLetterhttps://www.cigna.com/employers-brokers/insights/informed-on-reform/wellness-programs-and-incentivesCigna's recent Cosentyx initiative coerces a non-medical switch in medication that may harm those suffering from autoimmune diseases and other chronic conditions.Opposehttps://triagecancer.org/wp-content/uploads/2021/04/Cigna-Sign-on-Letter-FINAL4.162.pdfCigna continues to incentivize patients to switch.Contact Cigna to ask Chief Clinical Officer Steve Miller to rescind this incentive.
Federal2021CONNECT for Health Act of 2021BillS.1512/H.R. 2903 - CONNECT for Health Act of 2021https://www.congress.gov/bill/117th-congress/senate-bill/1512This legislation facilitates access to telehealth services for Medicare beneficiaries by removing barriers to coverage, including geographic requirements which currently restrict access for those in rural areas. Supporthttps://triagecancer.org/CONNECT-Act-of-2021Introduced in House 4/28/2021; Introduced in Senate 04/29/2021
Federal2021Cover Outstanding Vulnerable Expansion-Eligible Residents Now ActBillH.R.3961 - COVER Now Acthttps://www.congress.gov/bill/117th-congress/house-bill/3961?s=1&r=3This act would allow the Centers for Medicare and Medicaid Services (CMS) to work directly with individual counties and cities to expand Medicaid coverage in their region, even if their State has declined to accept federal resources for Medicaid expansion. SupportIntroduced in House 06/17/2021
Federal2021Credit for Caring Act BillS.1670/H.R. 3321 - Credit for Caring Act of 2021https://www.congress.gov/bill/117th-congress/senate-bill/1670?s=1&r=9This bill reduces costs for caregivers by creating a tax credit of up to $5,000 for 30% of the cost of long-term care expenses exceeding $2,000 in a taxable year. Eligible caregivers must earn more than $7,500 a year and pay for long-term care for their spouse or dependent relative.Supporthttps://triagecancer.org/Credit-For-Caring-LetterIntroduced in Senate 05/18/2021
Federal2021DIVERSE Trials ActBillS.2706/H.R.5030 - DIVERSE Trials Acthttps://www.congress.gov/bill/117th-congress/senate-bill/2706To address health inequities by increasing racially diverse participation in clinical trials, this act allows sponsors of trials to allieviate costs for patients by reimbursing patients for non-medical costs associated with their trial participation, such as travel, parking, food, or lodging. This legislation also allows trial sponsors to provide free access to technologies associated with the trial. Plus, it creates a program for awarding grants to organizations providing community support for clinical trial enrollment.Supporthttps://triagecancer.org/DIVERSE-Trials-Act-LettersIntroduced in Senate on 08/10/2021; Introduced in House on 08/13/2021
Federal2021Excellus BlueCross BlueShield's Decision on Prior Authorization for Non-Small Cell Lung Cancer TherapyLetterhttps://provider.excellusbcbs.com/authorizations/medicalThis change effectively excludes cemiplimab from coverage, leaving patients with non-small cell lung cancer (NSCLC) without access to it. We recommend that Excellus amend its prior authorization policy to remove the step therapy requirements for patients with advanced NSCLC whose tumors have high PD-L1 expression.Opposehttps://triagecancer.org/Excellus-BCBS-LetterAsk Excellus to remove step therapy for advanced NSCLC patients
Federal2021Family and Medical Insurance Leave Act (FAMILY Act)Billhttps://www.congress.gov/bill/117th-congress/house-bill/804?q=%7B%22search%22%3A%5B%22FAMILY+delauro%22%5D%7D&r=4&s=5This bill would alleviate the financial burden associated with emergency medical care by entitling employees to family and medical leave insurance (FMLI), providing two thirds of their regular pay for 60 days. Supporthttps://triagecancer.org/facts-paid-family-and-medical-leaveIntroduced in House 02/04/2021
Federal2021Improving Access to Mental Health Act of 2021BillH.R.2035 - Improving Access to Mental Health Act of 2021https://www.congress.gov/bill/117th-congress/house-bill/2035/actions?r=6&s=1This legislation will facilitate patient access to mental health services by increasing Medicare reimbursement rates for clinical social workers, access to mental health services for residents of skilled nursing facilities, and supports for beneficiaries managing emotional and social effects of medical conditions.Supporthttps://triagecancer.org/Improving-Access-to-Mental-Health-Act-of-2021-LettersIntroduced in House 03/18/2021
Federal2021Improving Seniors’ Timely Access to Care Act of 2021BillH.R.3173/S.3018 - Improving Seniors’ Timely Access to Care Act of 2021https://www.congress.gov/bill/117th-congress/house-bill/3173?s=1&r=5This act streamlines the process for prior authorizations for Medicare Advantage (MA) plans by establishing an electronic prior authorization (ePA) program.Supporthttps://triagecancer.org//The-Improving-Seniors-Timely-Access-to-Care-Act-of-2021-LetterPassed out of House Ways and Means Committee on 7/27/2022, in the Energy and Commerce Committee Health Subcommittee; Introduced in Senate 10/20/2021
Federal2021Lowering Medicare Premiums and Prescription DrugCosts ActBillS.1844/H.R.5099 - Lowering Medicare Premiums and Prescription DrugCosts Act https://www.congress.gov/bill/117th-congress/senate-bill/1844/text?r=4&s=1This act helps reduce barriers to care by expanding and streamlining financialassistance for Medicare Part A, Part B and Part D beneficiaries.Supporthttps://www.aging.senate.gov/imo/media/doc/Lowering%20Medicare%20Premiums%20and%20Prescription%20Drug%20Costs%20Act%20-%20One%20Pager.pdf?eType=EmailBlastContent&eId=274324d7-62ef-43ba-a354-20b529cb91dcIntroduced in Senate 05/26/2021; Introduced in House on 8/24/2021
Federal2021Lymphedema Treatment ActBillS.1315/H.R. 3630 - Lymphedema Treatment Acthttps://www.congress.gov/bill/117th-congress/senate-bill/1315/text?r=6&s=1 This act provides Medicare coverage for certain lymphedema compression treatment items, reducing associated costs to facilitate patients' access to necessary supplies. Supporthttps://triagecancer.org/Lymphedema-Treatment-ActIncluded in the Omnibus Bill in Decemer 2022, Effective 1/1/2024https://lymphedematreatmentact.org/
Federal2021Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021BillH.R.1946 - Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021https://www.congress.gov/bill/117th-congress/house-bill/1946/all-info?r=1&s=1HRThis act would provide Medicare coverage for multi-cancer early detection screening tests, improving patient access and reducing costs. Supporthttps://triagecancer.org/wp-content/uploads/2022/05/MCED-Support-March-2021-and-May-2022.pdfIntroduced in House on 03/16/2021
Federal2021Metastatic Breast Cancer Access to Care ActBillH.R.3183/S.1312 - Metastatic Breast Cancer Access to Care Acthttps://www.congress.gov/bill/117th-congress/senate-bill/1312/actionsThis legislation will facilitate the timely delivery of patients' financial help and medical care by eliminating the five-month waiting period for Social Security Disability Insurance (SSDI) and 24-month waiting period to access Medicare coverage for individuals with metastatic breast cancer.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/Metastatic-Breast-Cancer-Letters.pdfIntroduced in Senate 04/22/2021
Federal2021Patient-Centered Drug Pricing Policies for Autoimmune PatientsBillH.R. 3 - Elijah E. Cummings Lower Drug Costs Now Act https://www.congress.gov/bill/117th-congress/house-bill/3?q=%7B%22search%22%3A%5B%22H.R.+3+Elijah+E.+Cummings+Lower+Drug+Costs+Now+Act%22%5D%7D&r=1&s=1H.R. 3 would use other countries' reference price methodology to set drug prices to a maximum fair price (MFP). These countries use a Quality Adjusted Life Years (QALY) metric, which would discriminate against seniors and disabilities, resulting in the rationing of their care. Instead, we recommend protecting co-pay assistance, instituting federal cost-sharing caps, and mandating transparency for Pharmacy Benefit Managers (PBM) operations to lower drug prices for patients. Supporthttps://triagecancer.org/Patient-Centered-Drug-Pricing-LettersIntroduced in House 04/22/2021
Federal2021Protecting Seniors Through Immunization Act of 2021BillS. 912/H.R. 1978 - Protecting Seniors Through Immunization Acthttps://www.congress.gov/bill/117th-congress/senate-bill/912/textThis act will help strengthen vaccine uptake by improving education and equitable access to recommended vaccines for Medicare beneficiaries.Supporthttps://triagecancer.org/AVAC-Protecting-Seniors-SupportIntroduced in the House 3/17/2021; Introduced in Senate 03/23/2021
Federal2021Reducing Hereditary Cancer Act of 2021 & Reducing Hereditary Cancer Act of 2022BillH.R.4110 - Reducing Hereditary Cancer Act of 2021; S.3656 Reducing Hereditary Cancer Act of 2022https://www.congress.gov/bill/117th-congress/house-bill/4110/all-infoThis act would facilitate patient access to medically-appropriate genetic testing for cancer risk and other risk reducing interventions by providing Medicare coverage for these services.Supporthttps://triagecancer.org/wp-content/uploads/2022/07/Support-Letters-for-Reducing-Hereditary-Cancer-Act-Combined.pdfIntroduced in House 06/23/2021; Introduced in Senate 2/16/2022
Federal2021Safe Step ActBillS.464/H.R.2163 - Safe Step Act https://www.congress.gov/bill/117th-congress/senate-bill/464?overview=closedThis legislation would require employer-sponsored health insurance plans to create clear step-therapy exception protocols, laying out steps for getting medications approved without step therapy. If the first drug patients must take before "stepping-up" to their preferred drug a) would not be effective, b) is expected to be ineffective and delaying treatment would cause irreversible consequences, c) would cause an allergic reaction, b) would prevent the patient from completing daily activities, or e) would disrupt an already-stable drug regimen, the request must be approved. Supporthttps://triagecancer.org/Safe-Step-Act-LettersIntroduced in Senate on 02/25/2021; Introduced in House, 03/23/2021
Federal2021Seniors Prescription Drug Relief ActBillS. 2327- Seniors Prescription Drug Relief Acthttps://www.congress.gov/bill/117th-congress/senate-bill/2327?q=%7B%22search%22%3A%5B%22S.+2327+%28IS%29+-+Seniors+Prescription+Drug+Relief+Act%22%5D%7D&s=1&r=1The Seniors Prescription Drug Relief Act alleviates costs for Medicare Part D beneficiaries by capping out-of-pocket costs at $3,100, allowing patients to pay high prescription drug costs through monthly payment plans, and reducing prescription drug co-insurance from 25 to 20 percent during the “doughnut hole” period.Supporthttps://triagecancer.org/Seniors-Prescription-Drug-Relief-Act-Letter-of-SupportIntroduced in Senate on 07/13/2021; many of the provisions of this law were incorporated into the Inflation Reduction Act of 2022 and signed into law on 08/16/2022
Federal2021Supplementary Security Income (SSI) Restoration Act of 2021BillH.R.3824/S.2065 - The Supplementary Security Income (SSI) Restoration Act of 2021https://www.congress.gov/bill/117th-congress/senate-bill/2065The SSI Restoration Act updates regulations for the Supplemental Security Income program to increase benefits available to low-income Americans with disabilities and older Americans.Supporthttps://triagecancer.org/SSI-Restoration-Letter-of-SupportIntroduced in Senate 06/11/2021
Federal2021VALID Act of 2021BillH.R. 4128/S. 2209 VALID Act of 2021https://www.congress.gov/bill/117th-congress/senate-bill/2209?overview=closedThis act would create a regulation specific to vitro clinical tests (IVCTs), separate from the regulatory framework for other medical devices. IVCTs would be subject to a premarket review process, notably including a Technology Certification Program.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/VALID-Act-Letters-of-Support-Combined.pdfIntroduced in Senate 6/24/2021
Federal2021Paid Family Medical LeaveBill S. CON. RES. 14https://www.congress.gov/117/bills/sconres14/BILLS-117sconres14es.pdfPaid Family and Medical Leave provisions included in the FY 2022 Budget Reconciliation Proposal to institute a comprehensive, universal, paid family and medical leave plan for workers, including caregivers of older adults and people with disabilities.Supporthttps://triagecancer.org/paidleave-10-29Paid Family Medical Leave was not included in the Budget for FY22
Federal2022Increase Funding for NIH in FY23 to $49 BillionForthcoming Budget Resolution FY23Increasing funding for the National Institutes of Health will help make progress to address health challenges, including COVID-19.Supporthttps://triagecancer.org/wp-content/uploads/2022/05/FY-2023-Ad-Hoc-Group-Recommendation_5.10.22_Final.pdf
Federal2022Provide robust funding to Consumer Assistance Program Funding for FY23Forthcoming Budget Resolution FY23Consumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.Support
Federal2022Response to Public Comment Period Requesting Information Regarding Reporting on PharmacyBenefits and Prescription Drug CostsFTC Request for Informationhttps://www.ftc.gov/news-events/news/press-releases/2022/04/federal-trade-commission-extends-public-comment-period-request-information-impact-pharmacy-benefitPBMs play a large part in how patients access and afford their prescription medications. We call on the FTC to use all the power within its purview to help alleviate these harmful policies and practices that make access to prescription drugs out of reach for patients and impact the health of our nation. We support increased regulation of the PBMs.Supporthttps://hivhep.org/wp-content/uploads/2022/05/FTC-Public-Comments-on-PBM-Practices-5.24.22-1.pdfPeriod for Public Comments to FTC ended 5/25/2022
Federal2022Restore robust funding to Consumer Assistance Program Funding for FY23Forthcoming Budget Resolution FY23Consumer Assistance Programs provide important resources for educating the public about their health insurance options and assist people navigating transitions in health insurance coverage due to changes in employment status, evolving family configurations, age, and other factors. Furthermore, CAPs can play an important role in ensuring that consumers understand their rights and receive protections against surprise medical bills that Congress intended.Support
Federal2022Health Equity and Accountability Act of 2022BillH.R. 7585https://www.congress.gov/bill/117th-congress/house-bill/7585Achieving health equity – the highest level of health for everyone – is a critical imperative for this country, not only because it is at the heart of our shared values of fairness, justice, and equal opportunity, but because it is impossible to have a sustainable healthcare system without it. The Health Equity and Accountability Act (HEAA) can provide the tools necessary to address these health inequities and ensure that health and health care disparities elimination are prioritized.Supporthttps://triagecancer.org/HEAA-Letter-of-SupportPassed the out of the House 6/8/2022 and received by the Senate 6/9/2022
Federal2022Building a Sustainable Workforce for Healthy Communities ActBillH.R. 8151/S. 3479https://www.congress.gov/bill/117th-congress/senate-bill/3479 https://www.congress.gov/bill/117th-congress/house-bill/8151?s=1&r=22Reauthorizes funding allotted to the CDC for Community Health Workers through 2027Supporthttps://triagecancer.org/wp-content/uploads/2022/09/Sign-on_Building-Sustainable-CHW-Workforce_PIH_9-8-22.pdfIntroduced in the Senate 1/11/2022, and in the House 6/21/2022
Federal2022Saving Access to Laboratory Services ActBillH.R. 8188/S. 4449https://www.congress.gov/bill/117th-congress/house-bill/8188 https://www.congress.gov/bill/117th-congress/senate-bill/4449Updates Medicare's payment system for laboratory testing to provide improved access to testing and foster innovation.Supporthttps://triagecancer.org/wp-content/uploads/2022/09/Stakeholder-Letter-in-Support-of-SALSA-9-13-22.pdfIntroduced 6/22/2022
Federal2022Preserving Access to Home Health Act of 2022BillH.R. 8581/S. 4605https://www.congress.gov/bill/117th-congress/house-bill/8581?q=%7B%22search%22%3A%5B%22HR+8581%22%2C%22HR%22%2C%228581%22%5D%7D&s=1&r=1Prevent cuts in Medicare's rates to Home Health Care rates from going into effectSupportIntroduced 7/28/2022 and referred to committee
Federal2021Accelerating Kids’ Access to Care Act (AKACA)BillHR 3089/S 1544https://www.congress.gov/bill/117th-congress/house-bill/3089/actions Establishes a limited streamlined federal Medicaid screening and enrollment pathway for providers caring for children so that children on Medicaid can receive prompt care in another state when the care is not available in their home state.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/AKACA-Updated-Endorsement-Letter-Fall-2022.pdfIntroduced 5/2021, referred to committee
Federal2022Palliative Care and Hospice Education and Training Act (PCHETA)BillS 4260https://www.congress.gov/bill/117th-congress/senate-bill/4260Improves training programs for Palliative Care and Hospice Education to increase the field of professionals with this training as the demand for such services is expected to grow.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/Triage-Cancer-Letter-of-Support-for-PCHETA.pdfIntroduced 5/19/2022, referred to committee
Federal2021Prostate Specific Antigen Screeing for High RIsk Insured Mens Act (PSA for HIM Act)BillHR 1176https://www.congress.gov/bill/117th-congress/house-bill/1176/all-actions?s=1&r=95The PSA for HIM Act would waive deductibles, copayments, and coinsurances for prostate cancer screenings for those with a family history of prostate cancer or who are African-American.Supporthttps://triagecancer.org/wp-content/uploads/2022/11/HR-1176-Endorsement-Letter.pdfIntroduced 2/19/2021
Federal2022Stop the Wait Act of 2022BillH.R.6583/S.3575https://www.congress.gov/bill/117th-congress/house-bill/6583/textWould eliminate the five month waiting period for SSDI and the 2 year waiting period for Medicare for those who are deemed disabled by the Social Security AdministrationSupportIntroduced in both the House and Senate Feb 2022
Federal2022Comprehensive Cancer Survivorship ActBillhttps://wassermanschultz.house.gov/uploadedfiles/the_comprehensive_cancer_survivorship_act_ccsa_-_bill_text.pdfThe CCSA will set new standards of care to improve the experience for survivors, their families, and caregivers, throughout their survivorship journey, from diagnosis to end of life.Supporthttps://triagecancer.org/wp-content/uploads/2022/12/CCSA-Letter-of-Support.pdfIntroduced December 14, 2022

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